Nice to see this here

[scaryteacher]

Great to see that there is a section for those with auto immune disease; it feels quite lonely having one sometimes.

Hello! I have undifferentiated connective tissue disorder that affects my bowels, lungs, tendons/muscles & eyes. They don't quite know which label fits best as bloods are a bit odd. Also hypothyroid and the boring ones asthma & exzema. Currently on hydroxychloriquine as pregnant & dreading relapse after giving birth.

Howdy! I have Graves, normal for the last few months as pregnant with no.3 but Expecting a delightful post partum flare up in the next few weeks when baby is here! Nice to have a thread like this, I'll make sure I check in.

I am on my third AI disease

Is that a stealth boast Graves

Welcome to the thread.

Hi! I have Ulcerative Colitis. Currently mid flare up, having spent 4 days last week in hospital being given steroids/ IV drip. Oh the joys!

[Grin] No, hoping to stop at 3 Happy. Though, everything I've read seems to imply if you're diagnosed with one AI disease, you're likely to end up with others as time goes on. I would be interested to know if anyone spontaneously recovered from any of theirs?

Damn, can't even get the right!

I have Hashimoto's and DH has Crohn's.

We are riddled with auto-immune diseases and their buddy allergies in our family. So glad to see this here. As others have said it can be a lonely road. I have RA and would like a £ for every time I've been asked "ooh I've got that in my thumb, where's yours?" Er.... it's a systemic disease, everywhere, nowhere, comes and goes....

Exwife if you really want to scare people tell them you're on chemotherapy (which of course methotrexate is). One "friend" said to me "you take too many drugs" luckily a nurse friend quickly quipped: "She'd be crippled if she didn't!"
I tend to call Mx immune-suppressants or disease modifying drugs so as not to alarm people.

People have sometimes said 'Oh, I don't like taking lots of meds'. Yeah, must be nice to have a choice.

AuldHeathen: Quite!

Yeah - 'cos obviously you take all of those tablets for the fun of it don't you, Heathen?

Not me, but my two girls have auto immune diseases. The youngest has JIA and the eldest has Complex/Chronic Regional Pain Syndrome. Both diagnosed 10 years ago now within 6 months of each other, not connected, and two years apart in age.

The youngest is really struggling currently. Her meds aren't working, or causing bad side affects, so she has to come off them. She has been on MTX, Enbrel, Etanercept, Humira and the current one Tocc. About to come off that again due to severe stomach pains, so who knows what she will try next.

Hi all, I have hashimotos and some sort of arthritis I'm under a rheumatologist that can't quite make up their mind! Also got some weird thing going on with my hip.
Currently in the middle if a flare up so my joints are killing me especially feet, wrists and knees.
Sometimes in a morning when I wake up my arms and legs feel like I've almost got pins and needles and they feel really heavy and painful dies anyone else get this?

My RA started in January in both wrists, finally diagnosed the end of March. I've had a couple of short courses of steroids and docs appointment tomorrow to arrange starting methotrexate and folic acid, plus more bloods etc., I'm just glad things are moving on now, I do a manual job and it's been a struggle!
ELR , it takes me about 2 hours to get mobile in the morning, I have pain in knees and feet too . My wrists feel like lead weights in the morning, complete with stabbing pains in wrists. It takes a while for the ibuprofen to kick in , and that only takes the edge off it!
Good luck to everyone struggling with these diseases :-)

Hashimoto's, coeliac and have had a few episodes of autoimmune hepatitis. Rheumatology are monitoring joint pain, pins & needles, swelling and rashes; possibly lupus but they haven't decided yet.

Hi all. Crohn's here - diagnosed 20 years ago this year (my god that makes me feel old!). I'm currently on Humira which I seem to be tolerating well and has dealt with my most recent flare up. Hope it keeps working as the only option after this is surgery.

Anti phospholipid syndrome (Hughes syndrome) here. I'm only on aspirin at the moment, fatigue is my biggest problem now I am no longer ttc.

I feel like a bit of a fraud here

Sometimes in a morning when I wake up my arms and legs feel like I've almost got pins and needles and they feel really heavy and painful dies anyone else get this

Yes, in the morning and last thing at night. It's really weird and scary- I keep thinking I have MS.

And I have just checked my hospital letter - I have limited systemic scleroderma. Perhaps fuckwittedness is also an AI condition

Pins and needles and numbness in extremities can be a sign of B12 deficiency.

I have Crohns, joint hypermobility/EDS and now either PsA or enteropathis arthritis. On sulfasalazine and have to decide whether to add methotrexate. How bad are side effects from methotrexate?

Also looking like I'm about to lise my job due to arthritis.

Hi, Lupus here 😊

RA and Fibromyalgia for me. Currently taken off all RA meds as clinically inflammation free but pain is really bad. Trying to get by on codeine until rheumatology appointment in June. Sorry for you all suffering too.

Do not know if I should be posting here but Dd 11 has hypogammaglobuliineamia. She is treated with IVG weekly subcutaneous infusions. Her main problem is frequent diarrhoea and diversion colitis, she has a colostomy. She also requires steroid enemas. Life is fun in our house!

Hi, I have fibromyalgia and being investigated for lupus. My inflammatory indicator is high and has been getting higher with each blood test for the past year. Waiting on results from rheumy for 5 weeks so far. I've chased it 4 times so far and was promised a call back last Thursday and not heard anything. I'm guessing its good news as presumably I'd have heard if anything else. I'm just in so much more pain I need to know so I can sort that out. I hate waiting!