@Perfectstorm72 unfortunately this is one key problem I was trying to address in my previous post. When my wife saw your post, her reaction was not very polite, because of the suffering we have gone through following exactly your very kind advice. It was not anyone's fault and everyone did their best with the best intentions, it just really did not work for us. It would be brilliant if there was more awareness about the few like us, left behind by the mainstream practices and thinking.
The response and support to anxiety is way too poor both in terms of capacity and methodologies. Our local support was overwhelmed and once finally engaged, awfully ineffective.
The New Maudsley method, cbt and parent-led cbt have failed miserably in our case. I cannot fault the local team, I think they are very good carpenters trying to repair seams using a hammer.
So yeah here we have that unusual situation where there is a new approach, not scientifically proven, that is apparently more effective than the established methodologies. At least in cases where these have failed (the statistics are small and biased, so I would not generalise too much!).
It's a kind of Lorenzo's Oil situation, with Young Vibes trying to find a way to sustain economically a little revolution in the treatment of anxiety.
Their approach is expensive to offer (lots of face to face contact) and there is no taxpayer money involved so yes not ideal.
I'm sometimes wondering what I would do if I was Sam. Making zero mistakes is never an option so probably I would make the same mistakes or worse.
I think I would have given up ages ago. But then, thinking about these children, terrified each and every day, with all sorts of problems and unthinkable outcomes... how can you not try to find a way to go ahead? Despite some truly awful reactions. I don't know, maybe pairing with a university could be an option but I see it as a very, very long shot.
Maybe we can transform this thread into a positive one. I'm sure even the most bitter critics must have some suggestions. What would you do if you were Young Vibes? I believe that positive change is always a good thing so what positive changes can we suggest?