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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to decline social invitations when masking leaves me physically unwell?

132 replies

RiojaNcheese · 04/04/2026 20:06

Can anyone comment please...severe hystamine reaction to people! Eek. Peri menopause has whacked me over the head and
then ever since an Audhd diag, I've been more mindful of my physical health & mental health.

For a long time Iv'e taken pain meds as well to combat nerve pain, but decided to wean off a year ago, up certain supplements, increase water etc. (Nothing complicated, just standard stuff) Since then, along with a better understanding of social burnout etc I have noticed visceral reactions to others😬 It's horrific trying to hide it as essentially I'm quite mild (I have a job that impacts massively) and this takes up more social battery than before.

Outside of this I am no longer willing to sacrifice my health to people please but it's impacting my ability to appear polite!😬 but i also dont want to be toxic myself by acting like a wally and isolating myself!!

I quite look forward to going out sometimes and have a kind, thoughtful husband who is trying to understand...im trying not to be a pain or to come accross as rude but i increasingly don't like people.😔
All of a sudden over the past year i notice;
Any sort of cattiness, any entitled behaviour that puts anyone else down, anyone false or with ill intent seems to JUMP out at me in a room. I have no idea what's happened but it's like I've had my eyes opened and I now can't "unsee". It literally waves over me.

It's so stark that I now have hystamine reactions a few hours after social situations where I am having to mask / listen to others talking incessantly about themselves...
The thing is I used to be fine with it. I don't want to talk about myself anyway, so im totally fine asking questions and I'd get by with making a fuss of others (i used to anyway...)

I had to attend a "do" a while ago and of course was polite & doing the social thing but the following morning out the blue, I suffered an allergic reaction, head thumping, bright red purple neck and dizzy.. and fainted. It was terrifying.
It's not linked to food as I hadn't eaten and not alcohol related.
I've had the a similar reaction, bright, hot neck flush, itchy lips, dizzy, thumping head then horrific tummy cramps for a few hours, after every social situation that has meant me masking.
I hadn't thought about there being a link so its not psychosymatic.

I was out last night,had one drink, felt relaxed until my partner's friends joined us unexpectedly. Admittedly, the pub was very busy and there were lots of older teens so some erratic squeels and shouty behaviour🤣 but it was good natured and didnt feel threatening, but after about 60 mins of the other couple talking about various high brow experiences they had paid for over the years and lots of holiday snaps of expensive holidays and comments about the locals being rather poor...😳 i didnt want to over think it because everyone is different and they have the right to their opinion but the odd comment was jarring me horribly😮‍💨..i started to feel dizzy and exhausted. Smiling through it, i realised my face was starting to flush and my neck and inside of my mouth was itchy.
I wasn't breathless or panicky...but I did not wsnt to be there anymore.

I was deffo making other couple feel "off" and in the end i excused myself saying i had ear ache and a headache from it and i sat upstairs in the smoking area for 20 mins just to be somewhere quiet.

I was desperate not to appear rude. I was trying so hard for my husband, but I have now, for giving those few hours yesterday...spent today polaxed.
I don't want to offend anyone, I dont want to be rude etc but I see the world very differently the last 12months and I don't quite know how to convince my body not to freak out in front of other humans.
I could quite happily cut out about 80% of the people i know and never see them again but know this isnt reasoanable of me.
I am wondering weather, for my own sanity and so as not to cause my husband embarrassment.im wondering weatjer to simply decline social invites..
Help please..😵‍💫

OP posts:
Thread gallery
6
SentFromIpheon · 05/04/2026 15:03

CharlotteRumpling · 04/04/2026 20:21

I would find it hard to be around someone who doesn't want to talk about themselves, but also doesn't want me to talk about myself, and is screening me for any sign of cattiness, entitlement, ill intent blah blah..
What are we meant to talk about?

It's possible everyone will be relieved if you don't go to these events.
.

Same. You sound like hard work OP and i wouldn't want to hang around with someone like you. Over competing situations like this sounds exhausting.

Lifestooshort71 · 05/04/2026 15:24

I don't understand your problem. You don't like mixing with other people (I'm ignoring all the quasi mumbo jumbo) - so don't accept the invites and stay at home. Presumably your husband has no problem with all this angst and introspection but he might be happier to go on his own? Do you work? Do you have to mix with people at work? How do you cope with people on a day-to-day basis?

Justnetballandcoffee · 05/04/2026 15:30

Your post is a bit too long for me to digest but I think some of the detail is irrelevant (kindly) as the bottom line is of course YANBU to decline social invitations. Even health aside (and I must be honest I don't understand the histamine reaction thing) if you don't enjoy something then you don't have to do it. I am also autistic and struggle with social situations, social battery, (a bit like you) noticing certain behaviours and having low tolerance... I say no more now. If I don't want to do it then I don't for the most part.

fairylightsanon · 05/04/2026 15:52

DollyPinkdaydream2 · 05/04/2026 15:00

Exactly. I’ve heard it all now. Allergic to exercise? For crying out loud…No wonder the NHS is on the verge of collapse.

