DLA Waiting Times Part 6 2022

[MissRedd]

This is a continuation of the old thread 'DLA Waiting Times Part 5 2022' linked below. DLA Wait Times Part 5 2022

www.mumsnet.com/Talk/childcare/4663757-dla-wait-times-part-5-2022

@MissEllie2 I've seen a few around the 16th 17th too x

@georgiesmuma I agree it's horrible waiting and not knowing isn't it. I reckon you'll hear by Friday I've seen a lot, i.e scanned 11 August awarded 11 Nov if that makes sense x

Anyone know the address for sending additional evidence it's been so long I have quite alot to add now but can't remember who to and the address

@Alilly1991 Can I please ask what rate you were awarded? I am similar to you, my son is 2.5, I have sent quite a lot of evidence in from his complex needs worker, Speech & language report etc. He doesn’t yet have a diagnosis as we are awaiting an assessment from the Paediatrician. I am not hopeful that I will be successful due to his age, I’ve heard that it’s really hard to get a claim approved for under 5’s x

MRC, I’m happy with that. It will cover the costs of what we need for him so I can’t complain. I heard it was difficult too, I spoke to the lady on the phone because I was surprised and she said there’s a lot of criteria that have to meet for under 5’s

hi I’m new here, I got a letter dated 14/08 saying they got my application on 10/08 then another on 27/09 saying sorry it’s taking so long. I’ve still not heard anything or received anything :(

My son is 9 and diagnosed with asd and adhd, I sent letters for these along with his ehcp, ot reports and educational psychologist reports. I’m worried that we won’t get awarded as we didn’t have anyone to fill in the section for a professional as it was done during the school holidays.

We got scanned on the 26th Aug. DS is 7 and we have been on the ADHD/ASD pathway since he was 4. I never realised how difficult this would be.

OT would not see us, speech therapy wound not accept referral either. After a lot of fight we had an autism assessment… it only lasted for 30min and he masked for the first 15-20min. Once he was comfortable he started hands flapping and prescriptive speech. The report says he did not meet criteria but he was very hyperactive. We were referred again with a 17th months wait for new assessment for ASD and ADHD. School now seem to be on board after me crying like a baby in a meeting.

I am a single parent with literally no family or friends support (we isolate due to big emotions he has sometimes). I feel so let down by all agencies. At no point DLA was mentioned to support us. he still in nappies at night and we have accidents in the day (wee and poo), specially at home. He chews tops, coats, cushions until there are holes in them. He wakes up at night… sometimes nappies leak in his bed and then mine in the same night… so lots of washing… he also wakes his sister up at night too. We were just managing until this rising living costs. I heard I could apply from DLA from someone in work… until then I always though we needed a diagnosis.

Our little family really needs this, but I’m so rubbish with forms I am scared and so anxious now!! I can’t stop thinking about it.

sorry to long post… just need to get this out there to see if I can cope before my Night Shift.

Omg I’m so sorry about what you’re going through. I’ve only just done my claim this time for the first time - but I’m sure I can help you if you need anyone to help with form writing, understanding things or even just to talk to. I have so much empathy for you with these struggles as I’ve had so much to deal with with my son. Totally here for you to chat or anything. Please do reach out. I definitely think you will get the help you’ve needed all this time. I was never told I could get help with him either but at least we know now and hopefully it could help at least lessen the pressure we feel having the problems we do. You’re not alone.

sou

Thank you! I really appreciate it. I have been doing everything by myself for so long I didn’t even think about asking for help with forms. I rang for them on the 6 of July… they needed to be back on the 18th aug. I was so overwhelmed with them. It took me ages to fill out and to try to proof read. I sent them (free post coz I was poor that week) on the 14th, but they just scanned them on the 26th… so also lost the deadline to get it back dated if he does get DLA. Oh well…

When was your scan date?

My daughter sounds very similar to your little boy she’s been on dla since she was 5 she’s 15 now she had an autism assessment when she was around 10 I was told she didn’t have it however she was diagnosed with a learning disability. Xx

oh I’m sorry idk much about the rules for backdating I can’t remember myself how I got the form sorted I was still heavily pregnant (overdue!) with my youngest. My scan date was 12th August so I’m still yet to hear anything (beyond an acknowledgment letter then a ‘sorry we’re taking so long’ letter). I didn’t have much to send them but the Educational Psychologist report and a letter the occupational therapist had written us to support us applying for a change of house as ours is so small and unsuitable for us. My son can’t sleep with anyone even his twin sister because of his behaviour and the flat is so old and dangerous I’ve literally developed anxiety being here. It’s not easy. the senco at school had applied for an EHCP but because the paediatric report took almost a year to be sent to us (only got it a couple months after applying for the EHCP) - it had gotten rejected for lack of information. They’ve sent it off again with more info that we now have but that wasn’t in our application for DLA. We’re still waiting for an assessment appointment for both twins for autism, God only knows when that will happen! Literally just my information about what we’ve been dealing with. I wish they’d just send someone to shadow us for a day and see what life is like for us. That would be all the info they’d need. Wish everyone all good luck. Here if anyone needs anything, we have to support one another!

sou

Seeing mixed results lately. Good luck for all today x

@dandymum did you call today

Has anyone had a update yet x

@Shellbel10 no I haven’t had chance yet 😩 not sure what time they close but if they’re still open I’ll call later x

I want to ring but I’m waiting until at least Wednesday next week xx

Our letter says they received the application on 11 August but apart from the letter saying it was delayed we haven't heard anything. Is it worth ringing them? I don't want to tie up the phone line if they can't tell me anything.

I would ring. You may have been awarded and just awaiting on a letter

@HettySunshine im petrified to ring them incase it’s been declined. My date was 10th aug so I’m on week 14 of waiting 😥it’s torture waiting.

On hold now. Will let you know what they say.

@HettySunshine I’m also on hold. I bit the bullet. I feel sick to my stomach though.

Make sure you update us on the outcomes! You’re probably just awaiting the letter I’ve heard it can take a couple of weeks to arrive. I’ll definitely be calling but holding off for a few more days. I wonder if they are working over the weekend again.

i rang today my scan date is 25/08 and i was told i should have a decision by end of nxt week as they are currently taking 13 weeks. Mine is not allocated a decision maker yet tho but he did say they are working weekends and over time as they is so many applications. Good luck everyone i’m just hoping i sent enough information and put enough on the form cos that form was hard

Awarded! And I didn't realise but the money has already gone into our account. Lower rate mobility and middle rate DLA.

Such a relief.