Likely ovarian. Terrified. Anyone available for a hand hold?

[Ohjoyohbliss]

Blood test yesterday: Serum CA 125 level over 35 indicates possible cancer. Mine is 213. Shit.

DH knows and one friend but I don't want to worry anyone else until I know how bad it is; hence I've name changed for this post. I'd love to know how anyone else has coped / is coping.

CT scan Saturday and USS on Monday. GP has made 2ww gynae referral today.

You quoted OP’s post that she posted back in July, but if you’d read her posts you would have seen that a lot has happened since then and she’s been diagnosed with lymphoma

Thinking of you both x

Hoping Joy picks up soon. It must be so worrying for you all.

I just came on to say that my son had stage 4 lymphoma a few years ago, and I know this probably won’t help you right now while she’s so poorly, but we found that the first round of chemo was the absolute worst. The tumours dissolve quickly which make you feel dreadful, and the white blood cells are completely wiped out. My son was hospitalised for 11 days with neutropenic sepsis after his first round, but for the next five he was given an injection a few days after the chemo to boost the white blood cells, and he managed to stay out of hospital and infection-free for all the remaining rounds. Obviously he felt awful and had various antibiotics to ward off chest infections etc, but it felt much more manageable once the doctors saw how he responded to the first round. He was also given doxorubicin, but qualified for a heart protectant, and has had no long term heart damage that we can see.

Four years off treatment and he’s in full remission from what was a very aggressive and fast spreading cancer. I hope his story can give you some hope xx

Edited to add that he had 6 cycles of R-CHOP Apparently rituximab has been a game changer in lymphoma treatment.

Please give Joy my very best wishes for a good recovery, she is marvellous and I admire her.

I have no experience to share but I can try to understand the shock annd fear andjust want to send virtual hugs and the best of wishes. I'm crossing everything for you. X

Sending Joy much love, and hope you have support too, Joy’s DH.

Thinking of you both, I hope Joy is continuing to improve. I'm in awe of her strength.

Wishing Joy a speedy recovery from the infection and hope she can get back on the treatment plan soon. Sending thoughts to Mr Joy too.

Joy and Joy DH sending love

Sending lots of love and best wishes to you both ❤️

Oh I'm sorry to see the update from Mr. Joy.

Wanted to pop on and say my partner had the same diagnosis a good few years ago. Stage 4 too. He's still here fine and well. In fact hes not even checked any more. It was a tough time at the time but now a distant memory. Hang in there.

Thinking of you Joy (and DH!)- hope they get it under control quickly and you’re back home soon x

Partner also had R-CHOP.

I think you specifically need ca125. I think it helps to understand what markers they are looking for which isnt looked at with standard bloodtests.

Also....best wishes to the OP and her family

Sending you all love xx

I’m so sorry to hear this. I’ve just read the full thread. Best wishes to Joy and to you.

I have just read all joys posts.

Wishing her all the luck in the world and hope she's better and home soon.
Look after yourself in all this as well

hopefully Joy recovers from the infection quickly, thinking of you both 🫂

Sending lots of love and best wishes to you both 💜

Thinking of you Joy (and Joy's DH)

Thinking of you both. I hope Joy recovers very soon.

Thank you for the update. Sending you both big hugs.

You are in my thoughts and prayers