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Original poster

Recurring limp and leg pain

160 replies

pumpkinspice1 · 20/10/2021 11:45

My toddler is 23 months old. In March he had irritable hip. He couldn't weight bare they did a hip X-ray said he was constipated. Took blood and said he had high inflammation and diagnosed irritable hip. Since then my toddler hasn't walked properly. He has a very noticeable weakness on his left side. His knee gives way daily. I took him back to the GP who referred us for physio back in may we still have no appointment for this. The past four weeks he has been waking up crying touching his leg saying ouch. The crying lasts between 1-3 hours until he eventually settles. Should I take him back to the GP or wait for the referral to physiotherapy? Confused

OP posts:
AnyFucker · 28/10/2021 22:23

Jesus Christ, this is bad. I don’t know what to say, I am sorry.

I work in this field and I would be taking you very seriously. That blood test would have been squeezed in. I don’t know what is wrong with these people.

Original poster
pumpkinspice1 · 28/10/2021 22:29

@tiredoftiers

I’ve just read your posts, and have nothing else to add except given the history you have posted I would be going to Birmingham.
Thank you xx
OP posts:
Hawkmoth · 28/10/2021 22:29

I would speak to a med neg solicitor.

Original poster
pumpkinspice1 · 28/10/2021 22:31

@InTropicalTrumpsLand

So sorry the situation still hasn't resolved, OP. I didn't want to be specific to not worry you without reason, but seeing as your mum gut is already telling you something is very wrong, would you please ask doctors directly about Ewing Sarcoma? It matches many of your DS's symptoms and might light a fire under the doctors' arses.

And I agree, I'd raise a merry hell with PALS.

When I mentioned things like cancers the doctors laughed at me and said if that was the case he would be seriously Ill doing nothing at all and sleeping all the time where as my son is struggling to sleep. I'm exhausted with it all I really am. I wish I could post the videos to show you my son. Show you how he looks, how pale he is the way he can't walk properly. The doctors have no time for us xx
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Original poster
pumpkinspice1 · 28/10/2021 22:32

[quote abbs1]@pumpkinspice1 I would say as Im sure others would agree it is an emergency and your gut is telling you the same thing. Your little boy cant tell you whats wrong but his behaviour is ringing alarm bells.
Ive seen a lot of other mums on here take their children in with health worries to a and e and theyve gotten to the bottom of it when multiple GPs and Drs in hospital have fobbed them off.
The negligence that Dr today had shown is crazy. I know the NHS say they are stretched and theres backlogs but your little boys case is urgent and cannot wait another month.
Please keep us posted on your visit to Birmingham hospital and I hope they take you seriously. If you have to ask to speak to management or senior paeds Dr etc. I'm so sorry your going through this. Xx[/quote]
I've sat and cried to the doctors they tell me
To wait for his referral. Kids get sick kids don't eat all the time kids don't sleep. I've heard it all. I feel like I'm in a room shouting and no one is listening! Honestly I can't stop crying. Thank you so much xx

OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:33

@miniwolf

This is so upsetting to read, I can't believe you've been refused help so many times!! How stressful and worrying for you. Really hope your son gets the medical care he needs op
Thank you xx
OP posts:
weresupermonsters · 28/10/2021 22:35

Oh god I'm so sorry!
Am I right in understanding you're currently going to a normal not children's hospital?
I like in Liverpool so automatically we go to alder hey and I am 99% certain you would not have been turned away with no tests there with all you're saying.
I'd take him to Birmingham. Put on your hard faced hat and REFUSE to leave without a blood test.
I am so so shocked with what's happened to you.
Big hugs for you and your little one x

Original poster
pumpkinspice1 · 28/10/2021 22:35

@Sagaris

That's terrible OP, no one knows your DC like you and from what you say there is definitely something wrong. I'd go to Birmingham tomorrow and take someone along for moral support too. Also, as others have said, register a complaint with PALS. Very sorry you are not being taken seriously, hopefully you will be listened to at Birmingham.
Me and my partner have both been and one of us always has to wait in the car. My sister even offered to take him for me as she was worried about him crying with his leg when she took him to the park. I know I really know something is wrong. I'm not a delusional parent I'm really not I can just see the changes. Photos and videos don't lie so why is no one flagging this up Sad xx
OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:35

@Suzi888

Rest & go tomorrow morning, go early if you can. Take someone pushy with you if possible, you have to insist.
At the moment they are only allowing one of us in. That's the problem. If they saw how concerned we as a family are they might take it more seriously xx
OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:37

@3luckystars

I would ring the gp in the morning again. I would tell them that your son has gotten worse and is disappearing in front of your eyes and you need support and help urgently.

I know you are exhausted but keep pushing. It is absolutely disgraceful that they are all ignoring you. I’m so sorry.
Why didn’t they just take a blood test?

