Please hold my hand - cancer.

[Trazzletoes]

Currently in hospital since last night with DS who is 3. Scans show masses on his brain. Drs believe them to be tumours, likely to have come from his abdomen.

Waiting for more scans/tests etc. staff are being overly nice to us which is worrying me more (though they did refer us to social services last night as they thought DH or I had fractured DS' skull.

Feel incredibly sick. He is 3 years old. Please hold my hand.

I have only just read this thread. Another splodge of light here from Hampshire.

Thinking of you still, and sending lots of light.

Take care of yourselves - look after each other.

Xxx

I hope you have both had some sleep.

How is your son now? It must be hard to explain to him why he has to stay.

How many days chemo does he have until there is a little break?

I hope you both have a weekend as calm as possible.

x

sending a prayer for you and your lovely boy from south london Trazzle;
I'll keep a light going for you and your family everday xxx

Hey Trazzle, how is ds coping with his chemo? I did at his attempted self discharge. Hope you managed to get some more sleep.

Loving thewhistler's idea of a hospital advent calendar.

Lots of splodging for you xx

How well equipped is the ward for things like story books, easy puzzles, comics, fuzzy felt? MNers are great at care packages.

Right, do 80 days chemo is just the 1st step. There are 6 steps, totalling at least a year, probably more which we need to ALL succeed. It's a big ask.

One moe chemo sesh today, hopefully home tomorrow evening for a few days... Fingers crossed! We get free parking at hospital and the ward has lots of toys and books, thank you. We can also take DS' in from home. He's chipper this morning. I'm home with DD now til tomorrow (she's recovering from a cold) and she is brightening my day

Glad the treatment has started, Trazzle - lots of positivity for it all to work coming from the other side of the world for you too.

So does he have to have the 80 days chemo continuously, or are they broken into smaller blocks with breaks in between?

Plymouth shining for you here

Trazzle - a big sunny splodge from the north west of England for you and your beautiful family.

Another splodge of light here from Devon. Thinking of you all xxx

You will need a world map Trazzle Special thoughts and prayers for you, DS, DH and DD from me in Cambodia. ((hugs))

Hope the chemo goes well and he does get a break at home. If they haven't given you one already can I recommend using an antiseptic mouthwash with him? We used corsodyl although I know some prefer gentler ones. It helps prevent ulcers and oral thrush. The team can tell you if the chemo he is on is likely to cause them or not, DD's did, but as hers was leukaemia only some of the agents will be the same. Sending hugs, and best wishes.

Keeping fingers crossed that all goes well today and he can come home soon. xxx

Trazzle

Lots of love and prayers every day

Thumbwitch 80 days breaks down in to 8 x 10 day cycles. Each 10 day cycle consists of 2 or 3 days chemo and then 7 or 8 days ideally at home, but as treatment goes on, we are likely to spend more time in hospital betweentimes as he picks up more infections etc.

Thanks Trazzle - hope I'm not being too invasive by asking.

I'm glad he'll get the time at home - and I'm sure you'll have lots of people telling you this anyway, but he's likely to get progressively tireder after each treatment cycle as well as more prone to infections. It's a tough regime!

Will be with you every step of the way though, in spirit. xx

So sorry your family is facing this trazzle. Holding you all in my thoughts.

holding your hand through this x

Farlo thanks - they did mention mouthwash. I'll try and remember to ask them what they recommend. Anxious that he will swallow it though. Can't imagine that that would do him any good.

You should get it on prescription. trazzle
You can use special mouth sponges to help him with his mouth care. So don't fret about him swallowing :)
It's very strong at first but you get used to it.
They now do an alcohol free version as well.
X

I'm so sorry you are going through this. How can we bear the unbearable? Thinking of you all lots. Another splodge and many prayers from south east London.

New candle burning tonight:

www.gratefulness.org/candles/candles

With thoughts and prayers. x

Yes, the wee pink sponges on a stick are the business if you're worried about swallowing as MrsDeVere says. The hospital can give you a supply and you can ask your health visitor to keep you topped up at home if you prefer with disposable items like that and syringes for medicines too, which can make it easier. ((hugs))

Thinking of you and your family with a splodge of light from somerset.