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Support thread for women who are pregnant or TTC after a termination for abnormalities 4

800 replies

NatzCNL · 12/02/2012 20:26

Welcome to the newest thread of support for those ladies who are pregnant or trying to concieve after terminating for abnormalities. Since this thread first began there have been stories of heart break, sadness and fear, but from these stories there have also been stories of happiness, success and most importantly, hope. Here they are, our thread babies, and may the list continue to grow:

Mishtabel - Bella 22/01/10
Linspins ? Franklin 22/01/10
Shangrila ? baby boy 01/02/10
Can'tdothisagain ? Babycan't 12/04/10
Katerina100 ? baby boy 06/10
NumptyMum - Josie 28/06/10
Allstarsprincess ? Frank 30/07/10
Katiecubs - Felix 13/08/10
GinaFB ? Alexander 03/01/11
LittlePoot - Jacob 02/02/11
Coffeeandchocolate ? Coffeebean 22/02/11
Rushingrachel ? Oliver 02/03/11
Crazycatlady - Lawrence 08/03/11
Dramamama - Isabella 13/03/11
VivClicquot - Phoebe 28/04/11
Lisbeth Salander - baby boy 7/11
Stormbird ? George 24/07/11
Sarahmia ? baby girl 25/07/11
Eavers ? Jacob 11/08/11
Grandj ? Eliot 01/09/11
Babylily ? Miles 05/09/11
NatzCNL - Sienna 26/09/11
Manitz - Sacha 28/09/11
Cherrybug ? Kade 02/11/11
Ghislaine - Charles 14/01/12
Mrsbigz - Callum 19/01/12
MyangelAva - Isabella 21/1/12
Bezzyk - Minibez II 2/2/12

OP posts:
AliBingo · 08/04/2014 16:22

Nice to hear from some "older ladies" who have come out the other side.

DrSpengler, welcome to the thread, glad you found us! Only just over a week to go until your scan, hope the time passes quickly.

I am now 38 weeks, and I can't wait to have baby in my arms, only then will I believe everything is ok. (On the other hand I'd quite like him to be on time or late as I am nowhere near ready!)

Hope everyone else doing ok, it's been quite quiet here lately...

lostlove · 18/04/2014 15:58

It has been quiet on here, hasn't it? Hope everyone is well.

Nessalina, so pleased to hear your news. How's it going?

Lucky, I did go away and read up on Pentasomy X. My own feeling (but I'm in no way qualified to have an opinion!) is that you'd be very unlucky to suffer a recurrence of the condition; otherwise surely more siblings within families would be affected and there would be more than a handful of cases worldwide?

We have a fifty fifty chance of recurrence with each pregnancy if we conceive naturally so from my perspective very unlikely seems pretty good, but I do understand, it's still a scary path to start down.

For me, the only way to deal with it is just to keep on keeping on, one day at a time. There's no getting away from the fact that it's a huge worry until you get a clear result and, to be honest, for me (and most women on here, seemingly) it doesn't end there because it's hard to experience pregnancy in a carefree way once you've had such a difficult experience. But you've got to do what you've got to do.

Bitch, so sorry for the experience that has brought you here. For what it's worth, I think your reaction is not at all crazy. Some people may cope differently to you, but what you describe sounds pretty normal to me. It will be hard for your mum to see you so worried; I'm sure she doesn't mean to come across as unsympathetic.

Natz, what a thoughtful post, thank you. Sorry to hear that you've been having a difficult year, but your post is testament to the strength and resolve necessary to get through the very worst of times.

Ghislaine, glad to hear that you feel able to take another step. I think we often expect too much of ourselves. The grief can take a long time to work through and it's so important not to rush it.

mrsbigz, you are so right, that's one of the things about parenthood. One takes those decisions, takes the pain and ultimately, one is glad to do so to shelter and protect those one loves most, including those much-loved lost babies.

Welcome to the thread, DrS. I hope the scan on Wednesday was all good.

I'm happy to be able to share the news that I gave birth to our new baby, a little boy, last weekend. DD was overjoyed to meet her brother at last.

When I come back into the room and see him I keep having this "Oh my, hello!" feeling, as if it hasn't quite sunk in that he's here and I can hold him and kiss him. I don't think I quite believed it would ever happen. He's gorgeous.

I had a bit of a near meltdown when I was in labour. The contractions stopped on the way to hospital and then I started to worry that I hadn't felt the baby move, which was true but only for about twenty minutes so actually totally normal. I eventually had more contractions in the labour ward waiting area with DP holding me up, tears running down my face because I was so scared I'd lost the baby at the very last; all the fear and grief came flooding back. I felt movement again soon after and got triaged quickly, hearing the heartbeat, which was such a relief.

