AIBU to find it incredibly frustrating that there are basically no resources in the UK for people like me?

[Maybeasd]

I’m genuinely starting to wonder whether I’m being unreasonable or whether this is just a massive blind spot in the UK.

I’m a woman, adult, functioning perfectly well in life for the most part, but I’m very cognitively able and have always been. I’ve been properly assessed and this a known entity (I was not born nor raised in the UK for context).

The issue is I’m finding that there are only pathways if you’re struggling but not if you’re just curious. I’m not only talking about the NHS, even privately I haven’t been able to find someone who hits the spot.

I’ve looked into:
ND assessments (very binary, very impairment-focused)
talk therapy - after years of it total waste of time and money.

People in the US suggested to find a neuropsychologist but they have eye-watering costs, mostly framed around brain injury or rehab

It’s either you’re ill or you’re fine, stop asking questions.

I’m not looking for validation, labels, or coping strategies.
I’m just trying to understand how my mind works, and it feels like that’s somehow illegitimate unless I’m suffering.

So… AIBU to find this incredibly annoying?

Ooh from one brain warrior to another, feel free to PM me if you want to chat 😊

Yeah 100% because it’s not the only thing that defines me. I can still do awesome things, the “disqualification” won’t take that away from me.

I just really want to understand my brain.

Try living with injured brains. You'll REALLY appreciate yours after that 😤😆😑

I think the point is....you probably won't. And then what? You get told you aren't what you thought, don't have answers...what then?

Which awesome things have you done so far?

Then at least I exhausted everything within my power.

This all seems very self-absorbed to me.

@BrainInterestingButFuckedUp Woah, that is a harrowing and frightening read. I'm so sorry to read it. What a cruel thing to happen to the body.

You are absolutely right about appreciating what one has, thank you for the reminder.

And you'll be left exhausted, disappointed, down money and questioning everything.

I agree with you that you that it does seem that you might need to see a psychiatrist to work out what is going on.

Unless you're deliberately trying to be goady for your own entertainment, there is something else going on here that isn't quite right.

I hope that you are able to get the help that you need.

That’s what you think… what matters is what I think, it’s my life after all

Blimey, the self absorption is strong with this one..!😆

What you don't seem to be doing is considering whether just because you want to do something, if the actual consequences means you shouldn't do it.

You have a family. This obsession is going to be impacting them. If this whole quest leaves you a bit broken, that will impact on them.

But you're right, it doesn't matter what I think. It's your life and you who is going to wind up hurting. So don't bother posting for opinions because you don't give a shit about them anyway.

I didn’t read the whole thread so this may have been recommended already. If you want to understand your sensory profile then you probably want to look for an occupational therapist who works with adults, alongside a psychology assessment. They can assess you with the EASI. The issue would be that there are not currently standardised norms for adults but it’s the closest you’ll get to having data about your sensory processing (involving actual assessment and not just a questionnaire).

Are you as interested in your loved ones as you are in yourself? Your self interest is exhausting.

You could demonstrate empathy for another person, but that doesn’t seem to be something you feel.

Another negative trait.

I said I could relate, and that I was sorry and that I understood a tiny bit of her experience.

that was fairly empathetic to me

Yes, I can see that.

I'm not sure about that. I don't get the impression that you've done a fraction of the reading up of research into how normal, NT, injured, ill and non-human primate brains work as I have. There's a whole fascinating world of it out there.

This is yet another example of the significant deficits you seem to have which are being amply demonstrated on this thread. You lack empathy and kindness and also have no ability to honestly reflect on yourself. Far from being gifted, it seems that you may be suffering some sort of delusional disorder. That must be very difficult for those around you as no doubt to you these delusions seem very real to you, hence your continual reference to and repetition of them on this thread. I hope you are able to access the mental health support you need.

It wasn't anywhere near empathetic.

It was very much "awe diddums, but here's more about me".

But you couldn't relate to what that poster has been through, you haven't been through it or anything remotely like it. It was just words you wrote with no genuine feelings behind them. This is the kind of masking many people with ASD learn to do. Say the words without the feelings and hope they are enough. Most maskers manage it better than that though.

You then destroyed any feeling of empathy you had managed to create by bringing the conversation onto your own post natal depression, which was completely irrelevant and, as was obvious from her response, left the poster who had tried to give you some valuable input feeling completely dismissed.

And I’ve met with god only know how many MH specialists because I thought there was something wrong with me …. I always get discharged.

and I feel fine, my family is well taken care of. I volunteer when I can, and try to give back to the community as much as I can to.

I live a fulfilling life but also I know I’m lucky too.

My life hasn’t been all unicorns and rainbows either, but I’ve overcome it and im better person because of that.

now, do you think I behave like this IRL? Obviously not!

That just suggests that you're projecting an image in your "real life" that isn't the real you.

And it suggests that you're very aware of the behaviour you're displaying here and choosing to behave like that anyway.

Neither of those things reflect well on you.

As I said your 'reality' no doubt seems very real to you, however it is very evident that it doesn't align with actual reality.