Happy Dia-versary..

[Travelfairy]

Just saw this on FB, a former classmate wishing his son a happy dia-versary on the anniversary of getting diagnosed with diabetes....

Like is it just me it is this weird/inappropriate/cringe....

YABU- she's celebrating her son
YANBU- she shouldn't be posting about his personal medical information, its weird and not everything needs a # 🙄🙄

You know what? Your a incredibly unkind & bitter person and if your like this on a anoymous forum I cant imagine the misery you bring people in real life.
My son had a hypo of 1.2 last night, he was shaking, cold sweats & his eyes were going into the back of his head couldnt even string a single word together & theres people like yourself minising what type one diabetes is.
Big deal people celebrate the anniversary of them having another year - type one stinks, its one of the worse autoimmune diseases out there (obviously not the worse but up there) and then theres people like yourself daily judging the T1 community on top. T1s dont need anymore judgment.

We celebrate both of our T1 Diaversary. Like someone said. It’s not uncommon in the T1 community and no, of course understandably you wouldn’t get it.
It’s a rubbish thing to deal with and they were both at ages when they were diagnosed when anything positive around it was grabbed with both hands.

Do you know what, I love the fact that you are on here trying to wind everyone up about something you evidently know nothing about. You don’t even have to announce yourself as ignorant- all your ill-thought out posts are doing it for you. But the fact that you are here is keeping this thread alive and might, just might, save a life one day. T1D is often overlooked as a urine infection and children die as a result. A two year old died recently from a lack of correct diagnosis. So no, it’s not “rare” but it is very, very serious — and a complete pain in the arse to live with.

They probably didn't very nearly kill you then finding my son collapsed and dialling 999 and getting him blue lighted to hospital is kind of etch in my memory and I remember exactly when it was.

Oh Lyla Story :(

can everyone sign this if you havent already please for Lylas memory. Its important

https://petition.parliament.uk/petitions/728677

My friends mark their anniversaries (father and daughter) its landmark in their lives. Unless you are t1 you shouldn’t even be commenting on whether it’s appropriate or not. I also know people who celebrate their cancer all clear day annually

@ComfortFoodCafe. Common enough, I know half a dozen people or so, well enough to be proper friends or dc of friends not acquaintances. You can also see that’s it’s fairly common through the summer months as more and more people have visible monitors (obviously in winter they are covered by clothing)

But not common enough for everyone to know the warning signs of type one, people still die from undiagnosed type one. Doctors still misdiagnose undiagonsed type one.

Not even common knowledge what to do if a t1 is having a hypo most people would think to give them insulin which would kill then. So theres still a lot of work to do regarding educating people on t1.

Not everyone wearing a Libre, or Dexcom will be type1,some type,2 ,s self fund
My son has type 3c ( he's treated as type1) I bet most people have never heard of that.

Yes they did. I still don't remember i could tell you the years as obviously its needed when giving medical history but thats as far as it goes

Birthdays, Easter, baptisms (or equivalent) Christmas, weddings, wedding anniversaries, funerals. These are the only legitimate celebrations in my opinion. Everything else is just a reflection of consumerism manipulating a culture of excessive celebration for its own gain. If you celebrate at every opportunity, it all loses its meaning.

Oh well good for you some people do I really don't know why posters have an issue with this.

I never said it wasn't serious or a pain in the arse you have created that in your head

Im absolutely judging parents who put their children's private information online. I never said don't celebrate if thats what you want to do i said respect your child's right to privacy

whats private about explaining type one - about insulin, counting carbs etc? Its just part of the disease!
Its hardly discussing their daily bowel movement, they have to live with it every single day im sure their mother would rather explain it than them have to repeat themselves like a parrot to what it is.

But isn't life full of little rituals to mark the passage of time since a life-changing event. Like marking the anniversary of the death of a loved one - well, completely the opposite of course but if she hadn't been diagnosed that day, that is what we would be remembering.
We mark the anniversary of our first date (34 years ago) because it matters to us. We don't go mad - we were in different countries for our silver wedding anniversary - but we mark it. Nothing to do with commercialisation. Everything to do with reflection on life.

when my son was dx he asked me to go into his school & explain in an assembly to what it is to the other kids.
He was sick of kids asking him what his cgm was, why he has to go to lunch early, why he has to stop playing/doing PE when hes low, why he can eat snacks in the classroom when they cant etc he wasnt all “its private, we cant dare tell them.” Had lots of parents come up to me & ask about it, heck ive even had parents concerned about their children showing symptoms come to me as the GPs werent testing!
Most t1s appericate that those around them know what it is. so enough of this “private medical” nonsense.

Explain it to who a load of randoms on your facebook. If someone is caring for your child you need to discuss your child's needs face to face not post it on Facebook. "Celebrating your child's dia versary is all about social media likes and for a load of people to say wow aren't you amazing what a hero 🙄

But thats completely different your son has asked you to do this and it was done in person.

You keep going @youalright.Keep this front and centre so everyone knows what T1D is. I say it again for the hard of thinking at the back - it’s not in anyway comparable to T2D.

And a 👋 to all the other knackered T1Ds and parents of T1Ds out there. My son is off on a school residential in a few weeks and I am bloody terrified.

Nobody has compared it to type 2 thats completely different. Wow how lovely that your child is able to go on a residential trip a dream for a lot of parents with disabled children who can't even leave the house. Your username kind of proves my point about people making their diagnosis their full personality

Good luck with the residental, im sure itll go well!

Jesus @youalright what a horrible bitter person you sound. It’s not a competition to see who has it worse because their child can or can’t go to a school residential.
You are coming across worse with every post

im so pleased for your son!

Completely off topic, but is his neurologist NHS or private & how did you find them/where are they?

MY GP & I can't get my balance of meds right & I currently have NO quality of life.