Happy Dia-versary..

[Travelfairy]

Just saw this on FB, a former classmate wishing his son a happy dia-versary on the anniversary of getting diagnosed with diabetes....

Like is it just me it is this weird/inappropriate/cringe....

YABU- she's celebrating her son
YANBU- she shouldn't be posting about his personal medical information, its weird and not everything needs a # 🙄🙄

Flu is very adversarial, yes.

So you think people who talk about their children on mumsnet anonymously is the same as posting their private medical history on Facebook.

The natural state for a T1D person is dead. That is the stark reality. Every hour of the day and night calculations are made in relation to what they eat, what they are doing even what the bloody weather is doing to give the right amount of medication to keep them alive. Too much medication will kill them, too little will kill them. It is unrelentingly exhausting. Taking one day a year to celebrate that you beat the odds is fair enough as far as I am concerned.

People have different relationships with SM. My T1D son would be distinctly unhappy if I posted online but I do not begrudge those who do.

I’ve never given it much thought before tonight but it’s actually celebrating the day you were saved kind of? I know no one is really looking at it like that but that’s what it is. Their lives were saved on that day.

Oh but it is

The celebration is probably to do with controlling the symptoms and the child not having a 'mystery ' illness that the school wouldn't cater for and the parents living in fear that something more serious has been missed.
When my DP had a stoma fitted after bowel cancer, I joined all the FB groups. In a way, it's a stoma community. Reversal outcomes are discussed, along with appropriate diet/exercises and just managing to try to live a normal life. Experiences of different airports, toilet facilities etc are shared. I could see why they'd make a deal out if it. It's no different than the old style support groups, except you get much more varied information.

No. I’m correcting your use of the
term social media.

Also children with diabetes have to be constantly monitored. It’s not really a private illness.

You are attention seeking on this thread. It’s embarrassing.

So disagreeing with you = attention seeking ok cool got it 👍. P.s I love your username just noticed it 😁

Not at all because you’re disagreeing with me.

Because you are belittling a medical condition because you have something rare.

And thank you. I still watch it. lol

@youalright you couldn’t be more wrong that everyone is fully aware what diabetes is.
If you are fully aware can you tell me how much insulin should my DD take for eating a slice of toast if her bloods were 8.2 and it was 8am in the morning?
im can 100% say you can’t. I also am pretty sure you wouldn’t know what to do at 2am in the morning when her bloods were at 17.
Saying everyone knows about diabetes is crap, if they did they wouldn’t tell my DD that playing sports would have no effect on her bloods, they wouldn’t say to her she can’t have certain food because she is Type 1
The fact that you say everyone is fully aware of diabetes shows how little you know about it, you don’t even get the name right, it’s type 1 diabetes that people mark the di versary, managing to get through another year with this awful auto immune disease

Yeah me to I've even got my kids into it🤣

@youalright you are coming across as extremely ignorant on this thread.
If you think a disease that could kill you on a daily basis, that could kill you if you take too much of the life saving medication, that will kill you if you don’t take enough of the life saving medication is not significantly serious enough shows your ignorance.

I think it’s abundantly clear from your posts and others on here that everyone doesn’t know what diabetes is! There’s a hell of a lot of minimisation of the condition and the daily strain of living with it.

Also - I think my DS’ life was saved by someone posting about a diaversary. One of my friend’s sons has T1D and she does post every year - a celebration of how far he has come, and yes, the fact he is not dead. She always puts a reminder of the main symptoms and I recognised these symptoms before my DS went into major diabetic ketoacidosis (DKA). Many T1Ds are not diagnosed until they go into major DKA and are in a coma - and it is touch and go whether they survive. With my DS, I took him into A and E and said “I think he has diabetes” they took it very seriously and 5 minutes later I was told I was right. Some lovely mums on here also told me to go straight away and not wait until we got back from holiday - which whilst terrifying my at the time - I am very grateful for.

For those that don’t know the symptoms are peeing excessively, drinking excessively, losing weight and being tired. The four Ts - toilet, thirst, thin, tired.

I didn't say it couldn't be serious I'm saying there are many more serious conditions and people don't celebrate anniversaries of them and post them online

My daughter was diagnosed in severe DKA. Her dia-versary is a tricky time because of the trauma involved in that but even she likes to recognise it. Still alive. Eating cake.

But we do know what diabetes is its an incredibly common condition i would imagine most people know at least 1 person with it i know 4 of the top of my head

There’s about 300,500 type 1s in the UK

I think awareness of the impact of Type 1 is really lacking.

Do you know 4 people with type 1 diabetes? Or do you know 4 type 2s? They are completely and utterly different in everything but name. It’s like saying you know 4 cats - you know 4 domestic moggies - the cat that is T1D is an angry, snarling, feral lion.

Type one isnt that common actually.

We have a small celebration that DC has gotten through another year of their body trying to kill them! My DC nearly died when diagnosed T1D and has many other health issues that have been caused by untreated issues/T1D (another thread entirely!) and we know that they will not live a full life span so why not celebrate surviving another year of adversity :)

But it is. Its not a rare condition

Well it can be my son nearly died when he was diagnosed he was in DKA ,so I quietly celebrate the fact he's still alive .

It's something I have seen in a few type 1 face book groups mainly people celebrating the fact they didn't die
As alot of people are diagnosed in DKA which is life threatening not sure why this bothers you.