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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
HemiDemiSemiquaver · 23/08/2017 21:06

I'm so sorry that you're having a particular horrible day today. It is such a devastating loss. You must miss him so much.

EvianBaby · 29/08/2017 22:53

I am so so sorry. I'll always remember Joseph and think of him often. Take care.

Trazzletoes · 30/08/2017 13:36

Thanks all of you, it has been some comfort to read your lovely messages.

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Trazzletoes · 30/08/2017 13:36

It's his birthday next week and

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FreckledLeopard · 30/08/2017 13:43

I am so, so sorry to read this. I've often thought about your lovely son, on and off, over the last few years. There are no adequate words - it's just horrendous. Sending love and thinking of you xx

FleaRiddenScruffBag · 30/08/2017 15:40

Oh Trazzles - what terrible, sad news. I am sending you so much love and courage for next week xx

ineedwine99 · 30/08/2017 15:47

Only just seen this thread. Trazzletoes i am so so so sorry to read the latest updates. I can't imagine what you all must be going through and i hope so much you have RL support. Thinking of you at this tough time and you family

2017SoFarSoGood · 30/08/2017 16:25

Thinking of you Trazzletoes and sending you hugs and 💐

TracyBeakerSoYeah · 30/08/2017 16:34

Oh Trazzles I'm so sorry. I only just found out. All I can say is take it minute by minute, hour by hour on Joseph's birthday xxx

strongasmeringue · 17/09/2017 18:24

I'm so sorry to read the news. I was only thinking of Joseph a few days ago but didn't get chance to look for how he was doing. Now I see the news. So so sad.

MN have lost so many children. I remember them all and think of them and I'm sorry if that makes me an idiot.

RIP Joseph Flowers.

burntoutmum · 18/09/2017 18:18

RIP beautiful boy x

ChestyNut · 18/09/2017 18:54

Trazzles am thinking of you all Flowers

RIP lovely Joseph Star

Witchend · 18/09/2017 20:13

(((hugs))) xx

bobkate · 18/09/2017 20:41

Oh my goodness me Sad Trazzles I am so, so sorry to read this. Lovely blue eyed Joe. Totally lost for words but you and your family have been in my thoughts often over the years and I am so sad for you. Sending extra splodges of love over through your phone to you all xxx

SugarMiceInTheRain · 18/09/2017 20:44

Sending you so much love Trazzle. You and your family will be in my thoughts xx

yawning801 · 18/09/2017 20:44

RIP little lad.

QOD · 18/09/2017 21:31

🕯
Can't believe I missed the updates 🙁
Love to the Trazzles x

shuttheblinds · 18/09/2017 21:48

Trazzles I am so sorry to read the devastating news about your beautiful Joseph. Sending so much love to you and your family xx

TeaMakesItAllPossible · 18/09/2017 22:51

Trazzles. I'm so very sorry to hear about the lovely, inspiring, blue-eyed Joseph. Utterly heartbreaking.

The way you wrote about Joesph; his treatment; your feelings continues to affect me four years on. My BF's daughter is starting her third course of chemo for another aggressive childhood cancer. And I have often thought of you both whilst playing a gentle game in a hospital bed; just sitting by my pal in the dark with a drink or making a brew in the ward kitchen.

I'm lost for words so will send love and light to all your family

HeyRoly · 26/09/2017 16:08

I'm so sorry to hear of your loss Trazzle. I'd followed Joseph's story for such a long time and thought of you often. Only just heard the news when I saw the Woolly Hugs thread. So very sorry Flowers

KinkyDoritowithsparkleson · 27/09/2017 21:38

Trazzle there are no words. Thinking of you.

Almostfifty · 01/10/2017 12:30

I've just seen the Woolly Hugs thread. I had no idea you were going through any of this Trazzles, I'm so, so sorry to hear about your lovely boy.

YouInTheMoonlight · 01/10/2017 13:19

I'm so sorry

Trazzletoes · 04/10/2017 21:03

Thanks lovelies. It’s nice to know he’s in so many of your hearts.

OP posts:
daisydalrymple · 04/10/2017 22:06

Oh my goodness trazzles I am so sorry to read Joseph passed away. I hadn't seen the thread for so long, I was just thinking of you all today. Thinking of your blue eyed boy with my candle lit tonight. Much love to you, mr trazzletoes and dd x