Please hold my hand - cancer.

[Trazzletoes]

Currently in hospital since last night with DS who is 3. Scans show masses on his brain. Drs believe them to be tumours, likely to have come from his abdomen.

Waiting for more scans/tests etc. staff are being overly nice to us which is worrying me more (though they did refer us to social services last night as they thought DH or I had fractured DS' skull.

Feel incredibly sick. He is 3 years old. Please hold my hand.

[MrsY]

Thinking of you trazzle. One day at a time is the only way to do it. x

JustSpidero, can you add another light on your map - I'm Maidstone. Candle is lit, as always, and I am thinking of LittleTrazzle and all who need light and love.

[sweetiepie1979]

Hi from Northern Ireland ill light a candle for you all today. I'm thinking of you. Your a wonderful strong mother.

[JustSpidero]

Hi Trazzles - sorry the news wasn't better but your talk about Jean Claude Van Damme made me wonder what the opposite would be - the Napoleon Dynamite of cancer cells perhaps?!

Hope your little man is more settled with tube tomorrow and chemo goes well. Glad the flu jab info was useful.

barefoot - map is here and here for all the Mumnetters routing for LittleTrazzle and family.

If anyone who hasn't done so already wants to mention where they are I will update the map Thursday eve/Friday morning.

[barefootcook]

Hi there

What is the map and can anyone join? Trazzle, you try and get some sleep but if anyone has a minute to explain in the next day or two I'd love to know. I hope you both get some rest tonight and you have a better day tomorrow.

[Trazzletoes]

Yes to radiotherapy provided everything works til then. Extra cancer is a bit meh. Apparently, what's important is not how far the cancer has spread but whether his cancer responds to treatment.

He could be 95% cancer but still have a better chance than someone with 5 very resistant cells IYSWIM. Am hoping his cancer is a total pansy and not like, say, jean Claude van damme...

[Thumbwitch]

Sorry to hear about the extra cancer cells they've found and hope that the chemo does for them as well. Will he be having radiotherapy on any areas, do you know?

Sounds like you're really going through the mill just now but hopefully things will settle down a bit and the NG tube should help with keeping weight on him and getting the foul medicines down at least.

[onedev]

Hope you all have a restful nights sleep.

[Trazzletoes]

Buffy sorry to hear about DD. Please give her big sloppy kisses from me and DD. Hope she's feeling better soon and you don't catch it.

[Trazzletoes]

Thank you, Rowan.

New thread here

Thanks for the info re: flu jabs. I'm calling the GP tomorrow - we're already on it. DD has to have a chickenpox jab too. Poor lamb.

DS did NOT appreciate having a plastic tube stuck up his nose. Lucky me, he decided that Mummy was the person to accompany him for the procedure. I don't think me holding his hand and sobbing my eyes out did too much for him. Perhaps he'll pick Daddy next time.

Still, they've left the feeding for tonight to let him settle a bit as he keeps trying to pull it out, but will start tomorrow.

Chemo has started ok, I think.

The Drs found cancer cells in his bone marrow and also in his arm and leg bones. Nothing unexpected. Must remember to ask whether this means he's going to have weak bones afterwards.

He's had a horrific tummy this afternoon. Very much hoping that it is a reaction to the antibiotics rather than anything more sinister, but good God I hope this doesn't happen every 10 days. Poor lamb was getting very distressed by the sheer volume of mess everywhere.

Anyway, must dash as am off to bed. Sleep well. Thanks for the support xxx see you on the new thread!

[123caughtaflea]

No deep darkness in the night,
Can overcome the light,
If but a single candle flame
Is burning, burning bright.

Love to you and yours TT.

www.gratefulness.org/candles (group = TT) xx

[BuffyFairy]

Hi, hope the tube fitting goes well and takes away some of the stress once ds gets used to it.

Glad that you and dd are better.... And that you have a washing machine again

Will check back in later, still thinking if you all of course. Sorry I've been quiet these past couple of days - poorly dd

[JustSpidero]

Glad to see things are on a slightly more even keel for the time being at least.

