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Bereavement

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A little hand holding please...

510 replies

SurvivalOfTheUnfittest · 26/04/2013 03:48

My gorgeous husband kissed ds1, aged 5, ds2, aged 3, and I, tonight, told us each that he loved us and went to play football, as he has every Thursday for the last 10 years.

38 minutes later, I had a call from his mate to say that he was having some kind of fit. By the time I arrived at the pitch, he was receiving cpr. Eventually we agreed they should stop at the hospital. He was 39 years old and the best daddy and husband one could hope for.

I'm lying here, wide awake, totally numb, and trying to think how to tell our beautiful boys that their super daddy didn't make it home.

I don't know when I'll be back on here., as I'm supposed to be trying to sleep, but just needed to say the words above.

OP posts:
LeMousquetaireAnonyme · 29/05/2013 09:48

Good that your DB is coming, hoping you can rest.
hugs

ScienceRocks · 29/05/2013 11:32

Good work on the photo books. Would the boys like to choose some photos for a collage print they can have on the wall of their bedroom? They could even write things around the edges.

Enjoy your one to one time with ds1 and your db's visit x

ScienceRocks · 29/05/2013 11:32

Good work on the photo books. Would the boys like to choose some photos for a collage print they can have on the wall of their bedroom? They could even write things around the edges.

Enjoy your one to one time with ds1 and your db's visit x

Gingerbreadlatte · 01/06/2013 12:26

How are things survival ? I've been lurking on your thread from the start. You sound amazingly strong at such a difficult time x

SurvivalOfTheUnfittest · 01/06/2013 23:22

I've had a hard few days. I've always found school holidays hard, and this one has been tiring. Ds1 has had a couple of meltdowns and it's hard to know how to help him. Ds2 is still constantly damp, which has been his reaction to all this since day 1, but I'm getting fed up of washing 5 pairs of trousers a day 5 weeks later. We've had some lovely visitors, and I've built in plenty of down time too so that the boys have had my attention.

I've ordered ds1's photobook but haven't had the strength yet to start ds2's. I will obviously keep ds1's until I have both ready. I think they'll be relatively unimpressed now, but will appreciate them as they get bigger. I've called it 'My adventures with Daddy'. It was hard to put together as it really drove home what we've lost.

I can only liken all this to the feelings of becoming parents for the first time - the shock of the world changed forever; the busy nature of the first few weeks, with gifts, flowers and visits from people you haven't seen in ages; and the tiredness - overwhelming, bone-numbing tiredness that zaps your memory capacity and leaves you with little energy to do the most basic of tasks. I remember hitting a metaphorical wall at about 6 weeks with ds1, before he started to sleep a bit more, feed regularly and smile a lot. At that point, the fog lifted and we settled into life as a family of 3. I'm 5.5 weeks into this strange new world, as a family of 3 again - but with different members, and my energy levels are very low. The bad news is that I know we are not about to turn a corner and that, somehow, I just have to keep on going. I know I need to lower my standards, go to bed earlier and generally be kinder to myself, but I'm a perfectionist and it's not easy to do. I need to play more with the boys and try to nag them less about the small things. I, of all people, should know how unimportant the small things are, after all, but tiredness makes it hard to be patient.

Then there's the tears... I can't talk about dh at the moment without 'leaking', as ds1 calls it. I was never one for crying in public. I know nobody minds, and people are probably relieved, but I worry that once I start, I might not be able to stop.

The financial side of things is gradually becoming clearer and looks like we will be okay, but it is always on my mind. I feel very responsible for getting things in place to be able to provide for the boys, but I know nothing about financial stuff. I've made an appointment to see a financial advisor we know and trust for a week on Monday. Hopefully, I will sleep better after that.

I need to go to bed but there's no one here to encourage me to turn off MN! Practically, I'm coping pretty well. We're all eating, beds are changed, homework is done... There's just this ache inside that doesn't go away. Music helps to distract me for a while, as does bouncing on the trampoline with the boys or running after them on their bikes in the park, but it's always there, reminding me that things will always be slightly worse, no matter how much better they get in time. Generally, I try to forget that, and concentrate on each little step instead. Changing the beds, mastering the use of the petrol lawn mower and remembering all the boys' daily medicines are small victories along the way. My determination to make the best of this still remains. Hopefully, a good night will give me more physical strength to take tomorrow's steps.

