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PIP isn't fit for purpose

1000 replies

Ljcrow · 14/10/2026 09:01

I made this comment on another thread and thought I'd start a separate thread purely on this topic. This is all from my own personal experience rather than from reading/hearing anything, I'm only going off what I see day to day.
The people I know who claim PIP do not need it financially. One works full time and earns more than me (and I'm not at imminent risk of homelessness or starvation) and the young people I know literally tell me things like their PIP's come in so they're off to get a new tattoo, which they then do. They appear to have much more disposable income than me.
These are all people who can function in society by the way and as far as I can see, all PIP does is give them extra spending money, which I'm sure we'd all like.

I'm aware this won't be the case for everyone who recieves PIP but it is for the people I come into regular contact with. Which is why it needs reloooking at so it only goes to those who actually need the money for a specific purpose related to their disability.

We're not in a position as a society where we can afford to give people money who do not actually need it.
Things like this should be means tested, both in terms of whether people have enough income to live a decent life without additional benefits and in terms of what the money is actually going to be used for.
PIP is not fit for purpose and needs scrapping or totally changing.

OP posts:
walrushurricane · 14/10/2026 18:21

ThreadGuardDog · 14/10/2026 18:21

So why haven’t you reported them ?

They are dead

x2boys · 14/10/2026 18:23

Boomer55 · 14/10/2026 18:13

Yes, I’ve done a lot of voluntary work, and what you’re saying is right. But, it also has to be said, some people do manage to scam the system. 🤷‍♀️

But, the last time I had to renew my DLA, I sent a virtual parcel of medical stuff - I have physical problems. So, fully documented with scans, consultants reports etc etc .

At that point they realised my condition just could not cure itself, and put me on a lifetime award.

The government have said they intend to review and tighten the criteria for things like ADHD, plus mental health issues, so I don’t know what’ll happen with all that. 🤷‍♀️

I suppose thats why it goes on need
ADHD ,Autism and mental health conditons can be variable for some people
Bur for others like my son hes always going to need a high level of care hes not going to wake up one day and suddunly be able to talk and be independent

ChunkyMonkey36 · 14/10/2026 18:38

walrushurricane · 14/10/2026 18:21

They are dead

Oh. Questioning the benefit claims of the dead.

Cool.

Constantrunner · 14/10/2026 18:41

Nottodaybob · 14/10/2026 17:50

Yes, and that can be appropriate depending on the situation. If they can't use public transport or need support to manage danger awareness etc.

Not being able to use public transport is not a criteria for pip if you have a physical disability though. Why should it count for other types of disabilities?

ThreadGuardDog · 14/10/2026 18:41

Boomer55 · 14/10/2026 17:16

Yeah. The ‘mass’ migration to PIP has never happened around here. I think it might if a person needs a review, but not with the old DLA life awards. Probably because the backlogs are bad enough now. 🤷‍♀️

But, yes, I’m not letting everything go because of my health problems.

Whatever I use my DLA for has sod all to do with others - overall, I cost very little for the state. 😉

When PIP was introduced in 2013 there was a cut off date for migration to DLA for claimants who would reach retirement age before a certain date (can’t remember what it was) as long as the DLA award didn’t run out before then. The justification was that PIP is a working age benefit and it would eventually have parked too many retired people on it. There were a lot of people who qualified. Those with life awards were migrated to PIP if they didn’t meet this rule.

DLA to PIP managed migration was paused for a time. There are still around 150,000 adult DLA claims awaiting migration and DWP restarted the process last month with a test roll out of 3000 random selections. The final numbers are expected to be transferred to PIP by April 2028.

walrushurricane · 14/10/2026 18:41

ChunkyMonkey36 · 14/10/2026 18:38

Oh. Questioning the benefit claims of the dead.

Cool.

I am not questioning the benefit claims. I know the facts.

Constantrunner · 14/10/2026 18:42

And you don't get attendance allowance, the retirement age disability benefit, for mobility.

ChunkyMonkey36 · 14/10/2026 18:43

walrushurricane · 14/10/2026 18:41

I am not questioning the benefit claims. I know the facts.

Well yes, but you are now essentially calling dead people benefit cheats.

Gross.

Dontcallmescarface · 14/10/2026 18:45

walrushurricane · 14/10/2026 18:41

I am not questioning the benefit claims. I know the facts.

Well they're not "cheating the system" now are they, so every cloud and all that.

Nottodaybob · 14/10/2026 18:46

Constantrunner · 14/10/2026 18:41

Not being able to use public transport is not a criteria for pip if you have a physical disability though. Why should it count for other types of disabilities?

No, it's planning and following a journey that is assessed. Ability to use public transport would come in to that - if you can't interpret a bus time timetable or navigate a train station, get off the train at the right stop etc due to a mental impairment, that qualifies.

LilyBunch25 · 14/10/2026 18:47

Greenfishy · 14/10/2026 09:15

I also know someone who gets PIP for their child and then doesn’t spend it on anything to help the child - who does have genuine issues and would benefit from extra therapies etc.

