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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
TaggieRR · 07/07/2017 23:02

Thinking of you all Flowers

Golondrina · 10/07/2017 11:53

I never posted on your threads before, although I did follow them. I never knew what to say, but was always moved by how you spoke about your lovely little boy.
So so sorry to hear your latest news and have been thinking about you a lot.
xx

paddlenorapaddle · 11/07/2017 08:15

Sending strength and love to you and you beautiful boy hope he had a good weekend

BarnsligRav · 11/07/2017 08:17

Thinking of you all Trazzle

BastardGoDarkly · 11/07/2017 08:25

Trazzle there's no words > for you and your boy.

coffeeteacocoa · 11/07/2017 09:09

Cancer is a totral and utter fucking bitch of a disease. I'm so sorry and I wish you strength and love.

Thurlow · 11/07/2017 18:51

Oh Trazzles. I'm so sorry to hear this. Much love to all of your family xx

BonApp · 12/07/2017 13:19

@trazzletoes still thinking of you all, I hope there are some light and happy moments during the sadness and hard times.

Goingtobeawesome · 12/07/2017 13:23

I've not posted much but ever since the first time I came across J's story I've thought about him. Along with other mumsnet children that have made their mark, and I'm so very sorry to hear this latest news.

Take care.

Would it be appropriate to send something for him? My six year old loved comics and I'd like to send some if you'd like.

Tilapia · 12/07/2017 13:29

Thinking of you and Joseph Sad

Jetcatisback · 12/07/2017 13:37

Ive followed your story from the beginning Trazzles, I'm so very sorry Flowers

UsedToBeAPaxmanFan · 12/07/2017 13:40

Thinking of you and your family xxxx

Ihopeyouhadthetimeofyourlife · 12/07/2017 13:52

Thinking about you Trazzles (pushme)

NorksAreMessy · 12/07/2017 21:38

:(

BuffyFairy · 12/07/2017 23:48

Love and (((hugs))).

PeachPearPotato · 12/07/2017 23:50

I'm so, so sorry Flowers

Lukeandlorelai4Ever · 13/07/2017 00:09
Flowers
Halfling · 13/07/2017 00:28

You and your lovely Joseph are in my thoughts and prayers xxx

VinIsGroot · 13/07/2017 01:18

Hows Joe doing Trazzles? Shit update from a mummy with such strength and a Joe with amazing bravery!
Please keep us updated ...I'm AB+ so give lots of blood as I can fit many !!!!

Ragusa · 13/07/2017 22:35

I remember your little blue-eyed Joseph, and have followed your story from the start. Have thought of you often over the last few years and am thinking of you still.

TheFirstMrsDV · 15/07/2017 11:48

I am very sad to tell you all that beautiful, brave, funny and adored Joseph passed away earlier this week.

I am posting this devastating update with our Trazzle's permission.

I am sure you will appreciate why she feels unable to post right now.

StealthPolarBear · 15/07/2017 11:50

Love to all the trazzles xx

OvariesForgotHerPassword · 15/07/2017 11:52

Sending so much love Trazzles Flowers

TractorTedTed · 15/07/2017 11:52

On no
Life is so so unfair.

So terribly sorry Trazzles

TanteRose · 15/07/2017 11:53

Oh that's so sad Sad
He was so brave and Trazzletoes fought for him so long xxxx