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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
VintagePerfumista · 06/06/2017 10:29

Namechanged since Joseph's original thread but thinking of you all Flowers

ALemonyPea · 06/06/2017 10:34

Oh Trazzles, such sad news. Thinking of you all 💐

RainbowInACloud · 06/06/2017 17:05

Trazzles, there are no words for something so unfair. Sorry doesn't cover it but I wish you courage, strength and hope. Will be thinking of you and your darling boy

TheVeryThing · 07/06/2017 16:46

I'm so very sorry to read your recent update.
Glad Joseph had a good weekend, and hope he continues to be comfortable. Flowers

Rowgtfc72 · 07/06/2017 20:27

So sorry to hear your news Trazzles. Have followed your posts from the beginning. Thinking of you and your blue eyed Joseph and family Flowers

Want2bSupermum · 08/06/2017 00:19

Great news that he had a good weekend. Sending more positive thoughts, vibes and prayers. Hoping he is able to enjoy his time at school with his friends. Must be very hard taking him in.

yikesanotherbooboo · 08/06/2017 07:40

Trazzles I am sending all positivity that I can across the internet... what a burden you have to carry around your heart...

beautifulgirls · 08/06/2017 14:31

Glad his weekend was better. Thinking of you all and sending you positive thoughts to find your way through a very difficult time as peacefully as possible.

SarahJinx · 09/06/2017 00:00

Hi Trazzles, devastated to read your update. Beautiful Joe, your angel x

Wh0Kn0wsWhereTheTimeGoes · 09/06/2017 11:44

I'm so sorry to hear the latest news, I hope he remains comfortable. He is one of the reasons I give blood. Flowers

upto11 · 14/06/2017 21:41

I was so, so sorry to read your update Trazzles. Am thinking of you, Joe and your family very much and holding you in my heart

BonApp · 19/06/2017 21:31

Oh no Trazzles. I've followed since your first thread on Joe. I'm so so sorry to see this last news. How you begin to even cope I've no idea. Best wishes to your lovely little boy, and to you all......

Mycutiemarkisrubbish · 20/06/2017 17:00

I'm so sorry, Trazzles. With much, much love to you and your family xx

BonApp · 23/06/2017 16:09

I keep thinking about your blue eyed boy. I remember you talking about how he used to hold your face and tell you he loves you. It really stuck with me.

I'm hope your love for each other is helping you all through this.

familyiswhatmatters · 26/06/2017 11:14

How is Joseph doing ???

Doyouthinktheysaurus · 26/06/2017 11:45

I am so sorry to hear your news. I'll be keeping you and your family in my thoughtsThanks

Backingvocals · 26/06/2017 21:17

I thought of you and Joseph today. I know I'm just an internet random but I just wanted to say that you are both in my thoughts often. Love and strength to you and your beautiful boy.

AvonCallingBarksdale · 27/06/2017 14:30

I'm hardly on MN these days - I remember your original thread. Neuroblastoma is an absolutely horrific disease. I am so sorry you and your family are going through this. Will be thinking of you Flowers

GoldenMalicious · 27/06/2017 19:31

Thinking of you and sending much love to you and your family Flowers

mortificado · 27/06/2017 19:35

So sorry about Joseph.
Your all in my thoughts Flowers

kohl · 28/06/2017 10:32

Am often thinking of Joseph and you.X

Purpletears · 01/07/2017 00:14

Just sending all love to you and your beautiful boy.

nether · 01/07/2017 00:52

Still living in your phone, and wishing you every strength and positive thing you need

Queenofthedrivensnow · 01/07/2017 09:07

Yep remember you too. So so sorry. We have a child in dd1 year who has experienced The same disease they run a charity called hugs from Henry now for families affected by it. Look them up if you arnt aware of them xx

SlightlyJaded · 07/07/2017 22:51

Been thinking of Joseph this week, so just dropping by so let you know that there is another person wishing on the best days possible for you, Joseph and your family.

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