Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

[Trazzletoes]

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

Trazzle, I think I've mentioned before I have a Joe and I find myself thinking of your Joseph every times I say his name.
Love and strength to you from me to you all, today and every day

Carrying you and your family with me xx

Eek. It's such an aggressive name for a cancer.

But hey. Every day counts. I've got cancer. Gosh. That's the first time I've said that on here.

Live each moment.

Sending hugs.

I'm so so sorry to hear this. I remember your threads well. In fact I've often wondered how Joseph was getting on.

I do remember you had a miracle before when a relapse spontaneously unrelapsed or something?

Will keep everything crossed he can do it again.

jemima sorry you are going through this too. It sucks xxx

min I think of you and your family so very often. This is so unfair.

Joseph has made it through chemo 1a (he has 1 cheeky extra day in a week's time). He's reasonably well with it so far and they're hoping he will stay like that as this chemo isn't very aggressive. It seems illogical to me to try and clear a horribly aggressive disease with a not aggressive regimen but there you go. It's as much about quality of life as anything else now.

His consultant had to warn me the drugs could affect his fertility. He's required to say that, but we both know he doesn't expect Joseph to live long enough to have children (plus his treatment before completely mashed all hope of parenthood anyway).

He has an awful lot of disease in his bone marrow which affects the production of blood cells so he's likely to need a blood transfusion next week. He's already had a couple of platelet transfusions. If you give blood - thank you so much. The chemo isn't likely to affect his cell counts too much so this is entirely caused by the cancer and it is so hard to believe when he seems so normal. I hope to God this treatment works, and fast. Thank you for all your support xxx

Did Joseph have a miracle before? That seems pretty doubtful now and even a couple of weeks ago it depended who you asked.

I always believed in the spontaneous unrelapse because his Consultant did. He checked the scans recently and still couldn't find any other explanation. But his theory that Joseph developed antibodies to the neuroblastoma clearly wasn't right. Basically all the other Doctors thought he must never have relapsed in the first place and it was an error which showed up on a couple of scans. We will never know but it seems kind of irrelevant now.

I clearly remember you and Joseph
Sending much love and strength

I'm so sorry to hear this. It's so unfair after all he has been through

Please know that lots of Mners will be sending your best wishes and kind thoughts or will be praying for you .

Remember to call on your RL support team too - everyone who knows you will want to help in any way they can

So they think those ' miracle' scans were faulty? Trazzle I'm so sorry this is so unfair

Just sending love and best wishes for you and your son

Thinking of you. I hope your son responds well to his treatment

Hi Trazzles, so terribly sorry to hear this news. Have been wondering how Jo has been getting on. What an awful blow for you all and so terribly unfair. Wishing you strength and sending prayers across the Channel to Joseph, you and your family and everyone else on this thread affected by cancer. (SC from Fledglings thread)

Oh Trazzles I'm so sorry (it's pushme from the fledglings thread. I've been wondering how he is too and been pleased to see no update. I'm thinking about you all

Still thinking about you all x

Still thinking of you all trazzles and keeping you close in my thoughts x

Another Fledgling here, so sorry to hear this news. Keeping everything crossed for you and will be encouraging people I know to give blood.

trazzles thanks for finding time to update us, so many of us are rooting for Joseph and all of you. I can still him see so clearly from memory of the lovely pics you posted through his initial journey / battle through all this. His story is one that has really resonated and had a big impact.

With much hope, strength and best wishes to you all.

I'm so, so sorry, Tazzle, I remember your posts and your bravery and love for Joseph shone through in every word.
I can't imagine how you feel, life is so bloody unfair at times. Much love xx

I followed your thread before and am so sorry to hear your news.

I hope the treatment isn't too awful.

I remember. I'm so very sorry. Sending strength, hope & love to all the Trazzle family x

Thinking of you xx

I remember Joseph's story. So sorry you're having to go through this all again

Thinking of you and your family, Trazzle.

Still thinking about you all getting through the days

Trazzle, I remember you and your little Joseph. So sorry this has come back. Sending you all the hugs and strength in the world