DLA wait times part 16 (2023)

[JME85]

Following on from part 15…

I’m so sorry can you ask them to look at it again? Did you have a lot of evidence?

@MummytoSENfreya hope you get an answer that is such a long wait, ask them to escalate it I am scan date 15/6 and I asked them to escalate.

@Star2386 I'm sorry you weren't awarded ask for a statement of reasons and appeal it

@MummytoSENfreya hope there's some news today! I was surprised mines not even with DM yet at 18 and you are 21 weeks!

Called this morning scan date 29/06, lovely gent told me it should go to a DM this weekend and I should get a decision by the end of next week 🤞🤞 xx

Hi I have asked for them to look again he’s nearly 3 he’s got nystagmus where the eyes shake side to side involuntary right eye is turner in to nose always hurting his self man told me yesterday he don’t need more care than a child of his age don’t know how they can say that when do t live with the child the lady on phone was lovely I ask them to look again I told her over phone what I wonted to disagree with she wrote it all down and said it can take up to 3 weeks good luck to everyone who is waiting

Contact Nystagmus Network. They have someone who can advise.

Is your son registered partially sighted / sight impaired?

(Nystagmus is one of the conditions I have)

Thank you u yes he’s registered sight impaired the man on phone basically told me he won’t get it til he’s 3 so unfair

@Boymummyof2 same scan date as me! Hopefully not that long now, fingers crossed for you ! 🌈❤️

Hello everyone
I was try to call today 4 times. Everytime call ended after 3.5min. My scan date 21.06 I call 3weeks ago and tell my 18weeks today is 18 still nothing 😭

hi dear. my son also has nystagmus and his turning 3 next week, so i was hopefull, now reading you, that mean they might not award me also, he also under diagnotic for autism, i will keep u inform if they also reject me, did you get helph from vision norforkl? because i do, and i had a letter frop them wich i had send with my form.

hey
dd scan date 5/7
been told that its been passed onto the case manager then it will be allocated to the case manager to scan and give my child a reference number as she does not have a NI number, then the case manager to the dm..to then award or decline application then back to the case manager to scan and either send an award letter and back dated payments if successful…
but it works differently if a child hasn’t got a NI but also said it is taking 17-19weeks for a decision so not long now the woman told me.
hang in there and good luck to everyone!
also i was wondering if anyone else thinks they have different Dm for different diagnosis this is why some are quicker than others?

https://www.rnib.org.uk/living-with-sight-loss/money-and-benefits/disability-living-allowance-dla/ may also help

I have vision teachers come out to my house every 2 weeks til he’s 18 I sent letters from them also copy’s of his yellow card and sight impaired certificate hospital letters he’s waiting to see peaditrition as health visitor saying he’s low on motor skills we missed appointment as had Covid so don’t know how long new appointment will take

Scan date 22/06. I phoned Monday morning, not with DM. I phoned Tuesday afternoon and daughter had been refused. My daughter is diagnosed ASD and is dyslexic. I sent her autism report, her dyslexia report, IEP and minutes from a meetings at school. Has anyone any advice on doing an MR?

@Girlmum3110 im so sorry theu refused you!! Ask them for a list of the reasons why they didnt qulify, put in your report any supporting evidence sleep diary, letters from teachers any health professionals involved :(, from what you habe put in im shocked they denighed u !!! Bullet point the reasons of why they are wrong once they send u the reasons ❤️❤️❤️

It has to be more help than a typical child. Can you compare your daughter to a friend of hers?

Scan date 01/06

On hold for 1hr and 15mins

We have now been awarded literally while I was on the call of HRC

I feel like a weights been lifted, thank you to everyone that has been awarded today and good luck to everyone xx

ok ,i did the same, am suprised they did not award you, i have to wait and see, am shocked , because i did not even know about DLA is my son eye doctor who actualy told me he was entitled, that when he sign the certificate for him, how come the DLa is refusing to award them.

Sorry to hear of these declines this morning really don’t know how they work it when they clearly have more needs and evidence.
Im really not feeling hopeful for our case. X

@Lollypops88
He did tell me over the phone but it was a lot to take in. Something about her not needing interventions at school, which she does have. Her IEP was geared towards her dyslexia. She is very good at masking. She is ok in school and as soon as she is at the front gate she breaks down. She is in a school with 30 kids. Her class size is 12 kids from y3 to y6. Honestly it’s like everything has been a fight. From getting school to help to this. It’s crazy how in 24 hours it can go from in a pile to being all read by DM to a decision being made. Thank you for advice.

Congrats @MummytoSENfreya so pleased for you! I’m glad your long wait is over x

Man on phone said he don’t need more supervision than a child of his age not sure how they think they know his care needs being there not parent to the child but good luck to you might be different as your child is nearly 3

What is your scan date

@Nati1987 I'm same scan date, I called this morning and was told not with DM yet and could be another 2-3 weeks, worth a call (I tried yesterday 4 hours on hold combined and kept disconnecting) as some have been awarded from those dates

@Girlmum3110 what interventions are in place for their dyslexia? I got my eldest approved the start of this year for dla regarding her dyslexia and anxiety caused by it. She has a EHCP in place, all her dyslexia reports, loads of 1to1 and memory core intervention (as dyslexia can cause poor memory and my daughters is terrible) but I explained on the dla how much she melts down at home with homework so we have to put interventions in place regarding that, how she can't read signs when out etc forgets instructions etc... and head of SEN wrote a nice statement about how much she struggles daily at school and home. Are the school on your side helping and supporting you? Xx so sorry for your decline get that MR in and hopefully school can help you get approved or if they haven't already make sure they get a educational physiatrist to see your child and make a report because that helps massively too xx