The doctor said they were really busy and no one was available to take the blood. This wasn't in A&E either this was in a clinic ran by the hospital. Surely they could have fitted us in but he was adamant they couldn't. I will get to the bottom of this because I know somethings wrong xx
OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:38

@3luckystars

BRING SOMEONE ELSE WITH YOU.

Have a notebook and write down everything, everyone’s names and everything they say from now on.

My partner always comes with me but they refuse us both entry when we get to reception and say one parent per child Saddue to covid. I have everything written down videos photos dates everything. Thank you xxx
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Original poster
pumpkinspice1 · 28/10/2021 22:40

@AnyFucker

Jesus Christ, this is bad. I don’t know what to say, I am sorry.

I work in this field and I would be taking you very seriously. That blood test would have been squeezed in. I don’t know what is wrong with these people.

Are they really that busy they couldn't squeeze us in? He had the cream on ready to go and they still said no. What should my next steps be. Xx
OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:42

@Hawkmoth

I would speak to a med neg solicitor.
The thing is it could be absolutely nothing and il happily hold my hands up and say but with all of his symptoms a limp for 7 months and just the change in his appearance behaviour and eating habits I know this isn't all circumstantial. I just need the right doctor to look at the whole picture xx
OP posts:
Original poster
pumpkinspice1 · 28/10/2021 22:44

@weresupermonsters

Oh god I'm so sorry! Am I right in understanding you're currently going to a normal not children's hospital? I like in Liverpool so automatically we go to alder hey and I am 99% certain you would not have been turned away with no tests there with all you're saying. I'd take him to Birmingham. Put on your hard faced hat and REFUSE to leave without a blood test. I am so so shocked with what's happened to you. Big hugs for you and your little one x
The hospital we go to is the closest to us with a childrens department it's not actually a childrens hospital. I should have just taken him to Birmingham childrens hospital first. I wish I had taken him there now instead of wasting our time today xx
OP posts:
Didicat · 28/10/2021 23:05

No medical knowledge but really feel for you and mums intuition normally rings true.

The one parent a child can be broken, I was at A&E with my daughter and two children had both parents or guardians with them the entire time we were there.

Wishing you a understanding listening patient medical professional that takes you seriously tomorrow.

Have you tracked his weight loss in his red book? Can you print off pictures so you don’t have to waste time scrolling through your phone for photos. Write everything done you want them to know before you get there.

I had a friend with poorly toddler lost weight refusing to eat, listless, sleeping then not sleeping had tonsillitis on and off for 9 months, she needed a special antibiotic to shift it, but once it was cleared she bounced back amazingly. Most of the GPs she saw didn’t look in the toddlers mouth and just kept saying another virus…..

3luckystars · 28/10/2021 23:06

Go there tomorrow.

Original poster
pumpkinspice1 · 28/10/2021 23:12

@Didicat

No medical knowledge but really feel for you and mums intuition normally rings true.

The one parent a child can be broken, I was at A&E with my daughter and two children had both parents or guardians with them the entire time we were there.

Wishing you a understanding listening patient medical professional that takes you seriously tomorrow.

Have you tracked his weight loss in his red book? Can you print off pictures so you don’t have to waste time scrolling through your phone for photos. Write everything done you want them to know before you get there.

I had a friend with poorly toddler lost weight refusing to eat, listless, sleeping then not sleeping had tonsillitis on and off for 9 months, she needed a special antibiotic to shift it, but once it was cleared she bounced back amazingly. Most of the GPs she saw didn’t look in the toddlers mouth and just kept saying another virus…..

Since July he has gone from the 75th centile to just below the 50th so he isn't classed as underweight but he has lost weight. I had to purchase a urine test kit myself as no doctor had even thought about urine infections which come back negative for anything really. So it wouldn't surprise me if they had just missed a simple infection. Thank you xx
OP posts:
olderandwiserx · 29/10/2021 16:29

I hope you've been seen and taken seriously today x

Alfixn · 29/10/2021 16:33

Did you take him to Birmingham today OP? I'm not surprised you're worried with those symptoms. It's outrageous that you haven't been taken seriously.
Honestly animals have better medical care than this. Sad I really hope all turns out well and you get some answers soon.

beckypv · 30/10/2021 08:20

@pumpkinspice1 how did it go yesterday? Hope you have made some progress.

3luckystars · 30/10/2021 08:37

I have been thinking about him too. Hope he gets taken care of soon.

weresupermonsters · 30/10/2021 16:19

Hope everything is ok @pumpkinspice1 x x

WannabeGilmoreGirl · 30/10/2021 19:13

Hope you have managed to get someone to listen. Any luck at Birmingham?

Grrrpredictivetex · 31/10/2021 08:38

@pumpkinspice1 hope things are now sorted for you. So worrying when children are ill.

abbs1 · 31/10/2021 19:21

@pumpkinspice1 been thinking about you op and hoping you and your little one are ok xx