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Original poster

Joe vs. The Cancer

999 replies

TrazzleMISTLEtoes · 08/12/2012 23:26

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

OP posts:
NorksAreMessy · 23/01/2013 23:54

Night night trazzlesies hope you sleep well and peacefully

Three hips and a hooray for clever surgeons
Boo for nasty nurses
Shhhhhhhh for other patients on the ward

onedev · 23/01/2013 23:59

Poor little love but he is a star so well done Joe (& you!)

Cookingupastorm · 24/01/2013 00:03

What a brave lad and brave mum. Well done, one step at a time but we're with you all the way x

Praying4Beatrice · 24/01/2013 00:42

This reply has been deleted

Withdrawn at the user's request

BarmeeMarmee · 24/01/2013 07:50

So glad it's gone well if a little trickier than you'd hoped. Sending lots of love.

RatherBeOnThePiste · 24/01/2013 09:13

What a day indeed. Much love to you all Trazzle, hope you both got some rest last night X

tholeon · 24/01/2013 11:29

So glad he has come through ok, praying for more good results. Brave clever boy - and Mum. X

bobkate · 24/01/2013 19:50

Glad this next step is done, and that he's doing ok xx Thinking of you all x

barefootcook · 24/01/2013 21:26

Lovely to hear that the operation went so well. What a brave wee man. Hope the test results bring the more good news for the deserving Trazzles.

ToffeeWhirl · 24/01/2013 21:49

So relieved the op went well. I hope Joe's been comfortable today and continues to make great progress. Bright light burning here in Sussex for you all. Xx.

toomuch2young · 24/01/2013 22:04

Hope today's been quiet and comfortable and you get a good night sleep tonight.
Thinking of you guys xx

dikkertjedap · 25/01/2013 09:08

Hope Joe is recovering well from the operation and that the cannula and catheter are not bothering him too much.

Thinking of you,

x

thewhistler · 25/01/2013 11:44

Hope today goes well.

Trazzletoes · 25/01/2013 23:06

Sorry, reception on the ward is rubbish, but am finally back in my own bed!

Joe is doing really well, still sleeping off the various drugs he has had, but today has started sipping water. He is weeing well (tmi alert!) and passing less blood. The only slight concern is that his stomach contents haven't seemed to be returning to normal as quickly as most patients. This affects when he can start drinking properly and eating. He can't come home until everyone is certain his digestive system is operating normally.

They started to reduce the epidural this morning and, when I left, he was still coping with this alright although he didn't like to have his bed sheet over his scar. Quite odd as he hates being naked but hasn't worn clothes since weds morning!

He's a long way from his usual self but has cracked the odd smile today, told the nurses off for not letting him eat and has consented to kisses.

His scar is so neat - there will be no passing it off as a shark bite!

Hoping that the epidural will stop tomorrow and he can start to get back on his feet and hopefully that his stomach will start behaving itself and have the right stuff in.

I am so proud of the little dude. There is no way I would be handling this, this well.

Trazzletoes · 25/01/2013 23:07

Oh and they've taken one cannula out so he just has... The 2 sections of his Hickman line; one cannula; an epidural and his NG tube Grin

Trazzletoes · 25/01/2013 23:08

...and the catheter.

catkind · 25/01/2013 23:25

One more little voice wishing you and your amazing son well.

NorksAreMessy · 26/01/2013 09:13

Go! Go! Nudey Joe!

toomuch2young · 26/01/2013 11:11

Keeping going little dude!!
You must be so proud of him trazzle
Gingers crossed for settled tum today.

ShiftyFades · 26/01/2013 11:27

Grin Nudey Joe Grin
Sounds like its all heading in the right direction Grin

Splodge burning bright in Hampshire.

dikkertjedap · 26/01/2013 13:15

Gingers crossed that he can start eating and drinking soon.

What a brilliant boy he is! Smile

Hope he can get out of bed tomorrow (with or without clothes, who cares when you are his age). Grin

onedev · 26/01/2013 14:11

Well done Joe.

Trazzletoes · 26/01/2013 14:46

I've just come in to take over from DH.

The epidural is out, his catheter has also just been taken out as his kidney function seems fine.

He can drink on demand but no food yet as they are still getting green gunk out of his stomach Sad. He's sat on my knee for a little bit and was uncomfy but not screaming in pain. That is going to be the most uncomfortable position for him so the Nurse is happy with his progress so far.

Just the green gunk we need to get rid of now!

dikkertjedap · 26/01/2013 15:22

Sounds he is making really good progress. I hope his stomach sorts itself out soon as well.

Hope the pain goes away soon and/or plenty of access to pain relief.

Is he already interested again in doing things/watching TV etc.?

Lots of good wishes!!!!!!!!!!!!!!!!!!

Trazzletoes · 26/01/2013 15:42

He is just on paracetamol for pain relief. He isn't in agony as he screams like a banshee when you take a plaster off.

The tv has been on most of the time he has been awake and he is able to concentrate on it. He isn't really up to playing but that's partly because its uncomfortable for him to sit up.