Hi everyone! I've been following this board for a while. Scan date 17/08 so probably still got a few weeks to wait. I am so anxious. Daughter diagnosed with severe autoimmune disorders in April this year and was hospitalised for 3 months... She has trouble with mobility, flares of inflammation, developed osteoporosis and fractures from the steroid medication etc. She is okay some days but if she does too much she has a flare and we end up back in hospital... She needs help with showering/dressing and can't walk for more than a few minutes. It's a lifelong chronic condition and we're struggling to find the right treatment plan for her.
She can only do a couple of hours in school each day. Work were fab to begin with but I've essentially lost my job as I couldn't commit to coming back fulltime or being on site (I've been working from home around caring for her but they need me back in now) and they've therefore put me on a redeployment list so find another job. I'm terrified financially we won't be okay if I don't find anything. I'm a lone parent (their father is deceased) so it's all on me and I just feel sick :(
I'm terrified we won't qualify and I won't be able to find a work from home job :( I think because her condition in children often isn't as bad as it has been for my daughter - she is very much on the extreme scale (she has juvenile derymoyotisis and overlap systemic scerloderma). And DLA will look and say "well she'll be better soon".
Ahhh the wait is horrible and it's awful that we are all waiting SO LONG. If I had had a decision quicker I could have taken the career break offered by work but since I just DON'T KNOW if we will qualify I had to accept the redeployment :( So awful for people in positions like ours who are desperate for the help to give our children the care we need!
Anyway, sorry to offload, just wanted to say that watching this board has helped me loads and as the weeks tick by I hope we all get the support we need. Good luck everyone.