OP posts:
ScienceRocks · 01/06/2013 23:58

Survival, you are doing brilliantly. You really really are. Stop beating yourself up about being a perfectionist (oh, the irony) and just take it as it comes.

I'm not sure the fog will lift in the same way that it does with a newborn baby, but I wonder that it will gradually get easier, and one day you will realise that the day has not been as much of a struggle. And the the next day will be a little easier.

You will carry this pain with you forever, I suspect, but it will get more manageable. In the meantime, please please try to be kind to yourself. Are you keeping a journal? A gratitude journal might help - writing down a couple of things each day that feel like achievements or have gone well. Doing that each night just as you go to bed may mean you go to sleep feeling more positive and wake up the next day feeling a little more refreshed.

Remember that holidays are always going to be the hardest times. Next week, when the DSs are back at school etc, you will have a little more time to breathe.

hugs

SurvivalOfTheUnfittest · 02/06/2013 00:00

Thank you, as always.

OP posts:
tumbletumble · 02/06/2013 07:26

Hi Survival, I've been away for half term so just caught up on your thread. It's hard to know what to say, yes it will get easier over time but you are right that it will always be slightly worse. My heart aches for you and your little boys. The photo books sound lovely, what a precious memory they will be.

You do seem to be managing brilliantly and I hope the financial advisor can reassure you about the financial side of things.

I'm sure you know that DS2's toilet regression is very normal. Can imagine the extra washing is a bit soul destroying though.

Wish I could say something helpful but instead will just hold your hand xx

trulymadlydeeply · 02/06/2013 16:18

Survival,

You are doing incredibly: I am in awe of what you are doing, and the resilience and sense of humour you show while doing it. Changing beds ... good grief!

You seem like such a wonderful, loving family. The sort of people I would love to know in RL and would feel honoured to support in such a time of need. I'm sure your friends feel exactly the same, and ache to be able to stop the 'leaks' and to help in some tangible permanent fashion.

Wishing you and your boys the very best - keep posting if and when you can: you write wonderfully well, and hopefully one day this can be part of YOUR memory book! Much love. XX

JewelFairies · 02/06/2013 19:41

Survival, is dd2 bothered by the wet pants? Would offering him pull ups help to keep attention away from him esp in nursery?
My em had treatment for aggressive and advanced cancer when my brother was 4. He regressed as well and went back into pull ups for a few months. It solved itself quite quickly and he wasn't embarrassed about wetting himself.

MunchkinsMumof2 · 02/06/2013 20:19

You are doing brilliantly Survival, I have thought about you and your darling boys many times this week and I admire your courage so much. I think that as there isn't a tried and tested protocol to follow with grief, it's an ever changing emotion but you being there for your boys and being kinder to yourself and acknowledging your daily achievements, can only be positive for you all. Sending love and I hope you have a better sleep tonight x

JewelFairies · 02/06/2013 22:16

Ds2.. dm... Must learn to proof read!!!!

SurvivalOfTheUnfittest · 02/06/2013 23:12

Thank you all.

We've had a much better day today. Successful bike ride in the park with both boys on my own, roast dinner cooked, etc.. We had no visitors during the day today and the boys are very settled when they have my full attention.

Think I might ring the hv re ds2 and discuss the toileting regression. Pull ups might be a good idea.

I don't think you can be amazing in this situation - I am really just making it all up as I go along! It is lovely to get some reassurance though!

OP posts:
ScienceRocks · 02/06/2013 23:49

Of course you are making it up as you go along... But you are making it up and making sense of it

maxeen123 · 03/06/2013 00:41

So sorry for your family's loss reading all your update you seem to be coping well and have found your inner strength carry on doing what you are doing sending you love

SurvivalOfTheUnfittest · 03/06/2013 23:43

It did make me smile Science.

Today I took myself to the park and the football pitch where dh died. It was not an easy thing to do but it felt right (and I need to be able to take the boys to play there if they want to at some point, as it's our closest and a favourite). I just stood for a few moments and reflected on that awful evening (and remembered that when I turned to see dh in the back of the ambulance receiving cpr, I shouted, "Oh fuck!" loudly, before apologising for my bad language!) I'm sure it will never be easy to go there, but it can only get easier now I've made that initial visit. Just driving past on the main road reminds me of my crazy Bond girl driving that night (on the wrong side of the road - in the 30 mins since dh had gone to football, temporary traffic lights had been erected outside the park and there was a mile long queue. I decided I didn't have time to sit in it, bunged the hazard lights on and made my way carefully past all the standing traffic, much to the annoyance of the drivers I was passing).