I saw a leaflet at work this morning and thought of you - I'm sure someone will have mentioned it already, but have you and your DH and other close family members that are helping you out regularly at the moment looked into getting the flu jab? It is recommended for those who have a family member with a weakened immune system, and the current vaccine formulation has changed since last year to combat some new/different strains, so even if you had it when pregnant with your DD last year it would be worth looking into getting it done again.

Hope all goes well with the NG tube. I'm at work Mon-Thurs but will aim to update the map for you at the end of the week .

[ChippingInLovesAutumn]

Poor teddy, the things they endure for the greater good! Hopefully it will go just as well on DS!

I'll be thinking of him (& you!) this afternoon x

It's hard to know when you are being helpful and when you are teaching your granny to suck eggs! LOL but sometimes long term, frequent users, don't know about some of the 'fun' things (ie colours!) and many who should be able to can't (or wont) do links!

Right - not many posts 'left' on this thread now, so I wont post anymore until you have set up the new thread.

Lots of love & strength
x

[RowanMumsnet]

Hello

As Chipping says, it would be best to start a new one and link to it from here; long threads can cause loading problems for lots of users.

Very best wishes Trazzletoes to you, your DS and the whole Trazzle family - we're thinking about you here at MNHQ.

[thewhistler]

Trazzle,

Thinking of you and him especially as the tube goes in.

Lovely news about dd, and hope DH gets some rest. As well as you.

[Trazzletoes]

Thanks chipping. I'm home tonight and will sort out a new thread and link then.

Thanks for the info, I am on here reasonably often, but haven't been around for too long so am not really known IYSWIM. I'm a big fan of the highlighty bits . I'm nervous about them getting the ng tube in, but he's had a demo on a teddy bear and that went really well so fingers crossed.

[ChippingInLovesAutumn]

Trazzle - it's much better to start a new thread and link it to this (if you can't, one of us can do the link for you). If the threads get too big they are very difficult for phone users apparently. If YOU start the new thread it will be best though as then your posts will then be highlighted (did you know that you can highlight your own posts and the OP's posts? - sorry, not sure how much of a regular you are!).

I'm glad DD is feeling better now, that'll make life a bit easier for her and for you.

I hope the NG tube goes in easily for DS & the chemo isn't too bad :(

at the 'glue ear' - you think they'd check for that first given how many kids have it, it's one worry you could have done without isn't it!!

Big hugs for all of you
x

[kaylasmum]

hi Trazzle, i'm so sorry that you're all going through this ordeal. i don't really know what to say except stay strong and that you are in my thoughts. your ds is a gorgeous little man! Another light burning brightly here in perth, Scotland. x

[Trazzletoes]

Gosh sirzy I have no idea - didn't even know that was possible!

Ng tube going in this afternoon. Chemo also starts this afternoon but the antibiotics will stop...

DM and DD are popping in this afternoon. DD is much better thank goodness. That's one weight off my mind anyway! :)

DS had a hearing test this morning as some of the chemo can damage the auditory nerve. He didn't hear a lot of the noises but it turns out he just has glue ear .

We're all getting by. Thanks for your support, as ever x

[Sirzy]

Hope this week goes well x

Just noticed this is nearing 1000? Do we need to ask MNHQ to extend it rather than needing a new thread

[DawnOfTheDee]

Hi Trazzle. Glad you have got in to see your DS again.

Hope your DD is feeling better too.

You are doing amazingly well and, yes, you're doing it because you have to but that doesn't make it any less amazing.

Much love to you and the family x

[THERhubarb]

Just popped in to see how you are doing. Hope this week brings some better news for you all x

[Queenmarigold]

hi Trazzle, how are you guys doing today? How are your DCs? Is DM coping OK? Are you coping OK?
Stupid questions, I know the answers are that everything's awful, but thinking of you all.

[ToffeeWhirl]

I'm glad you're back with your beautiful boy, Trazzle. It must be lovely and comforting for him to see you when he wakes up. Sending you love and strength. X.

[barefootcook]

Just thought I'd let you know that I prayed for you and Mini Trazzle at chapel in Wellington, New Zealand. Will light a candle soon too.
Hope you have a better day today (or is it night!)