The fact that the last bit of labour was so quick and painful was a blessing; I didn't have the space to worry about anything!

Anyway, enough about me Smile

Ali, please keep us updated how you are doing - I'll be thinking of you and wishing you well.

Love and Thanks to all xxx

LuckyAugust · 18/04/2014 17:22

Congratulations on your new son Lostlove- such fantastic news. Thank you for reading about Penta X - sometimes I feel so alone because it is such a rare disorder. I do really appreciate you taking the time to read about it and I agree with you- I know it does happen but the chances of it happening again are hopefully low. We are officially ttc again now so fingers crossed it happens again soon. I'll be a nervous wreck if/when it does but I have to try. Thank you again and enjoy your precious children x Smile

lostlove · 18/04/2014 20:32

Thanks so much, Lucky - they do feel very precious indeed. I am feeling so grateful!

I wish you all the very best of luck with your journey and remember we're here to listen and hold your hand.

Hanzym · 03/05/2014 09:09

Hi everyone, I just found out this morning that I am 4 weeks pregnant after I had a termination in January due to genetic problems.
I am over the moon and so excited but also so scared! We have to have an 8 week scan to confirm how far along we are so we can have a cvs at 11 weeks. I'm very nervous of this and just wanted someone to talk to!

LuckyAugust · 03/05/2014 09:42

Congratulations Hanzym thats fantastic news. We terminated in February due to a chromosome disorder and now in the 2 week wait of our first month trying to conceive again (fingers crossed Hmm ). Wishing you a healthy and happy pregnancy

Hanzym · 04/05/2014 08:22

Thanks LuckyAugust, it was hard to wait the full 2 months and I feel so lucky that we fell the first month, fingers crossed for you Smile

Monten · 05/05/2014 18:55

Hi everyone, hope everyone has had a lovely bank hol. I haven't posted on here in a while but it was a complete lifeline when I terminated for an Edwards diagnosis in January.

Hanzym I just had to get in touch to say congratulations, I remember we were going through it all at roughly the same time. And guess what? I found out this morning that I am pregnant too! 4-5 weeks. So excited and also relieved. Today I am pregnant. Tomorrow I am sure the worry will start.....but today I am trying it just be happy!

I think I'm going to speak to my midwife about the Harmony test, has anyone on here had it? I know there's a big long thread about it so I will check that out.

alibingo I hope you have your baby in your arms by now, you were so lovely to me when I was going through it all

Monten · 05/05/2014 18:57

Oh and good luck luckyaugust - I know how overwhelming the desire to be pregnant is. Fingers crossed for you.

LuckyAugust · 05/05/2014 19:20

Thanks Monten and a huge congratulations to you too x

Hanzym · 07/05/2014 23:07

Ahhhhhhh Monten that's fantastic news! Congratulations xx

Nessalina · 08/05/2014 10:10

Hi all Smile
Congrats MontenGrin How exciting!
Things are going well here, had our 12 week scan and everything looks fine, thank goodness! I was absolutely petrified, and the consultant wasn't very sympathetic ( she was like 'Hmm you know that Turner's almost never reoccurs' - um yeah, but we'd still like to check please!!) but all ok in the end.
We decided to have the NIFTY test which is virtually the same as harmony, and our NHS hospital has just started offering it for £200 which is much cheaper than privately. So we're in the TWW for that now!

Chunkymonkey72 · 09/05/2014 12:59

I felt the need to pop on here today to some reason. We said goodbye to our little girl in November 2011 and I lurked on here a lot gaining comfort from other posters words. We now have another little girl who we all adore but will never forget. Some days the pain is as raw as ever but i am thankful for the two children I have here and my angel baby. I wish all of you new people on here the very best and thank the older posters for helping me without even realising it. X

Chunkymonkey72 · 09/05/2014 13:01

This reply has been deleted

Message withdrawn at poster's request.

Monten · 09/05/2014 23:04

ChunkyMonkey - thanks for saying hello. So nice to hear happy endings. This forum was a lifeline for me too when I felt so scared.

Nessalina - congrats and fantastic news on your scan! What huge relief. Sorry the consultant was horrible - I really don't get the 'its unlikely to happen twice' rationale. Well yes, but if you look at it another way it is just as likely to happen again this time. The two occurrences are statistically unrelated!

That's very interesting about the Nifty. £200 is certainly less eyebrow raising. I haven't booked in with midwives yet but when I do will ask about that. My hospital is Kings so you'd think they'd offer it saying as they pioneered the bloody thing in the UK.

Were you offered any more scans than normal?

AliBingo · 10/05/2014 19:51

Congrats Lostlove on your son's arrival, great news.

