Pregnant and on 2ww pathway as I’ve found a lump

[hereismydog]

I posted recently having noticed a large lump in my neck, assumed my thyroid had just gone a bit wonky with pregnancy hormones so saw my GP yesterday who has put me on the 2ww for head and neck to rule out cancer. I’ve had some other symptoms (tiredness, croaky voice) but it’s so difficult to know what is just plain hayfever or a pregnancy symptom and what isn’t. I’ve lost a bit of weight but I had horrible morning sickness through my entire first trimester so could be down to that.

I’m trying to keep it together and think rationally that it’s probably nothing sinister and my GP is just being cautious but I can’t help panicking. Would just like a handhold please while I wait

Sorry that you've got this worry in the last part of your pregnancy, I hope you get a bit more information when you see them face to face x

I’m so sorry to hear your news. I’m really hoping that you get some answers and a clear path ahead when you go to the face to face meeting. I am sure they’ll be keen to manage everything in the safest way possible. Sending you a virtual hug.

Thank you all for just being here 🥰

I feel weirdly calm about it as I’ve sort of been expecting it because of the delay in getting my results. My Mum is losing the plot a bit, I’ve reassured her that even if it is cancer, it’s a very treatable one. Just been a shit year really, my Dad died very unexpectedly in January and he’s the one who would always say and do the right things to make me feel better, just wish I could go for lunch with him and have a whinge 😪 lots of stuff going on in my head at the moment, still very freshly grieving, trying to be excited about my baby and also worrying about how I’m going to manage having a newborn and recovering from surgery, plus all the lifelong side effects of having no thyroid 😫 I always thought I only ever wanted one child but since being pregnant have felt like I might want a second, now the choice may well have been removed if my hormones say no!

Sending you a massive hug op

Just reading this thread and want to say you sound so incredibly brave OP - and very level headed. Wishing you all the best with everything ❤️

Morning all, my appointment is this afternoon 😬 have researched the surgeon I’ll be seeing today and his primary area of expertise appears to be thyroid disorders, so that’s reassuring!

I saw the obstetrician yesterday and she hadn’t been informed about any of this by the ENT team! She was absolutely brilliant though and we came up with a plan for exactly when baby will be here depending on how urgent the ENT team say the surgery is. She’s given me her direct email so I can pass it on to ENT, and also told me to email her myself if I need to see her any earlier than the 32/40 follow-up she’s booked me in for, and arranged a growth scan to check baby is doing okay despite all of this. Was also very reassuring to hear that she doesn’t think my pregnancy has triggered it!

Good luck today @hereismydog . It sounds like you have been through the wringer! Hopefully you’ll get a positive action plan today to move forward with

Good luck for today ♥️

Good luck today. Glad things are moving but sorry you’re here x

Good luck today and so glad you have a plan 😊

Appointment went well - the surgeon was straight to the point with no faff or bullshit, just the way I like them

He explained the radiologist who took my biopsies took core biopsies instead of the planned fine needle aspiration (not sure why they chose to do that!), so the results had to be interpreted slightly differently as the usual result interpretation is based on FNA biopsies.

They’ve come out as ‘equivalent to Thy3F’ which essentially means they can’t tell what it is from the results as there are some benign-looking cell changes and some malignant-looking changes, so they need to do a partial thyroidectomy at best, and a complete thyroidectomy at worst, but he explained that the remaining half of the thyroid will usually compensate for the missing half so hopefully I don’t need levothyroxine afterwards. He also said if he removes it and it does turn out to be benign at the moment, still safer for it to be out because it could become malignant in the future.

He’s happy to delay the surgery until baby is around 4 weeks old if I’m induced around 37/40. Not ideal but we will manage! In the meantime, he would like to monitor the lump under ultrasound to make sure it doesn’t grow any bigger. It’s 3cmx3cm so he reckons it’s been growing for quite some time, unnoticed by me!

Pleased your appointment went well op and that you have a plan, wishing you the very best of luck with everything

Hi @hereismydog I'm glad you've got an answer and everything can wait until after your baby is born.

I have nodules on my thyroid and have had 2 biopsies. They are fairly sure they are benign but it's interesting that you say they can become malignant as that wasn't mentioned to me. Originally they were going to remove my thyroid just in case but they changed their mind when they realised I use my voice for my job. Mine are definitely growing but I feel like a nuisance going back as they've already said they look fine!

I had something very similar found just after I had given birth actually. Had half of my thyroid removed when baby was around 6 months old and the histology came back that it was 'unknown malignant potential' so cell changes identified that they weren't sure if it would turn cancerous.
I have an annual ultrasound to check the remaining half of my thyroid. I do take levothyroxine as it was also identified then that I have hashimotos thyroiditis (which leads to underactive thyroid)
If you've got any questions please do ask

Here we bloody go…just had my glucose test and both my fasting and post GTT readings were a bit high on the fingerprick so just waiting for a phone call to tell me I’ve got GD to add to my pile of shit 😂

FFS! How annoying for you. I know what GD is like and I wish you weren’t going through any of this xx

How you getting on @hereismydog?

Hello 😊 thanks for checking in. It’s all gone very quiet on the thyroid front, the consultant has requested another ultrasound on it for mid November, by which time I’ll be almost full term so shouldn’t affect my EDD.

I don’t have gestational diabetes after all, which is a win! Just feeling very round and heavy but starting to finally get excited about my baby now 🥰 32 weeks already!

What a fabulous update. So pleased to hear this x

So pleased to read this. I have everything crossed it will all work out for you. Oh not long for the new baby at all.

Just had my consultant review…induction at 39 weeks!

That is SIX WEEKS AWAY, holy shit 😅😅😅

OMG! This is fab! So close now! You need some very little Christmas outfits for baby!

I know! 😭

To think I started this year utterly dreading every Christmas to come for the rest of my life as my Dad died at the beginning of January and I spent last Christmas in ITU with him. Now I’ve got a little one coming and I feel like my heart might have a bit of room for Christmas after all. Trying not to think about the thyroid stuff for now, I’ve got a scan on Monday to check if it’s grown at all. If all looks okay then I’m good to go to 39 weeks. Let’s hope!

My Mum lives abroad, she’s flying back when I’m 37 weeks and hasn’t booked her return flight yet, says she won’t go until I’m ready for her to leave 🥹

This is all horrendously outing, hello anyone who knows me 🤣🤣

Hello again

The skin on my neck has become intensely itchy directly over where the offending lump is, so I’m a little worried that it has indeed grown. I’m having an ultrasound on Monday to monitor the size of the thing (it was 3x4cm on the first scan), just wondered if itching was a symptom for anyone else on the thread who has had a thyroid lump?