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Called back to consultant after DS brain MRI

990 replies

nearlymumof5 · 22/06/2022 18:08

hello, my DS aged 7 has been having nausea, sickness and headaches since November and through lots of pushing managed to get an MRI which was on Monday eve - we were told to expect results in 2 weeks. Today I received a phone call from the paediatric consultants secretary asking myself and hubby to go in tomorrow at noon. I’m terrified. Has anyone else got experience of this? What’s scared me most is that they have asked me to bring hubby. They have requested that we don’t bring DS. I don’t even know what I’m asking for on this thread, maybe someone that has been in a similar situation? Thanks x

OP posts:
Are your children’s vaccines up to date?
vivariumvivariumsvivaria · 23/06/2022 14:17

Practical things to ponder:

He is in a better position than he was last week - you can't treat what isn't diagnosed.

He's in good hands - they found it, they didn't hang about, a plan is coming, so his symptoms will start to improve and he'll feel better shortly.

He has access to the best of treatment, free, at the point of need.

If he has to go into hospital - get a couple of extra long chargers for all the gadgets. You both need a little bag with ear plugs, lip salve, some sort of shawl, cosy socks, a coffee cup to keep coffee hot in and a water bottle. Take a pillow or one of those bean bag head rest things.

It's worth speaking to your GP. You might need some support from them for yourself - you have to learn to cope with a whole bunch of hard and, you will, but something to help you sleep might be wise.

Well done, you saw it, you got him to where he needs to be. They'll take good care of him. We'll help you take good care of you.

LakieLady · 23/06/2022 14:17

So sorry to read this, @nearlymumof5 . I'm keeping everything crossed for your son, and sending positive thoughts your way.

Beaconoflight · 23/06/2022 14:18

I’m so sorry, my heart goes out to you and your son

GrimOutHere · 23/06/2022 14:20

So sorry you’ve had this news but the JR is one of the best hospitals to help your son.
Stay strong for him and look after yourselves meanwhile. Thinking of you and your family.

Dita73 · 23/06/2022 14:20

Thinking of you and your DS x

Ihatethenewlook · 23/06/2022 14:22

There’s some amazing treatment out there nowadays op. I hope you’re all ok x

Squiff70 · 23/06/2022 14:22

Very sorry to see your update! Wishing your son well with the right treatment, whatever that might be. He is in good hands now.

Amid · 23/06/2022 14:23

Thinking of your family OP, what a shock it must be for you all xx

LiesDoNotBecomeUs · 23/06/2022 14:24

He is in good hands and you were so right to push on this!
So sorry you are all having to go through this.
Flowers

SergeiL · 23/06/2022 14:25

I am so sorry to read this.

Inthesameboatatmo · 23/06/2022 14:25

I'm terribly sorry to read this update op. Flowers

OystercatchersPaddling · 23/06/2022 14:26

Thinking of you and your family OP, best wishes to your DS.

AnotherPoster · 23/06/2022 14:26

I'm sorry for today's news. Wishing you, your DH, your son and all your family the very best going forward. xx

Crazymumto1 · 23/06/2022 14:27

Praying for you and your son, you did the right thing pushing on and he can get the treatment he needs x

RogersOrganismicProcess · 23/06/2022 14:27

Sending you strength and keeping everything crossed for a full and swift recovery.

CatherineCawood · 23/06/2022 14:27

So sorry that it wasn't better news. Thinking of you, look after each other.

ipsofatto999 · 23/06/2022 14:27

You are an outstanding advocate for your son - well done. Really sorry to hear the news after today's consultation. My FIL was treated at John Radcliffe and had world-class treatment by world-renowned consultants so he'll have outstanding care there and be able to do the very best for him. I hope you and your DH are getting some support - it's a lot to deal with. Thinking of you and wishing you all the very best

JhsLs · 23/06/2022 14:27

So sorry to hear this news. Thank goodness they’ve found it and it sounds like they have a plan of action with his referral. Well done for being the best Mummy and Daddy to him and acting quickly.

Glitteratitar · 23/06/2022 14:27

I am so so sorry OP, my heart breaks for you. I hope you get more clarity soon and you’re all as ok as you can be xx

MissMarpleRocks · 23/06/2022 14:29

vivariumvivariumsvivaria · 23/06/2022 14:17

Practical things to ponder:

He is in a better position than he was last week - you can't treat what isn't diagnosed.

He's in good hands - they found it, they didn't hang about, a plan is coming, so his symptoms will start to improve and he'll feel better shortly.

He has access to the best of treatment, free, at the point of need.

If he has to go into hospital - get a couple of extra long chargers for all the gadgets. You both need a little bag with ear plugs, lip salve, some sort of shawl, cosy socks, a coffee cup to keep coffee hot in and a water bottle. Take a pillow or one of those bean bag head rest things.

It's worth speaking to your GP. You might need some support from them for yourself - you have to learn to cope with a whole bunch of hard and, you will, but something to help you sleep might be wise.

Well done, you saw it, you got him to where he needs to be. They'll take good care of him. We'll help you take good care of you.

This is good advice. When dd was in hospital I had a purse with change for vending machines, extra underwear & socks. Flip flops for the showers & a pack of wipes in case.

good luck & we are rooting for you all 💐

JhsLs · 23/06/2022 14:30

So sorry to hear this news. Thank goodness they’ve found it and it sounds like they have a plan of action with his referral. Well done for being the best Mummy and Daddy to him and acting quickly.

Chaoslatte · 23/06/2022 14:31

I am so sorry to hear your news OP. The JR is an excellent hospital and your DS will be in good hands. Thinking of you all Flowers

PortalooSunset · 23/06/2022 14:34

Sending love to you all. JR is a brilliant hospital, you're in safe hands 💐

SafferUpNorth · 23/06/2022 14:34

So very sorry to hear your news. He is in good hands now, thanks to you being vigilant and insistent. Good luck with the treatment that lies ahead - you've got this x

legaltigger · 23/06/2022 14:35

Sorry to hear that op. I hope you get some more answers soon x

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