OP posts:
saffronwblue · 04/06/2013 06:56

Survival you are very brave. That must have been so hard to go back to the park and relive that night.

Homebird8 · 04/06/2013 09:22

Wow, going back to the park must have been hard. Perhaps it will make it possible for you to take the boys there now.

From everything you tell us Survival, it sounds like you two would have moved heaven and earth for each other. It made me smile to think of you with your hazards on just doing what you had to do. I'm sure that whatever you have to do now you can draw on the strength the two of you had. Pop your hazards on and go for it.

FoxyRevenger · 06/06/2013 08:22

Survival, you're on my mind a lot, and your wee boys too.

I think you sound great; you could easily crumble but you're just not going to allow it, are you?

Going back to the park...that must have been so hard.

We are still here, you know, still thinking of you.

SurvivalOfTheUnfittest · 06/06/2013 23:50

Thank you. Will update tomorrow.

OP posts:
Homebird8 · 07/06/2013 01:59
Flowers
LeMousquetaireAnonyme · 07/06/2013 06:34

Thinking of you Thanks.
I agree that you should put your DS2 in pull ups for a bit of respite (for him and you).

SurvivalOfTheUnfittest · 09/06/2013 21:44

Thank you for your kind and positive words. I have no inention of crumbling, but I'm also going to try and forgive myself if/when I do. This has changed my perspective somewhat, and I am learning to forgive myself and give myself a bit of an easier ride.

Homebird I love your suggestion of popping my hazards on! Going for it, I am!

The boys had their initial heart screen tests on Thursday. Both echos were clear, as we expected them to be at this point. The ECGS say scary things across the top ('significant sinus arrhythmia' and 'abnormal ECG') but the consultant seemed to think this might be to do with the boys' age and the fact that the lady didn't put their ages into the machine. We have been referred straight onto our regional specialist cardiac team and their geneticists for good measure. The local man did confirm that this is not something to which I am going to get an answer next month, or next year, but something which is going to be part of our lives from now on. Quite how I get my head round that on my own (well, without dh, at least), I don't know.

The paediatrician did tell me that for people of our age (late 30s and older), a weekly dash at full speed around a football pitch/squash court etc.. with no underlying activity to develop fitness at other times is really not advisable. I have to say, I had repeatedly told dh this in recent months, without any medical knowledge to back it up, and he had told me to stop being daft. If I can write it here and can encourage anyone else to enjoy sport more sensibly, then that would be a great thing. I am also hoping to find a way of getting a screening session made available to dh's 5000 colleagues at work. I feel that this would be something good to come out of all this.

I had my own echo done on Friday and my heart looked good apparently. It was much less comfortable for me (with somewhat tender double D breasts to scan through/round!) than it was for my little boys. I did manage to reduce the two nurses to tears with our tale of the last couple of years!

The weekend has been a busy one. We attended the village church fete for an hour (which was hard, as I saw lots of people who wanted to tell me how sorry they are for our loss, and had to go back into the church where we held the funeral), and went to two barbeques as well. I've done the usual ironing and have almost finished ds2's photobook entitled 'my adventures with Daddy'. Ds1's book arrived on Friday and it's great. I will keep it hidden until i can given them both their books at the same time. I suspect they will be somewhat underwhelmed at the mo, but will appreciate them more as they get older. Hopefully, it will particularly help ds2, who's memory of dh might otherwise be a bit sketchy, due to his age.

Less tears this weekend, but I'm aware that Father's Day (and related activities at school) will make this a tricky week ahead.

OP posts:
JewelFairies · 09/06/2013 21:44

Survival, I hope your weekend has gone well. Thought of you a lot as I was in sole charge and will be for a few more days. I'm exhausted, and this is only a temporary thing and without the trauma of a bereavement. Hope you get a chance to take a little time for yourself now and then to recharge your batteries a bit. Brew Biscuit

JewelFairies · 09/06/2013 21:45

Oops, x post. Thanks