In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

I'm so sorry to hear that. Hope it isn't serious and something they can treat easily.

I’m so sorry to read about this setback. Wishing you strength and some better news. Thinking of you.

So sorry there has been a setback. It is a horrible shock when life us ticking along and these things drop in from nowhere.

Thanks everyone. I hopefully they want to do an mri today, hopefully I will get it today if not tomorrow.

Sorry to hear about your diagnosis @Needingacoffee I have Dave Bolton who runs a charity called a head of the game quite inspirational. There's a website and social media. He is very much for conventional treatment but using complementary therapy along side it to support with side effects and relaxation. He goes into first and exercise. If you sign up and aren't local there's online yoga and Pilates classes. He says about supplements too which I've read and done more research and checked with my dr too. My local pharmacist was also happy to go through supplements with me but I haven't got around to it.
If you have a Maggies centre near you they good 👍

Lots of typos! Autocorrect and tired!

Good luck with the MRI, hope it goes well.

Oh my @Wells37 that's a horrible thing which has happened. But, it's a set back, not game over. You seem to have a hold of this horrific disease and you can (or your team can) sort it. Keep on, keeping on. Half of us will do this, the alternative is to give up. You are stronger than you ever considered, and there's a whole nest of vipers here to offer any support we can x

Thanks for the update. Sending a hug and best wishes 🥰

So sorry to read your latest update, I hope that the scans bring answers and options. Sending positive thoughts to you and yours.

I'm sorry that you have had such a setback. I was hoping for a better update. Please know that you are thought of frequently and are being sent the very best healing wishes.

I hope you get some answers today. X

Sorry about your extra troubles.

Hoping some good news soon.

Hoping there is soon good news. You are indeed thought of with great positivity by many.

Oh @Wells37, so sorry to read you are back in hospital 😥 life is fucking shite 😡

Two weeks ago DS had his second seizure (first one on dx). He was blue lighted to hospital - the bastard is still growing despite being put on heavier chemo.

Seizure meds increased for now.

Sending love xx

Sorry to read you are living this nightmare too ❤️ xx

Sorry to hear this OP.

I hope you get some good news soon!

Thinking of you often and wishing you the best.

Thinking of you op xx

Dammit - sorry you're back in. I hope they get the MRI done today so you have a better idea of what's going on.

Came home last night after mri. They said my brain is swollen and I have a small subdural heamatoma (bleed) Probably as a result of the radiotherapy straight on top of surgery. I think radiotherapy has really taken effect now as a lot of hair has been falling out the last day or so, But doesn't notice.
It was pretty traumatic being in hospital tbh everyone was so poorly and it completely stressed me out.
I need to get the swelling down asap so I can start treatment because it's braf mutation so need to get on top of it for it spreads anymore. I can't start while I'm on steroids. I'm going to see my consultant later this week to find out about the tissue type for the trial and see what's possible.
Just resting and sleeping eating well and keeping my fluids up!
All the consultants I saw were pretty positive in hospital, but im so annoyed the swelling plus Christmas is going to delay everything.

I totally understand your frustration @Wells37 but try to take it one step at a time (easier said than done). Healing first, then next step of the plan. This is a bump in the road that's all, anyway you can't control it so try to let it go. I hope you can look forward to Christmas at home with the family.

Sounds incredibly hard OP xx glad the consultants were positive. Well done getting through this part. Keep taking it bit by bit xx

You're doing so brilliantly, OP. I'm sorry to hear about the swelling, but good that your docs are positive.

I have no doubt you are feeling probably a combination of physically and emotionally shitty at the moment. I echo @MissyB1 . Have you seen https://images.app.goo.gl/dBx1pDYLKZJCge4i7 the worry tree (hopefully the link works)? It doesn't always work for me, but I'm getting better at it the more I do it. It's something Maggie's recommended to me on their Stress Management course. Obviously, feel free to ignore the suggestion (it's from a random internet stranger who has been in a&e like you), but I thought I'd mention it just in case it helps. 😘

Hi @Wells37 - just checking in to see how you're doing. I've been thinking of you.

Thanks @spiderlight. The gamma knife radiotherapy completely wiped me out, a lot more than I thought it would. The recovery from the surgery was a lot easier! I was so tired and emotional my head kept getting very tight and sore. Finally starting to feel better now, I've started walking every day now. Hoping I can get back to the yoga classes at Maggies soon.
I have been accepted on the trial to have the cancer vaccine along with the immunotherapy. I'm starting that this week finally! Feeling quite nervous about side effects but really hoping I have a good response and it gets rid of anything and puts me into remission