Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

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Was CLIC Sargent - all sorts of support for families dealing with cancer in children and young people.

I am so sorry that the news wasn’t better OP. As others have said, at least now he will be treated quickly, he will be in excellent hands . I know there are many other parents on this board who have been through this and who will support you.
I do feel angry on your behalf that it has taken SEVEN MONTHS to get an MRI.

Poor lad, terrible news and hard times ahead. But he will be treated in an excellent hospital by a fantastic team of experts. I really hope that one day this will just be a bump in the road for your family. All the best.

I am sorry to hear that your son has a tumour. But as he has a tumour I am very glad that it's been found so treatment can start. Well done for pushing the issue.

So sorry to hear this op. My thoughts are with you all x

I’m so very sorry, hopefully there will be plenty of options for you to make a decision from ❤️

So sorry to read the update. Wishing you all the best😓

I'm so very sorry to hear this OP thinking of you all x

I'm so sorry OP x

What a horrible shock for you all.

I'm wishing you all the strength you need to get through the treatments to make your son well again. x

I'm so sorry to see your update, OP.

I hope they're able to successfully treat him at JR.

I'm so sorry.

Hoping that it's not malignant and they can use all their skills to get stuck in about it snd get rid of it.

A massive well done on fighting for your wee boy, although you're facing worry and uncertainty, without you and your mum senses it would have been caught when much more damage would have been done.

Be proud of yourself, you are and will continue to be an amazing mum 💐💞

I'm so so sorry

So sorry

Oh god so sorry to hear this, sending love x

Oh op i can't imagine what you're all going through sending as much love as you need 💗

I am so sorry. My prayers are with you all.

What shit news. I am so sorry. Today and the next few days/ weeks/ months must feel unimaginable right now, but remember this…by pushing drs and advocating for your son, you could well have saved his life. He will now get the best possible care to sort this out. We are all rooting for him, and you.

Absolutely gutted for you @nearlymumof5, that is awful news. Hopefully, by your pushing for an earlier MRI, it has been caught early enough to facilitate a good outcome.

Mums really do know best when it comes to their children and you know that you have done the very best you could, by pushing for this. 💐

Sending so much love, strength and positivity x

Thinking of you OP. The JR has a wonderful reputation. One day at a time - this has been a big day, try to breathe and know that you are further forward and on the way to treatment.

Oh op, I'm so sorry to hear this!
I was really hoping it wouldn't be.
But he now has a diagnosis, so that means treatment can begin, and he can begin to feel better. You've done so well pushing to get him seen!
I'm thinking of you all!

Sorry to hear your awful news - I was in a very similar situation 7 years ago with my son who was 8 at the time.
My son is now 15 and doing well, has had a couple of operations and might need another but he’s otherwise ok. I just want to give you a positive story as I’m sure you will be in a very bad place at the moment.
The Brain Tumour Charity have lots of helpful resources and once you feel able it’s worth a look. You can also phone and speak to them and they can offer practical support as well

I’m so so sorry to hear your news @nearlymumof5 . Sending you unMumsnetty hugs and best wishes for his treatment.