Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

See all MNHQ comments on this thread

Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
CiderwithBuda · 28/06/2016 06:36

I remember you and Joseph too. I am so sorry to read this. Wishing you well and especially Joseph as you face this. It seems so unfair. Flowers

Seawig · 28/06/2016 07:29

I remember the threads well and your gorgeous boy is the same age as my blonde haired blue eyed son too.

So sorry you have to face this all over again and praying it is as easy as possible to get through the chemo and that it works brilliantly for Joseph.

TheGhostOfBarryFairbrother · 28/06/2016 08:05

I remember you, what difficult news Flowers

There's a charity called Post Pals that might be able to bring him some smiles? www.postpals.co.uk/

passportmess · 28/06/2016 08:09

Thinking of you all today.Flowers

BarmySmarmy · 28/06/2016 08:26

It is huge Trazzletoes, a huge, huge thing for you all to face. I am so sorry.

Good luck with the start of treatment, and all love and strength to you.

I remember Joseph and your threads very well. I wasn't a regular on them because at the time I could only be on MN sporadically and didn't want to be a hit and run poster. But I followed what happened from original diagnosis onwards.

Praying for another successful treatment.

JennyOnAPlate · 28/06/2016 08:30

I remember you and Joseph too trazzle. I'm so sorry you're having to face this again Flowers

notapizzaeater · 28/06/2016 08:30

I remember you too, sorry you are having to go through this again

IrenetheQuaint · 28/06/2016 08:33

Oh hell, I'm so sorry. I remember your threads - you sounded like such a lovely family and I was so relieved when Joseph got the all-clear. You have a younger DD as well, is that right? Thinking of you all.

Borogoves · 28/06/2016 08:35

I remember you and your beautiful boy. So sorry to hear that you are facing this again. Will keep you and your family in my thoughts.

Powergower · 28/06/2016 08:43

Oh no. I remember your last thread well. Know that like last time you are not alone. Sending you all my love and prayers trazzle.

TwigletsForTea · 28/06/2016 10:30

I'm so very sorry, dear Trazzles. I remember Joseph and you so well. Thinking of you and your lovely family. Flowers

SnowInLove · 28/06/2016 11:49

Another who remembers Joseph and followed his previous threads.

Very sorry to hear your latest news, my heart goes out to you all. Wishing you all strength for the coming months, particularly Joseph xx

MyNightWithMaud · 28/06/2016 11:53

I remember you, too. I'm so sorry to hear this. You and Joseph will be in my thoughts.

superking · 28/06/2016 12:00

Really saddened to read this, I remember your previous threads well although I was more of a lurker then. Wishing you love and strength.

Mummylin · 28/06/2016 12:27

Sorry to read this, I remember you. Good luck to your ds with all his treatment, may it be a great success. So unfair to have to deal with this again

StealthPolarBear · 28/06/2016 16:04

How was the first round of treatment?

miwelaisjacydo · 28/06/2016 18:40

Am so sorry to have read this. Sending hugs xxx

Lavri · 28/06/2016 18:48

I am so very sorry Trazzle, I often think of Joseph. My DS finished treatment for high risk neuroblastoma last year and am terrified of relapse. I can only imagine how you are feeling, thinking of you and wishing you strength, x

bumbleymummy · 28/06/2016 18:52

So sorry to hear this :( Thanks

TwigletsForTea · 28/06/2016 21:35

Have been thinking of Joseph and you all day, Trazzletoes. Sending love to you all.

LatinForTelly · 28/06/2016 23:37

I remember you and Joseph, Trazzle. I'm so very sorry you've got to deal with this. Thinking of you, and sending love, and keeping everything crossed.

JinkxMonsoon · 28/06/2016 23:45

I remember you so well and am so desperately sorry Flowers

APlaceOnTheCouch · 28/06/2016 23:52

I remember your threads about Joseph. I am so so sorry to read that you are all going through this again. It's so unfair.
Sending you all lots of love, strength and hope. Flowers

puddingisgood · 29/06/2016 07:36

Came on to say the exact thing that APlaceOnTheCouch just said. I was fairly new to MN last time Joseph was ill, and I remember your threads well. Flowers

BehindLockNumberNine · 29/06/2016 07:45

Oh Trazzle, I remember your thread and oddly enough you and Joseph popped into my head a month or so ago.
I have not been on MN much in recent years.

I am so so sorry you are facing this again. Sending love and hugs and Flowers