Congrats also to Hanzym and Monten on your BFPs!

Monten, I had the Harmony test with my T21 pregnancy, I am glad I did because it's so much more accurate than the quad test and nuchal fold test. Unfortunately we got bad results, and then I was strongly advised to have a CVS to confirm the result for sure. I was pleased with the Harmony test because it was easy and non-invasive, the drawbacks being the price and the long wait. Mine had to be redone too as the first sample was no good, which meant an even longer wait.

Nessalina great to hear you have had your 12 week scan, and I hope the NIFTY wait flies by, it will be such a relief to get the results and I am sure you will be fine.

I was just popping on here to report that my son finally arrived a few days ago, 12 days late, and he is perfect! I am still in a bit of a daze and can't really believe he is here and ok! I had a bit of a traumatic time with the birth because I was induced then had a fast labour (less than 90 minutes) and the midwives told me I wasn't in labour then 20 minutes later rushed me down to the delivery suite, then baby arrived so fast after that that my husband missed it (induction took days with DD so he was home with her and I was to ring him when in labour), I was petrified and in so much pain I didn't really know what was going on, which has added to the unreal feeling that I have at the moment I think! I have been feeling quite emotional about the son I lost, and it's weird because if I had had him, then I wouldn't have this baby, so it's quite a mixed emotion really. Anyway I am very sleep-deprived so probably not making much sense so will leave it there for now!

lostlove · 11/05/2014 00:02

Great news about your pregnancies, Hanzym and Monten!

Nessalina, so pleased to hear all was well at the 12-week scan. I'm sure the NIFTY test will be fine, too Smile but I'll keep everything crossed for you anyway.

Chunky, it's good to hear from another who has come through it all. Thanks for posting.

And Ali, I've been checking regularly for an update! Thrilled to hear your news. Congratulations Thanks 2014 is like the total opposite of 2013, isn't it!

Hope you get some decent sleep soon Smile

lostlove · 11/05/2014 00:10

Gosh, 12 days late - I thought you wrote 12 days ago!

Well, you did say you weren't quite ready Grin

Monten · 11/05/2014 10:08

Congratulations Alibingo - what lovely news! Sounds like after taking his time he then decided he was in quite a hurry!

I completely understand what you said at then about not having this baby if that hadn't happened. I've already been trying to comfort myself with the thought that I will love the baby I do have (please please please) so much and I would never have had him/her if I hadn't had my Edwards baby.

I'm going to call the midwives Monday and will ask about extra scans and the Harmony. I just think, unless my risk comes back incredibly low, which its unlikely to given my age (36) and previous history, then I will need to know for sure one way or the other. I've been the 1 in xx before.

Congrats on your lovely new baby xxx

Nessalina · 11/05/2014 11:35

Great news Ali! Sounds like a scary experience, but I hope it all fades now you've got your little one! Smile

Monten I'd be surprised if they don't, but I reckon you'd have to ask. Our consultant really sidled round the issue and I don't think they're allowed to sort of directly promote it in case people think they're recommending it, and they get into a 'NHS tells pregnant women to pay for better test' sort of scenarios. Agreed though, £200 is much less eyewatering!!

It is a good thought, the whole idea that this new baby would never have been brought about had our last one not had issues. I can't help but feel that I really want this one to be a girl to somehow 'make up' for the one we lost... I feel panicky that that was our only opportunity to have a girl... But that's silly isn't it? This baby is going to be it's own wonderful self, whether it's a boy or a girl Smile

Monten · 11/05/2014 22:13

Hi Nessalina - I totally understand what you mean. Mine was a boy and if this ones a girl I worry I'll feel I 'need' a boy. I'm sure we'll forget all about that when they come Smile

Marma1ad3 · 19/05/2014 18:59

Hi Monten! I think our paths crossed when we got our results. It's nice we are both in here now :)

I got a positive test today. Am absolutely bricking it :(

Monten · 19/05/2014 21:03

Aaahhh Marma1ad3 - that's amazing news! Many congrats, fantastic.

I know what you mean about bricking it. I feel completely different this time which makes me feel better but every time I think of the scan I feel sick.

Will you have any extra testing do you think? I'm in two minds. The date for my nhs nuchal has come through and I will be 11w3 so I probably wouldn't have Harmony results by then anyway (earliest you can get it done is 10w). Just can't decide

Monten · 19/05/2014 21:04

Sorry posted too soon! Anyway, huge congratulations to you, wishing you a happy and healthy rest of pregancy xx

Marma1ad3 · 19/05/2014 21:12

You too, hope we have a better outcome this time. X

I'm taking the NIPT blood test for sure. Not leaving anything to chance again. Last time they couldn't do nuchal measurement, not taking that chance again!!