In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

Thanks for updating us OP with everything you have going on. Sounds really tough - and I agree, you’re an absolute bloody warrior.

Fingers crossed things continue to go in the right way and it starts to get easier for you 💐

So much to cope with bless you, sending a hug 🤗
It might help to frame it as "isn't my body amazing to be coping with all this and trying to mend itself". Don't forget to praise yourself for how well you are doing.

Thank you for updating. That sounds like a bit of a rollercoaster. I hope your funny head feeling calms down soon.

Thanks for explaining how you're feeling. I don't think a lot of us realise how gruelling this is. Sending much love ❤️

You are amazing, OP. Keep on keeping on.

@@Wells37 Thanks for letting us know how you're doing.

Hope things start to improve after the 3 months mark.

Hi how are you? I was diagnosed at A&E also, the week before you on 12th September 24.
I had two CT scans a year earlier & they missed it twice. This time they noticed it & I had an MRI. I’m on my journey, lots of appointments etc. sending you love and strength it’s hard I know. I have 3 children 28,21&22 & a grandchild of 2. Im 50.

xx

Sorry typo my children are 18,21&22

How are you @Wells37? Sending love and strength xx

Jack had a scan last Friday (halfway through last resort treatment) and hopefully we will have the results on Monday when we go for his oncology appt. I am so not looking forward to it.

@JaneHamChap I cannot believe they missed it. Look after yourself and take any offer of help that is given xx

Hoping you are having better days.
Totally get the anxiety of hospitals!

Just sending virtual hugs and determination

@BellaVita I really hope the scan brings some positive news for Jack and he's feeling ok. The build up to appointments is unbearable! Me and Dh had a big argument leading up to my latest treatment and think it was just all the tension of worrying about the side effects and the unknown. We are fine now though.

@JaneHamChap sorry to hear you are going through this too. What treatment are you having? What type of tumour do you have?

I had my second immunotherapy this week. So far no seizures thank goodness! On my last treatment I had had a few focal seizures by this time. I'm on the max dose of my anti seizure meds now, so hopefully it doing the job. I've had a few funny 5 minutes but nothing like last time. They have another drug they can add if it does happen again though. But so far I've seen them off with a small dose of lorazepam and rest.
The other side effects came about a week later last time but they were manageable and the trial I'm on monitored me very closely. If they can keep the seizures at bay I will be happy.
Have a good day everyone and thank you for your nice posts. I've just had breakfast in bed, breakfast in bed daily is the one good thing to come out of having cancer😂 Going to get up and walk the dog and get a nice coffee in a bit.

You’ve handled all this brilliantly, thanks for the update. Enjoy your day.

Have a wonderful Sunday and a lovely coffee, and may the breakfasts in bed continue!

@Wells37 you sound so positive. Have a lovely day 😘

Just as an after thought as I know people search Mumsnet for lots of things. This is what I'm doing to try and support myself and my treatment. Nothing to wacky 😂

No processed carbs, I'm not doing keto but trying to keep my blood sugar level. Still do family meals but if they have pasta for example I replace mine with roasted vegetables.

Increased my fibre intake- flax seeds, chia seeds, mixed beans, psyllium husk. The fibre 35 mix from marks and spencers. There's proper studies on increasing fibre helping with immunotherapy.

Lots of vegetables, as many different ones as possible.

Making sure I eat plenty of protein. Eggs, meat, beans, Greek yogurt, during treatment I add protein powder to my yogurt to give myself a boost.

I also got a blood test to check vitamin levels and have added supplements accordingly. I also take a good quality fish oil.

Since I've been doing this I haven't really craved sweet stuff but I usually have some dark chocolate (85%) and nuts in the evening. Or m&s almonds with dark chocolate.

I always have a coffee first thing but otherwise drink water and fruit tea at home. Or if I go out I have another coffee.

I always have a bag of nuts in my handbag!

Good to hear things are ticking along positively. Many good wishes to you.

I'm also on breakfast in bed (my 15th out of 16 chemos is due next week). I’ve shifted my diet very much like yours although am vegetarian. I have overnight oats with lots of Greek yoghurt and fruit - plenty of figs at certain points in my chemo 🤣. I enjoy eating a couple of medjool dates in lieu of a sweet treat and find that a couple after my evening meal switch my appetite off for the night.

Thoughts with you and all affected by this bastard disease.

I thought I would do a quick update!
I’ve had some really good news from scans this week.
After 3 lots of double immunotherapy plus the trial vaccine my mri head is clear, just some swelling left over from op which is slowing going down. The only other area has had significant shrinkage, they were very pleased with how much it’s shrunk.
I had some nasty side effects and ended up in hospital for a few weeks on the last one but up until then was ok. Side effects really floored me but slowly building myself back up now.
So plan now to get me off steroids slowly and re start immunotherapy but single dose(better tolerated immunotherapy) plus vaccine 🤞rather than double dose, then just keep going till it’s all gone.
I really hope this is going to be a game changer for melanoma 🤞

Onwards and Upwards

Delighted for you, and glad you are over those side effects. Thank you for sharing your updates!! 🪻💐🪻

So pleased to hear your wonderful news, it must be such a relief to have good news. Onwards and upwards!

Thank you for updating.. I've not commented before but I've got you on watched threads and often think of you..
Lets hope you continue to recover..

Absolutely happy for you!! What fantastic news. Even though the treatment has been very unpleasant and challenging, the results have made it so worthwhile.
We all appreciate your updates as we wonder how you are doing, but don’t want to intrude.
Have a lovely Easter.

Thank you for the update. Hope the side effects stay away. Hugs to you and your family x

That’s just wonderful news.

So pleased you have some positive news. I often wonder how you are doing.
My very best wishes I know that even when the treatment is going well it can be unbelievably hard. Lots of love.

Wow I as only just thinking about you this morning! Must be telepathy 😂
Great news anyway, I'm sorry you've had such a tough time with side effects, but it sounds like you've got really positive results! Sending you all my best wishes, hope you are feeling better soon.