I am…. If you want to look it up it’s called cholinergic urticaria. Technically it’s an allergic to temperature change and sweat

fairylightsanon · 05/04/2026 15:54

Whatsnextforbea · 05/04/2026 14:27

I can categorically tell you that you are NOT allergic to exercise

Great, go tell dermatology that and they can stop prescribing my £6000 injections
https://en.wikipedia.org/wiki/Cholinergic_urticaria

note I didn’t say I DON’T exercise, but I have to have treatment in order to be able to

AIBU to decline social invitations when masking leaves me physically unwell?
AIBU to decline social invitations when masking leaves me physically unwell?
fairylightsanon · 05/04/2026 15:57

You can also have exercise induced anaphylaxis so I wish people would use Google and their brain before making fucking snarky comments about obesity, and try exercising with their lips swelling up and thousands of hives all over them including the soles of feet and hands

https://pmc.ncbi.nlm.nih.gov/articles/PMC8995004/

https://www.narf.org.uk/blog/2022/10/13/allergic-to-exercise

Allergic to Exercise? — The Natasha Allergy Research Foundation

Ever heard someone say they are allergic to exercise? For most people, the comment would be seen as a joke, but it is actually a real and serious condition!

https://www.narf.org.uk/blog/2022/10/13/allergic-to-exercise

intrepidpanda · 05/04/2026 15:58

If you want to go out/see someone then go ahead. If you dont that's fine too.
If you want to go home halfway through the night you are perfectly at liberty to do that too.
However nobody (not you or those around you) needs the masking social anxiety drama. Not feeling comfortable does not need a psychological diagnosis.

Whatsnextforbea · 05/04/2026 15:59

fairylightsanon · 05/04/2026 15:57

You can also have exercise induced anaphylaxis so I wish people would use Google and their brain before making fucking snarky comments about obesity, and try exercising with their lips swelling up and thousands of hives all over them including the soles of feet and hands

https://pmc.ncbi.nlm.nih.gov/articles/PMC8995004/

https://www.narf.org.uk/blog/2022/10/13/allergic-to-exercise

If you were truly allergic you wouldn’t yoga, weights and biking and “love it”!!

Whatsnextforbea · 05/04/2026 16:00

fairylightsanon · 05/04/2026 15:54

Great, go tell dermatology that and they can stop prescribing my £6000 injections
https://en.wikipedia.org/wiki/Cholinergic_urticaria

note I didn’t say I DON’T exercise, but I have to have treatment in order to be able to

That’s isn’t an “allergy”. You are not “allergic to exercise”

fairylightsanon · 05/04/2026 16:03

Whatsnextforbea · 05/04/2026 15:59

If you were truly allergic you wouldn’t yoga, weights and biking and “love it”!!

Yes that’s because I take 4 antihistamines a day and an off licence drug called Xolair
I name change so here’s the thread where I got prescribed the drug
i don’t know what else you call it when you break out in hives, your lips swell up and you get angioedema from exercise

https://www.mumsnet.com/talk/_chat/4071613-can-i-share-my-joy?

Can I share my joy? | Mumsnet

I've suffered from hives/urticaria for the past 23 years, and been unable to exercise/walk/get my HR up/wear a coat(!) for the past few years they've...

https://www.mumsnet.com/talk/_chat/4071613-can-i-share-my-joy?utm_campaign=thread&utm_medium=app_share

Manicmondayss · 05/04/2026 16:04

Stay in. It’s better for everyone

fairylightsanon · 05/04/2026 16:05

Whatsnextforbea · 05/04/2026 16:00

That’s isn’t an “allergy”. You are not “allergic to exercise”

Edited

I don’t know what else I can point out except that I have cholinergic urticaria, exercise induced angioedema and I’ve been under the urticaria specialist at Salford since I was 12. I’ve linked to medical studies and had to give up PE as a child as it was uncontrollable and ended up in a&e many times

Whatsnextforbea · 05/04/2026 16:08

fairylightsanon · 05/04/2026 16:05

I don’t know what else I can point out except that I have cholinergic urticaria, exercise induced angioedema and I’ve been under the urticaria specialist at Salford since I was 12. I’ve linked to medical studies and had to give up PE as a child as it was uncontrollable and ended up in a&e many times

You are not allergic to exercise

The condition is caused by an overreaction of the immune system to the release of histamine and other chemicals in response to the increase in body temperature. This results in the characteristic red, itchy, and sometimes raised bumps or welts on the skin that are associated with hives.

Whatsnextforbea · 05/04/2026 16:08

The is from the link you sent me btw

Whatsnextforbea · 05/04/2026 16:09

Avoidance of exercise is the mainstay of prophylactic treatment for this condition.

so why do you continue with weights, biking and yoga? Genuine question.

