Joe vs. The Cancer

[TrazzleMISTLEtoes]

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

Thinking of you and Joe today and gingers VERY firmly crossed

Thinking of you all today

Rooting for you all here xxx

Thinking of you lots today. Xx

Thinking and praying for you all today Trazzle, along with some firmly crossed gingers...

Thinking of you all today.

Hope everything goes as smoothly as possible.

x

Thinking of you all today. Gingers crossed and a big hug especially for you Trazzle

Out of theatre. No need for ICU. Doing well so far. Both kidneys still in place.

More later when I get a chance.

So pleased he is out of theatre.

I hope the ward turns out to be better than expected and you both manage to have a good rest.

Well done Joe, what a star!!!!

Go joe. Come on xxx

Ha, yes, I'm feeling a bit more at home here now. Still prefer our normal ward though. I popped down earlier for some food I had left there and I miss it.

Impressed with the stuffers who opened our box of tea bags here to help themselves rather than using the ward ones

Scuffers.

Great, look.after yourself.

Some people..

Great news! You must be exhausted though. What a day for you.

Am hoping the tea-bag thieves made a mistake and thought they were ward ones...

Fab news! So pleased sounds really positive.
Hope you both get a comfortable night x

How very dare they!

ooooo that all sounds really promising

Oh that sounds positive, squeezing that hand of yours tightly

The surgery was a bit trickier than expected as the tumour had stuck well to his kidney and was wrapped round one of his veins, it was also stuck down in his pelvis so they haven't got 100% of it out, but they have enough. Now it's gone to be biopsied.

Joe is doing well - been sick a bit and bloody diarrhoea but that's totally normal. He's got an epidural and his biggest complaint is a sore willy from the catheter and having cannulas in his hands again.

Drs, anaesthetists and nurses = fantastic.

Poor boy, I totally commiserate with him, cannulas are so so uncomfortable.

I hope they can take it out asap, same for the catheter, does it need to stay in for long?

Hopefully he gets plenty of pain relief and hopefully, you both manage to get some sleep.

Good news that the surgery has gone well, hopefully the biopsy brings further good news about the nature of the cancer left. It must be such a relief to have this step out of the way. Team Trazzle is doing so well!

Because they've messed around with his kidneys they need to keep a close eye on his urine to make sure his kidneys are still working fine. No idea how long the catheter stays in :(

They are amazing, sounds like it was hard work. But Joe sounds very positive and its good to know he is aware enough already to be moaning about the canular and his willy.

How are you and DH?

Gosh, sounds like an operation and a half.

Poor old chap. Give him lots of love. And give yourself a nice gin...

Well done Joe and Trazzle . hope you both get some sleep tonight

Sounds like it went well. What a trooper Joe is.

Have everything crossed for good biopsy results and a good debrief, or whatever the medical term is for post-op discussions with parents/ patients.

Hope the cannula is out soon - that must not be nice. Poor lad.

Oh trazzle I am so glad the op is over. I'm sorry it was trickier than the expected but good they got most of the tumour out. So glad you are happy with all the medical support.

I hope you all have a peaceful night and get some rest. Xxxxxxx