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What could be wrong with DD7?

142 replies

StickyShoess · 05/03/2019 14:29

DD1 is 7 and I’m really worried about her

She started losing weight around last summer, I thought she was just growing at first but she’s now lost so much she’s almost unrecognisable, lots of people have commented and asked what’s wrong with her
Her appetite has massively increased in that time and she now eats similar portion sizes to her Dad
Her hair has also been coming out a lot more when she washes or brushes it

I had her weighed at the doctors over a few months and she’s still actively losing weight so they’ve sent her for a blood test

After several failed attempts we finally found a lovely paediatric phlebotomist who got some blood out of her, her blood was very dark and thick and slow moving it took about 10 minutes of just sitting with it in her arm to fill 1 little bottle thing, it was so weird it was like treacle, I don’t know if that’s normal but I’ve never seen it before
Anyway that came back mostly normal except for slightly raised potassium levels, so they wanted to do another one, she had this yesterday and I’m still waiting for results

But in the mean time she’s now starting to look very pale and has got blisters? Cold sores? On her lip, she’s never had this before
I’ve also noticed things like hugs and tickles seem to hurt her now, but that’s possibly just because every single bone is sticking out now where she’s lost weight

She’s very emotional and is crying at the drop of a hat, if you ask what’s wrong she doesn’t seem to know
Her teachers have also raised concerns about her saying she’s not herself, seems quiet and tired and she’s been emotional in school, her teacher is worried about her

I just don’t know what to think, it’s been going on for so long because we were weighing her and waiting for blood tests and in the meantime she’s getting worse and worse

Has anyone any idea what it could be?
I’m so worried I just can’t stop thinking about her

OP posts:
Are your children’s vaccines up to date?
Firstbornunicorn · 06/03/2019 07:41

Good luck, OP! Crohn's was my first thought, but hopefully it's something simple and easy to treat in the end. I'm assuming it's not threadworms or something?

StickyShoess · 06/03/2019 08:01

Well I didn’t need to ring the doctor this morning for an appointment as I was woken up by a phone call from them, her bloods are back and the doctor wants to see her
This is not good is it Sad

OP posts:
kbPOW · 06/03/2019 08:04

Try not to assume the worst. It could be something that needs urgent attention but isn't life threatening. I'm so sorry it has been such a challenge to get appropriate medical attention for your DD. It's a truly horrible situation to be in and I hope today goes as well as it can x

DonPablo · 06/03/2019 08:07

Oh, well, it is worrying when they call you back, but at least there's something to be done now.

I hope it's nothing serious and your Dd gets better soon Flowers

DonPablo · 06/03/2019 08:08

I've reread my post. I hope it doesn't sound like 'oh well' I meant it more like 'oh. Well ...'

TrueFriendsStabYouInTheFront · 06/03/2019 08:25

Just coming on to say I have my fingers crossed for you and your DD. Praying it's something easily treatable Thanks xx

Larrythelamb84 · 06/03/2019 08:37

@StickyShoess my heart sank when I had this, I remember saying to them "only anaemia", as I was petrified it was something else. Please keep us updated as I really do think we're in similar positions and I'm hoping to finally get somewhere on Friday with the paediatrician. Big hugs x

GiveMeAllTheGin8 · 06/03/2019 09:55

Just read your thread op, I hope your little girl is okFlowers

Samind · 06/03/2019 09:57

Fingers crossed all is ok OP 💜

FoxSquadKitten · 06/03/2019 10:10

Good luck, OP, what a worry Thanks💐

Calledyoulastnightfromglasgow · 06/03/2019 10:14

Good luck OP and everything crossed

Patchworksack · 06/03/2019 10:15

Good luck OP. If they don't have answers for you today I'd insist they refer her urgently to a paediatrician, it sounds really worrying.

Larrythelamb84 · 06/03/2019 10:21

Just so you know you're not alone with this, here is my original thread

www.mumsnet.com/Talk/childrens_health/3255486-Suspected-Leukaemia

Please keep us updated x

StickyShoess · 06/03/2019 10:27

Just a really quick update - we’ve been sent to A&E and now we’re in HDU - the bloods revealed her kidneys aren’t functioning and a urine test shown +4 ketones in her urine

I will update when I can

Just wanted to say thankyou thankyou thankyou for making me ask for a urine dip or we possibly still wouldn’t have known

OP posts:
stayathomegardener · 06/03/2019 10:46
Thanks
DustyMaiden · 06/03/2019 10:49

Good luck

glitterbiscuits · 06/03/2019 10:49

Oh my! How stressful. Hopefully this will be the beginning of a health turnaround. ThanksThanks

Calledyoulastnightfromglasgow · 06/03/2019 10:50

Sending love and strength

AnyFucker · 06/03/2019 10:52

Gosh. Good luck Flowers

user1471546851 · 06/03/2019 11:04

Good luck Flowers

Bumblebeezy · 06/03/2019 11:08

What a dreadful worry. Very best of luck at the hospital x

frazzledmumoftwo · 06/03/2019 11:48

Good luck to you and DS at hospital. Thank goodness they are taking it seriously ....

moreursulathanariel · 06/03/2019 11:55

How worrying for you, sending lots of love xx

Larrythelamb84 · 06/03/2019 12:13

How worrying! Hope they get her sorted. Sending big hugs x

namechanger0110 · 06/03/2019 13:29

Oh what a worry @StickyShoess Sad

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