Called back to consultant after DS brain MRI

[nearlymumof5]

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

Really sorry to hear your update.

All good wishes to you all with the treatment and fingers crossed for a positive outcome.

I am so so sorry to hear this. I cannot imagine. Horrendous. Thinking of you! Xx

So sorry to see your update. Hoping for a great outcome for your boy. xx

so sorry to hear about the tumour but John Radcliffe is state of the art for medicine

❤️

Just reposting to make sure you see it, especially that it is thanks to you he has been seen.

Also to add I guess you have other children (from your username) if they are in school please let the school know for all your children as they can offer support. Sending you

You are a wonderful mammy to your little boy and I think you will be blown away at how strong he will be and it's his strength that's going to keep you and his daddy going and any other siblings he has.I am thinking of you all

I don't have any words that will do, but you're all in my thoughts xxx

The John Radcliffe is one of the best in the world for neurological issues. Sending lots of love to you x

I'm very sorry.
You don't have to be brave, or strong

You'll be able to stay by your son's bed, and they will look at you as a family. I second a suggestion made earlier about sleeping tablets - your GP is likely to suddenly be more supportive than they've ever been.

Take all help offered. We could not have copied without a village of support.

I used candy crush to distract me in the early days.

Please feel free to PM me.

@nearlymumof5 sending you love. The same thing happened with a young family member in 2020. If you need to chat feel free to message me x

I'm so very sorry to hear this but I am very glad he is now getting the care he needs.

I'm so very sorry to hear this but I am very glad he is now getting the care he needs.

I'm so sorry that it's bad news, and hope that the doctors (at last) are now on the case means there is hope for a good outcome. But you must be absolutely beside yourself. I wish you much strength and comfort to you, to get you through this. Come back and vent if you need to.

I'm so very sorry that you've had bad news. Sending lots of love and strength to you. xxx

So sorry to hear this. Love and strength to you all ❤️

I'm so sorry to read your update, sending you and your family good wishes and hope that your son can make a full recovery. I have a child the same age so can't imagine your worry right now, hopefully you can reach out for some professional support or to some of the other mumsnetters who have commented who have been in a similar position. I know it's of no help, but you're in my thoughts.

Im so sorry OP ❤️

Oh no. Sending love to you and your family

So sorry to read this, make sure you take care of yourself in all this. In the old adage, you need to put oxygen on yourself first to help the others.

I'm so sorry OP X

I am so sorry to hear this, It must be an awful shock for you. For what it is worth my daughter had a brain tumour on her brain stem and was operated on when she was 18 months old. Thankfully it turned out to be benign but would have killed her if it hadn’t been removed. 10 years before she had her op the surgeons wouldn’t have been able to operate.

My daughter is now 25 and living life as she should. the tumour has caused some physical issues but they are minor really. I suppose what I am saying is that surgery and treatment is improving all the time.

When my daughter was diagnosed one of the nurses told me to try and focus on the next step and not look too far ahead. I managed to do this and it helped me to cope with a very scary time. Keep posting if it helps.

So sorry nearlymum, I recognise that feeling numb, maybe because you already thought that's what it might be, and your DH is just at the start of his journey.
Top tips

• trustworthy UK websites are Macmillan, the brain tumour charity, children's Cancer and leukaemia group (cclg).

-paediatric brain tumours are very different from adult brain tumours and often have a much better outlook. Not all are Cancer. If the tumour is cancer, then they are the second most common Cancer in children, and doctors know how to treat them. -you will get loads of support - e.g young lives Vs Cancer (formerly Clic Sargent) will give you a social worker, advice and practical financial stuff. If the hospital is far away, they can arrange accommodation e.g. if you and your husband 'tag team' staying with your son. -the fact that they are planning to operate is hugely positive. -neurosurgery has come so far and success rates improved dramatically recently. Of my child's type of cancerous tumour, nearly all are completely successfully removed.

• the John Radcliffe has a great reputation with cancer mums and especially neuro.

Please PM me if I can help.

I am so sorry that this is the outcome. Thoughts are with you all 💕

So sorry to read the update. The JR is a fantastic hospital and you will be in great hands. Hugs