Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

[Trazzletoes]

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

I'm so very, very sorry to hear your news about your little blue-eyed Joseph, Trazzle. Sending you virtual hugs and handholds at this desperately sad time for you and your family.

I'm so sorry to hear this terrible news. I lurked on your threads and have a clear mental picture of your delightful wee boy. I'll be thinking of him, and you xx

I'm so sorry. Thinking of you.

I am so sorry Trazzles. Much love to you all

So sorry trazzles

and hugs to you all. Sometimes treatment does work, DS1 (26, so a lot older than Joseph, but still my baby) has finished chemotherapy and had a lump removed, all the results haven't come back yet but he's optimistic and it's catching!

I'm so sorry

I just stumbled across this thread.

I'm so sorry.

it's utterly, utterly shit

Yes it is. I'm so sorry.

Oh Trazzle,I'm so very very sorry. There are no words.

Oh God, I'm so sorry Trazzles, I have often thought of J in the last few years, and donate blood now, in part, because of him.
It's so unfair and so so shit. And I'll keep you all in thought and prayer. You are an incredible Mum, and he has always sounded so thoroughly lovely. I am so sorry.

I'm so so sorry Trazzles. my heart twisted for you when I saw your post in active convos. Your love for Joseph and his personality shone through in every post, i was always impressed how hard you worked to give him such a wonderful childhood whenever he was well enough. I really hope he is, and stays comfortable, throughout the next months. I will hold you all in my thoughts.
If there is anything we can do for Joseph, or you, or your family, please do say
Xxx

Sending you so much love and comfort xxx

My Goodness, what sad, upsetting news! I've followed you both from afar. All my love to you, your family and friends and your gorgeous son, Joseph. You're a ⭐️Xx

i remember. positive vibes to joseph, as well as all his family to get through this.

Oh Trazzles, I've been on your threads since the beginning (although name changed a few times along the way) & I'm devastated to hear your news. Your gorgeous baby boy - it's all so fucking unfair & cruel. There are no words, so just wishing you love & whatever peace you can find.

I'm so sorry.... Give those extra cuddles to your little boy.... May God be with you

Thanks for your lovely messages. He's had a good weekend which is wonderful. Back to school tomorrow but probably not for him - he's permanently exhausted.

Oh no :( hope he continues the good weekend into the week.
How is dd doing?

Trazzles, I am so so sorry to read this. I too followed your original thread and am gutted that it has come to this. Love and peace to you, Joseph and your family and I hope you are able to make the most of the coming weeks and months.

Glad he's had a good weekend. Hoping for more good days. Our thoughts are with you and your family.

Pleased Joseph had a good weekend and hope it continues

Thinking of you x