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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
QOD · 29/06/2016 07:53

I remember you both too Flowers Chocolate

So unfair 💙

nemno · 29/06/2016 15:18

I'm so sorry to read this. I have often thought of your lovely family and silently wished you all well. Best wishes now x

Lunar1 · 29/06/2016 15:37

So sorry you are going through this again. I remember your threads. FlowersFlowers

nothruroad · 29/06/2016 15:55

I am so sorry to hear this. I remember your threads so well. I was in utter awe at your strength. It's so unfair that you have to face this again. I wish you and your family all the very best.

ficbia · 29/06/2016 15:58

This reply has been deleted

Message withdrawn at poster's request.

Levantine · 29/06/2016 15:59

I'm so so sorry to hear this FlowersFlowers

HumphreyCobblers · 29/06/2016 15:59

I am so sorry that it has returned. I remember Joseph very well. This is so unfair.

TwentyTinyToes · 29/06/2016 16:01

I remember your little blue eyed boy. I'm so sorry you are facing this again. Flowers

ridiculouspirate · 29/06/2016 16:06

I remember your posts too.

Sorry to hear your news. SadFlowers

weebarra · 29/06/2016 16:12

I'm so sorry to hear your news. I was going through chemo at the same time as Joe three years ago.
Thinking of you and your family.

ScrambledSmegs · 29/06/2016 16:14

I'm so sorry to hear this, Trazzle. I remember Joseph very well. Sending you all lots of positivity and hopefulness.

Badders123 · 30/06/2016 16:53

So so sorry to hear this
Flowers

StealthPolarBear · 30/06/2016 17:55

T razzle when you get a chance to update we are all thinking about you. No pressure though as I be you're shattered

PausingFlatly · 30/06/2016 19:02

Thinking of you today.Thanks

daisydalrymple · 30/06/2016 20:09

Holding you and Joseph, and your dd and DH in my thoughts. Hoping the last few days have been kind and a step in the right direction to recovery again.

minmooch · 01/07/2016 06:55

Can't stop thinking about you Trazzle and your darling Joe. It's horrifying situation. As you know my boy never reached remission but hopes and dreams were shattered at every stage. What your boy is facing now is enormous. But he is lucky to have you as his mum, who will fight for him every step. I hope that he gets another chance to beat this. Our children never deserved this. Love, strength, understanding - I'm trying to send these through the computer to you xxx

Doyouthinktheysaurus · 01/07/2016 07:14

I remember Joseph and your story, I am so sorry you are having to face it again.

Life can be so unfairThanks

StealthPolarBear · 01/07/2016 08:56

X

SantasLittleMonkeyButler · 01/07/2016 09:04

Thinking of you, Joseph, DH & DD again today.

I hope the first round of treatment is going as smoothly as possible xxx

MercuryRising · 01/07/2016 11:06

Trazzle I remember you and Joseph from the flylady threads. I am so sorry you and your family are going through this again. Sending you love and strength.

Jemimapuddleduk · 01/07/2016 13:58

Thinking of Joseph and you all as you start chemo again. My heart go's out to you, it's so, so unfair.
My ds has just completed his 4 cycles of chemo for AML and I know how unimaginably hard it is for all the family to see your precious child to go through such discomfort. I can imagine it's even harder second time round and starting to believe the nightmare was over.
Sending lots of strength and understanding your way x

TwigletsForTea · 01/07/2016 16:23

Thinking of you, Trazzle.

PurpleAlerts · 01/07/2016 16:45

So sad you are going through this again.
Thinking of you.

needanewjob · 01/07/2016 19:58

Oh minmooch I'm so sorry. I lost my daughter last year. It's so so hard to say goodbye.

StealthPolarBear · 01/07/2016 22:22

Thinking about you and your ds as well jemima. I hope the treatment was effective.