Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

A mothers instinct! Thank goodness, you had the courage to fight for your dear son! It is you that should be praised. You are not venting,
Hope from now on you get the very best care, treatment and help get through this. Sending wishes and hope that your son will be well again very soon. 💙

A mothers instinct! Thank goodness, you had the courage to fight for your dear son! It is you that should be praised. You are not venting,
Hope from now on you get the very best care, treatment and help get through this. Sending wishes and hope that your son will be well again very soon. 💙

You are making sense OP. You did the right thing - the Doc can rewrite history but YOU know what happened. At some point you'll see how amazing it is that you got here so quickly. As you can see from your replies there will be many people here giving you a virtual hand hold xx

You make perfect sense to those of us who have been there. Time is weird when your kid is, well, not right. It is a short time for the consultant but not for your family. You've been to seen many people to get this far. You had to persist and be taken seriously, and you did it.

If you hadn't he'd have been in real bother. I know it feels like you are in the mire now, but you'll find your feet, you'll find the patterns of the new-shitty-normal and where the spot is for a breather on a bench, and where does a decent coffee and where you can have a quiet cry. Those things are important - if you didn't have to figure them out then you'd still be at home and he'd be in more of a pickle.

Make time to give yourself credit. You advocated for him. Top parenting, that.

Hope you get some sleep.

You are making absolute sense, don’t worry.

Glad to hear they are moving quickly - hope you find out some more information soon about the surgery and follow up etc.

My daughter had cancer as a baby. It was an awful time but you can and will get through it. Sending you so much love and strength.

You are making perfect sense.
Your instinct was right - and you had the strength to stand up and say so.

Wishing you more courage and strength for the days ahead. With you.

Vent away, allow yourself to go through any emotion that comes. And you’re right, you knew something was wrong and you pushed for the tests. I’m deeply sorry OP. I cannot even begin to imagine what you are going through right now but I’m thinking of you and your family right now and giving you an online handhold.

Hi, So sorry to hear this update. If it's any help, the advances that have been made in modern medicine within the last 10 years are excellent. He's in good hands. I wish you all the best, and will think of you all in my prayers.x

Vent away, that’s one of the things we are here for. Of course the consultant’s memory is frustrating as hell. Keep on venting whenever you like. I’ve had to deal with an oncologist’s mistake at one of England’s leading cancer hospitals so I have every sympathy. (Caught early and hopefully no harm done, but frustrating and no apology either. Wouldn’t it be nice if they would just say sorry?)

But the main thing is that you are moving forward now to help your little boy, and doing it at one of the best places on Earth.

First of all I want to send the OP my best wishes. I have to say I am genuinely appalled that it has taken the NHS 7 months from when her little boy started having the symptoms, until he was actually offered a scan. Experiences such as this are sadly all too common now. They take far too long to diagnose conditions.

My thoughts are with you all and so glad your son is getting help. My brother was helped in this hospital when he was born. Good hands.

Sounds like you are in the best possible place in terms of treatment and care right now.

Be kind to your selves. Allow yourself to go through all the necessary emotions. Please speak up and reach out when needed!

💙💙💙

Glad they are getting things moving fast. As pps have said, write down your questions and all the info you are given, so easy to forget things. Sending all good vibes to you all

I’m glad you’re in the right place now. Well done for pushing when something wasn’t right, you should be proud. Lots of love to you and your family xx

My DH had a brain tumour. They weren't able to operate because of where it was.

However kids brains are still growing so their prognosis with a tumour is much better as the brain tissue recovers and rebuilds itself. Pretty amazing.

Thinking of you all and sending strength.

PP have probably previously mentioned but Brain Tumour Chairity websote good for undertanding terminology/bits of brain
www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/types-brain-tumour-children/

Vent away op.rhats what we can be here for.im so sorry you have to go through this.but your on your way now.try not to be eaten up by the what ifs and past coulda wouldas.thats gone now.focis right on on right now and what's you g to help you through this.
Take it moment by moment.
Let any and all emotions come non are stupid. no irrational thought too far fetched.your mind is processing fear right now.be on its side.tell it ur ok.your safe.yiur grounded and you can do this.think how strong you've all been already.what a team.what an army to fight this together.

Things have moved quickly since your appointment, you mustn't know if you're on your head or your feet!

I hope today goes well and the results are all favourable to getting rid of this unwanted passenger.

Big hugs to you all (unmumsnetty of course) and thanks for keeping us updated. You won't be alone on this journey, there's so many people here right alongside you.

Things have moved quickly since your appointment, you mustn't know if you're on your head or your feet!

I hope today goes well and the results are all favourable to getting rid of this unwanted passenger.

Big hugs to you all (unmumsnetty of course) and thanks for keeping us updated. You won't be alone on this journey, there's so many people here right alongside you.

Oops sorry for the double post. Dodgy WiFi!

Sending you the very best of luck OP. I'll look out for updates with my fingers crossed x

You were right to have lost your shit - time to diagnosis for kids brain tumours in the UK has historically been really bad.

I take it the need for the surgery is urgent - with our son it was a slow growing tumour and it was two months between diagnosis and surgery. On the one hand we had time for second opinions… on the other it prolonged the anguish.

I hope you have supportive family, friends and colleagues around you.

Sorry to hear the update.

But be proud you fought for your son knowing he needed medical help.

Hopefully you'll get some more explanations today. Remember to ask anything you need to ask.

You have ensured your son is getting the help he needs. You trusted your instincts and persevered for him. I am so sorry that any of you have to go through this but you have done him proud. He is in the best place and he has you on his team.
Sending you love and strength ❤️