People should have to provide receipts.

Up to 16 this would be DLA not PIP. PIP over 16, so is it a young child..?
And how do you know what they do or don't spend it on? Do you have access to their bank statements and cameras installed in their home?

walrushurricane · 14/10/2026 18:48

ChunkyMonkey36 · 14/10/2026 18:43

Well yes, but you are now essentially calling dead people benefit cheats.

Gross.

I am not calling "dead people" benefit cheats. I am answering a question on why I did not report them. The answer is I didn't know until after they died.

Constantrunner · 14/10/2026 18:49

Sconefuddled · 14/10/2026 18:00

There was a court case which resulted in the, to me very reasonable, decision that you can’t discriminated against physical and mental illness this higher rate with mobility can be awarded to anyone ill enough.

I do think there is an issue with the support for young people specifically and an issue where instead of the support they need m, young people who struggle because of their adhd or autism are transferred their pip at 16. I have seen addicts made by this decision which is increasing vulnerability rather than decreasing it. I work with this group so see more young pip claimants than average. I think there is a further problem with the lack of funding for people who need more care still, people for whom pip doesn’t touch the sides.

I didn't know about that court case thanks. It's actually harder to get pip for physical disabilities than for mental health or ADHD and autism.

I agree pip is not the right approach for young people. And for people with severe complex needs, I agree pip does not meet needs.

It irritates me all these people talking about using pip for example to have a tattoo to improve their mental health, when someone with a severe physical disability does not get enough money to pay for carers for any kind of social life. You get basic care. Four visits a day maximum to clean, dress and feed you.

FourFruitSalads · 14/10/2026 18:50

You don’t ‘think’ you have to provide evidence? So you know nothing about how the assessment for PIP works yet are here making wild claims anyway?

Legally you don't have to provide evidence but it helps. I do know how it works. My daughter gets pip. I had to fill in the forms because she can't speak let alone fill forms in. Probably made it easier to fill in though, I'll grant you that.

Constantrunner · 14/10/2026 18:51

Nottodaybob · 14/10/2026 18:46

No, it's planning and following a journey that is assessed. Ability to use public transport would come in to that - if you can't interpret a bus time timetable or navigate a train station, get off the train at the right stop etc due to a mental impairment, that qualifies.

Okay. But the inability to plan a journey is not simply for those with a severe learning disability who always need a carer. People get it for anxiety or ADHD saying they get confused and anxious,

ThreadGuardDog · 14/10/2026 18:52

Constantrunner · 14/10/2026 18:41

Not being able to use public transport is not a criteria for pip if you have a physical disability though. Why should it count for other types of disabilities?

The ability to use public transport or otherwise is only considered for Activity 1 - planning and following journeys. It assesses whether you could successfully plan a route using public transport and get from A to B safely, rather than whether you can actually use public transport in the context of getting on and off buses, or mobilising between bus stops for example. It’s specific to cognition and capacity.

walrushurricane · 14/10/2026 18:53

Constantrunner · 14/10/2026 18:51

Okay. But the inability to plan a journey is not simply for those with a severe learning disability who always need a carer. People get it for anxiety or ADHD saying they get confused and anxious,

Exactly and quite easy to lie about that.

FourFruitSalads · 14/10/2026 18:54

But you need to back up what you're saying with evidence

Maybe he used some medical evidence from before his knee op. I don't know.
What I do know is that he freely admits he majorly exaggerated his condition.
He's pleased with himself. I made it clear I disapproved. That was it.

Tri483 · 14/10/2026 18:54

walrushurricane · 14/10/2026 18:53

Exactly and quite easy to lie about that.

Edited

They need evidence!!

JoannCourcyIveGotThePowerNSoul · 14/10/2026 18:54

🥱🥱🥱done to death.
Boring AF.

ktopfwcv · 14/10/2026 18:55

There's no requirement to be "financially in need" of PIP. Not reading the rest.
Get a grip.

keepingitclean · 14/10/2026 18:57

FourFruitSalads · 14/10/2026 18:50

You don’t ‘think’ you have to provide evidence? So you know nothing about how the assessment for PIP works yet are here making wild claims anyway?

Legally you don't have to provide evidence but it helps. I do know how it works. My daughter gets pip. I had to fill in the forms because she can't speak let alone fill forms in. Probably made it easier to fill in though, I'll grant you that.

Nobody is getting awarded PIP without evidence. The ‘legally’ you don’t need it is a weird take, nobody is suggesting it’s illegal to apply without evidence, simply that people with zero evidence will not be awarded.

Constantrunner · 14/10/2026 18:58

Tri483 · 14/10/2026 18:54

They need evidence!!

You mean what they tell their gp or mental health support worker?

walrushurricane · 14/10/2026 18:58

Tri483 · 14/10/2026 18:54

They need evidence!!

So what would the evidence be beyond telling their GP or other Healthcare professional.

KpkWa · 14/10/2026 18:59

Why do much hatred for the disabled?

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