CurlewKate · 05/04/2026 16:11

You’re not being unreasonable- but it sounds a pretty sad way to live. I realise that therapy’s expensive-but it that something you could think about?

fairylightsanon · 05/04/2026 16:12

Whatsnextforbea · 05/04/2026 16:08

The is from the link you sent me btw

Yes, the increase in body temperature. Which happens when you exercise… you can’t exercise without getting warm. But it also happens to me without my body temperature massively increasing such as swimming or deliberately exercising in air conditioning

mine is complex as I also get angioedema and have previously had lip/mouth swelling so it’s not just cholinergic

it was tested via a treadmill and I was unable to exercise for the best part of a decade. I am currently fully under control but if I come off my injections, I cannot exercise or I start swelling up with the hives

Whatsnextforbea · 05/04/2026 16:13

fairylightsanon · 05/04/2026 16:12

Yes, the increase in body temperature. Which happens when you exercise… you can’t exercise without getting warm. But it also happens to me without my body temperature massively increasing such as swimming or deliberately exercising in air conditioning

mine is complex as I also get angioedema and have previously had lip/mouth swelling so it’s not just cholinergic

it was tested via a treadmill and I was unable to exercise for the best part of a decade. I am currently fully under control but if I come off my injections, I cannot exercise or I start swelling up with the hives

But that means you can’t go to a warm country
can’t sit by the pool in a hot country doing nothing but reading

all without getting this reaction?

fairylightsanon · 05/04/2026 16:14

Whatsnextforbea · 05/04/2026 16:09

Avoidance of exercise is the mainstay of prophylactic treatment for this condition.

so why do you continue with weights, biking and yoga? Genuine question.

Because I adore exercise? I am miserable without it
but I also react in a hot bath, wearing a coat, in summer, going for a walk. Without medication I can’t move and am virtually housebound
The treatment has also been tested for food allergies and is being brought out for that now

fairylightsanon · 05/04/2026 16:15

Whatsnextforbea · 05/04/2026 16:13

But that means you can’t go to a warm country
can’t sit by the pool in a hot country doing nothing but reading

all without getting this reaction?

Exactly! If you read my previous thread that’s how it was. Hot weather is slightly different. The worst is CHANGE of temp so exercise is the main trigger
so running in winter was an absolute no. Sitting still in summer isn’t quite as bad as you’re already warm
but no, I haven’t been abroad anywhere warm since I was diagnosed at 12

Whatsnextforbea · 05/04/2026 16:17
  • *Cholinergic urticaria – This occurs under conditions that cause sweating, such as exertion, heat, emotional stress or eating spicy food. Within minutes, small itchy bumps with redness appear, usually on the upper part of the body but they may be widespread. The weals last for less than an hour, but in severe cases may join together to form larger swellings. Antihistamines usually help. They may be taken an hour or two before a triggering event (e.g. exercise) if these are infrequent.*

it is a reaction. As per British asso of dermatology. Not an “allergy to exercise”

fairylightsanon · 05/04/2026 16:20

Whatsnextforbea · 05/04/2026 16:17

  • *Cholinergic urticaria – This occurs under conditions that cause sweating, such as exertion, heat, emotional stress or eating spicy food. Within minutes, small itchy bumps with redness appear, usually on the upper part of the body but they may be widespread. The weals last for less than an hour, but in severe cases may join together to form larger swellings. Antihistamines usually help. They may be taken an hour or two before a triggering event (e.g. exercise) if these are infrequent.*

it is a reaction. As per British asso of dermatology. Not an “allergy to exercise”

I’ve said several times I don’t just have cholinergic urticaria. I also have dermographism, swelling from exercise, spontaneous chronic urticaria and exercise induced urticaria which I think is the whole list. It began with cholinergic urticaria

I am prescribed the injections so I can exercise for my mental and physical health and because I become housebound without them
they are £3000 a course and life changing

AIBU to decline social invitations when masking leaves me physically unwell?
Whatsnextforbea · 05/04/2026 16:21

ok… you are “allergic to exercise”. Lots of photos to “prove” it!

fairylightsanon · 05/04/2026 16:29

Whatsnextforbea · 05/04/2026 16:21

ok… you are “allergic to exercise”. Lots of photos to “prove” it!

Edited

It does need awareness raising about it, especially exercise induced anaphylaxis and wheat dependent as people will need an epi pen. If someone collapses at a gym and they’re full of hives with difficulty breathing or lip swelling then people may not know what to do

you can also be allergic to water but that’s incredibly rare

https://www.narf.org.uk/blog/2022/10/13/allergic-to-exercise

Allergic to Exercise? — The Natasha Allergy Research Foundation

Ever heard someone say they are allergic to exercise? For most people, the comment would be seen as a joke, but it is actually a real and serious condition!

https://www.narf.org.uk/blog/2022/10/13/allergic-to-exercise

hcee19 · 05/04/2026 16:47

Are you reacting from coming off your medication? Just a thought, but it's isn't something you should do, unless under a doctors supervision