Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

I'm so sorry to ready this update - have been thinking of you and your DS today. You and your husband must be reeling, so many things going around your head I'm sure.

But you're in a better position than you were yesterday - and as a PP said upthread, the NHS move fast when it comes to paediatric cases such as this.

We're here if you need us - night and day.

Just want to echo what vivarium expressed so beautifully.
there is always someone around on Mumsnet, always. We’d love to be your scaffolding at this time xx

Sending you all the most positive power to fight this fight you have ahead. We have been here as a family and understand the terror and sadness. Please use us as you need. Your son is blessed to have a wonderful wonderful family xx

Im so sorry to see your update. I didn’t comment yesterday but I came to back today for the update. We had a similar call back about my mums MRI a number of years ago and that was also a tumour but I didn’t want to comment and say that yesterday. There are so many different tumours and treatments. Many are completely treatable. I’m so sorry you’re going through this. There are many brain tumour support groups around x

@nearlymumof5 I was so hoping not to read this news today.

We wrnt through the same thing with my niece who was 8. She had a tumour on the back of her brain, near the stem.

Don't be afraid to ask as many questions of the doctors as you need to, as you have found out, you are your son's biggest advocate.

Easier said than done i know, but take a breather now and again, you need to look after yourself as much as your son. Whatever help is offered, take it.
Right now, if you are anything like our family, everyone is reeling. Clic Sargent and Latch were absolutely amazing, with all of us. Don't be afraid to lean on them, they are absolute godsend
I wish you and your family all the luck in the world x

Hi op I and on sorry to hear this. Did he get his bloods checked before and was there any concerns with his bloods.

Just another well-wisher checking in

I am sorry. That is really difficult news to take in. Sending you lots of strength. I hope that it turns out to be a slow growing, treatable one. As others have said, well done for advocating for him and getting him tested as soon as you did. That could very well make a huge difference to the outcome.

Sending you lots of luck and good wishes OP x

Just wanted to handhold a bit. I had a tumour removed and a two week stay courtesy of the John Radcliffe neurosurgery team a couple of years ago. Medical emergency right at the height of covid lockdowns.

The care and treatment I got was second to none. You are all in very safe hands.

Tumour and brain are not words you ever want to hear in the same sentence but my only advice is don’t panic until you know the full story. Whilst of course not everyone has good news, there are plenty of happy, healthy and tumour free people living their lives post surgery or treatment. It’s very easy to fear the worst and it’s beyond a scary place to be when you don’t yet know the facts.

I’m a success story. An 11 hour operation, complete tumour removal and back home after two weeks with no ill effects. All down to the care I got at the JR. He will be in the best possible place.

I’m so sorry to see your update OP 💐 Like everyone else, I’m sending you, your lovely boy and your family lots of positivity for whatever journey you’re going to be going on now.

What an amazing advocate you are for your son. You knew something wasn’t right and you pushed for tests. It’s absolutely devastating that he has a tumour but it’s a positive thing that it has been found ❤️

I know you and your DH will be 100% focused on your boy, but please remember to look after yourselves too!

Heartfelt wishes to your family. Everything crossed xx

Sending you a huge hand hold and hoping your DS gets all the help and support x

I am so sorry - I didn't want to comment yesterday and hoped to read better news today. My son was also diagnosed with a brain tumour.

Take a notebook with you and make notes. You will be reeling and won't be able to take it all in.

Sending you much love and strength xx

I am so sorry - I didn't want to comment yesterday and hoped to read better news today. My son was also diagnosed with a brain tumour.

Take a notebook with you and make notes. You will be reeling and won't be able to take it all in.

Sending you much love and strength xx

Sending inadequate virtual hugs.

So sorry OP 💐

Hey everyone, a quick update, we are now in JR with the view that the scan will be tomorrow and an operation on Monday, we’ve not long got here (from our local hospital) so yet to speak to the docs , thank you everyone for your support , it means a lot xx

Sending you the very best of luck OP. I'll look out for updates with my fingers crossed x

Hope all goes well for your son x

I'm so glad they're being speedy. Sending you all the positivity I can muster.

Just news no parent wants to hear. My heart goes out to you and your family. Hope everything goes well for your boy and he is on the mend soon 💕

I just knew, I knew deep down and felt so silly for pushing but I’m so glad I did. The consultant today was almost praising himself for getting a diagnosis relatively quickly (4 weeks since we had our first appointment with him) forgetting the fact that I had to loose my shit for him to change his referral from routine to urgent for the mri, otherwise we would have had another 6-8 weeks to wait for the scan … sorry I’m venting and probably not making any sense

You are making perfect sense. Monday isn't far away. You are all going to come through this. Love to you all. xx

Vent away!

Are you with your husband? If so, I hope they can get you room in the Ronald McDonald - that way one of you can stay at his bedside and one in the accomodation and swap etc.

How's your little one holding up?
Its a really really shit club to be a part of and I'm really sorry