Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

I’m so sorry you had this news today. A girl in my class aged 12 was diagnosed with a brain tumour and after successful treatment is now celebrating her 50th birthday. Praying for the same outcome for your son x xx

Sorry to hear your news OP, I've been there and know how utterly crap it feels.

Don't feel the need to be brave, that's the best bit of advice I can give you. Shout, scream, do whatever you need to do. Don't feel you have to be strong, because you don't. This is your little boy, and it's just the worst feeling in the world. I tried to be strong and it eventually put me in a bad place; I didn't give myself any time to comprehend what was happening.

On a plus note, my boy is not such a little boy any more. He's 5 years post treatment and whilst he has a couple of issues thanks to the bastard in his head, you wouldn't really know. He's a real champion in my eyes ❤️

Please message if you'd like a chat with someone who has been there x

I'm really sorry to read this op, thinking of you all x

Sorry to hear your news OP, I've been there and know how utterly crap it feels.

Don't feel the need to be brave, that's the best bit of advice I can give you. Shout, scream, do whatever you need to do. Don't feel you have to be strong, because you don't. This is your little boy, and it's just the worst feeling in the world. I tried to be strong and it eventually put me in a bad place; I didn't give myself any time to comprehend what was happening.

On a plus note, my boy is not such a little boy any more. He's 5 years post treatment and whilst he has a couple of issues thanks to the bastard in his head, you wouldn't really know. He's a real champion in my eyes ❤️

Please message if you'd like a chat with someone who has been there x

I am so sorry to read your news.
The neurosurgery team at the JR are truly amazing I have several friends who are alive and walking due to their skill.
The only downside is it is possibly the hospital with the most shit parking it is possible to have. It is worth having a third adult to drop you at the hospital and then go and park elsewhere or have coffee in the Costa down the road.

Sending you and your family love❤

Sending love to you and your family x

@vivariumvivariumsvivaria what a lovely helpful message

So very sorry to hear your news OP. It’s just one step at a time now. This is your time to take, take, take everything that you and your family need. Don’t hesitate to tell people how they can help. Come back here whenever you need a place to vent. Hugs to you and your DS

So sorry to hear your news hope the specialist appointment goes well x

Oh god, I'm so sorry to see this. Sending lots of love ❤

I a very sorry to hear this new, much love to your family.❤️

On a practical financial note if you have any Critical illness cover you can often claim for a smaller amount if a child has a critical illness. Check your policies to see if you are covered, as it may give you additional breathing space financially as you start this journey.

I a very sorry to hear this new, much love to your family.❤️

On a practical financial note if you have any Critical illness cover you can often claim for a smaller amount if a child has a critical illness. Check your policies to see if you are covered, as it may give you additional breathing space financially as you start this journey.

@nearlymumof5 this is really devasting for you all. I’ll be thinking of you during this uncertain time

🌸

Also really sorry to read your update and my thoughts are with you

Oh I’m so sorry to hear this news. Sending you strength. ❤️

Sending you a lot of good wishes and strength. From our experience, the children’s neurosurgeon team at John Radcliffe is fantastic. They’ll look after you all very well.
I hope all goes well.

So sorry that it wasn’t good news. Hopefully things will move quickly and he will get the treatment he needs.

I know of a little boy that had a similar size tumour and he’s now in remission and doing well after surgery.

Just came back to check for update. Been thinking of you all day. So so sorry to hear the news. Big huge hugs to you all sweetheart.

Thinking of you all

So sorry, others have direct experience so can offer advice, however I will be thinking about you all. It's a good hospital the John Radcliffe.

The JR is my closest big hospital, and has treated members of my family. They do have some of the best doctors and specialists in the UK, but right now you must be feeling so scared, OP.

Good luck seems facile, but I hope you know it's meant with all the right intentions. Don't feel you have to keep coming back and updating if you don't feel like it - that's important. Take care of yourselves first. A very unmumsnetty hug to you all

So sorry, others have direct experience so can offer advice, however I will be thinking about you all. It's a good hospital the John Radcliffe.

So sorry to see your update OP. You and you boy will be in our thoughts. The JR has an excellent reputation. Lots of love to you all.