In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

Glad to hear you're starting to feel better @Wells37 and best of luck with the trial.

@Wells37

I am so pleased to hear your update!!! Glad things are looking up for you.

Best of luck with the trial and your continued recovery

wishing you the best

Everything very, very tightly crossed that the trial and immunotherapy are successful for you and that the side effects aren't too harsh.

Thanks for the update and wishing you all the best,actually just typed 'all the vest', which actually is correct given the snow!

Sounds like your medical team are on it @Wells37 . I know things seem slow but does look like things are progressing and I hope you'll soon be doing gentle yoga again at Maggies. .

In between time, Yin yoga and 8 Brocades Qi Gong are both very gentle forms for home practice. Chi Gong are traditional Chinese exercises related to T'ai Chi. I do these in Chronic Fatigue flare ups and find they help, even just 5 or 10 mins, whatever you can manage comfortably.

Some Chi Gong exercises can be done on the floor or chair (a quick google will find videos e.g. floor based chi gong). All very restful and restorative, gently keep blood circulating and helps calm and sleep.

https://www.google.com/search?sca_esv=40d67909390ce45a&rlz=1C1GCEU_enGB910GB910&sxsrf=ADLYWILGFUYJdFcvGcCpcl0fUIVE8Epp-A:1736179706016&q=8+pieces+of+brocade&udm=7&fbs=AEQNm0Aa4sjWe7Rqy32pFwRj0UkWd8nbOJfsBGGB5IQQO6L3J0TTyieiSn4vVsjkTS5Hqtf4g42CrlErv5TdXaRk6ND4PK6YJvMBiCQP07c90HXshx1fCTuPdZujO_ukDaJdIHNE-KkbJKNXEnFwDKkwcxXagvIcpurxEOPRRCs-QzpnKY0b6u3iSjQG4CaWhcWFj-OdP17f&sa=X&sqi=2&ved=2ahUKEwiKvZK1veGKAxXMWUEAHVatCvEQtKgLegQIFxAB&biw=1366&bih=607&dpr=1#fpstate=ive&vld=cid:44f33e21,vid:3K-0JpiJu-o,st:0

Look out for nosy guy in this video. Mimi keeps her composure admirably , suppressing her urge to laugh.

There are great forums of Mumsnet for TV/Film/Radio/Podcasts and books/audio books if you need any suggestions. You may have found these already but just in case.

Wishing you all the very best @Wells37

Wishing you all the best @Wells37

All the best @Wells37 ❤️ xx one step at a time. Lots of luck with the trial.

Just adding my very best wishes

Thinking of you and hoping that you’ll feel a little better soon

I'm glad to hear an update that sounds positive, OP. A Happy New Year to you, and I hope the trial goes well.

I'm so happy for you, I've been coming back for updates and hoping for good news for you. Happy new year let's hope this is a good
Positive one for you

Sending positive vibes x

So glad for this update, OP. All the very best to you. You deserve all the good things that life has to offer you in the future! xo 💜

It's lovely to read your update @Wells37. Glad you are starting to feel better x

So glad you are feeling stronger x

Great news OP, hope it all continues to go really well for you x

Thinking of you x

Apologies I meant to create my own thread, have reported myself to get comment deleted. Head is all over the place!

OP how are you?

Thank you for thinking of me. A bit up and down, I've had reactions to the immunotherapy, some more seizures and a skin reaction and my bloods show my liver is a bit off! Liver is going in the right direction now. Seizures have stopped now but I get a really horrible tight feeling a lot. Skin reaction they treated very quickly and is on the mend.
If I could just get rid of the funny head I think I could cope fine with the side effects. When it happens it's like I can't think and feel out of control. Hopefully all the side effects means my immune system is working over time though and the immunotherapy isn't working!
I'm really hoping once I'm over the 3 month mark from radiotherapy my head will start feeling better and the immunotherapy isn't going to trigger the seizures too much.
My consultant said once my seizures are stable I can start gentle exercise which hopefully will help. I've been walking everyday but I think it will do me good both physically and mentally to get back to the exercise classes at Maggies.

That should say is not isn't !

Hopefully all the side effects means my immune system is working over time though and the immunotherapy is working!

Gosh it sounds such a full body assault.

You are being very brave.