my mother maintains I was potty trained by 9mo. Given I couldn’t walk until I was almost 3yo, I find this unbelievable!!! I suspect she just doesn’t remember what really happened in the 70s!!!
I have 2 children. Both ND. Both wore washable nappies from birth. Both summer born so started reception a few months after their 4th bday. Both went to childminder until about 2yo and then full time nursery for c2 years.
the first. A boy.
Potty trained himself. Day and night. Pretty much overnight. At just over 2yo.
He was at a Montessori nursery and all the kids under 3 were in the same room and there was a lovely bathroom with 3 mini toilets and sinks, where the kids in nappies were also changed.
I’ve no idea why he decided that was it, but he decided “no more nappies” and that was that. I had nothing to do with him being dry.
he regressed at age 6 but was short lived and we later found out his teacher was a bitch to him (found out on the last day of the year, via another parent whose little girl used to cry to her about what she saw) so in hindsight we suspect it was linked.
second child. A girl. Was interested in not wearing nappies from age 3 but we did not crack it before she turned 4, and certainly not before she started school. No specialist would see us because of her age.
eventually we begged a family friend to review her, at just turned 4 1/2yo. And discovered she had a tiny bladder.
none of the interventions worked. She still had multiple accidents every day at school up to and through Y4.
her neurodivergence plus an over active bladder combined in an unholy mess. Luckily we no longer have soiling as well. But we used to. Likely connected to constipation and a food intolerance (not an allergy which is easier to diagnose and therefore easier to evidence for school).
it is not for want of trying on our part nor interest on hers. It’s been horrendous and even with this fact pattern we could not get a referral to CAMHs for assessment as this was not considered a crisis.
we are under the hospital team for incontinence but there is no magic bullet.
an alarm from Amazon helped her become dry at night. Unfortunately the NHS did not have any alarms available so we bought our own. It resolved night time wetting within a couple of weeks. Was so quick. However day time has eluded us…… until now (well, almost!)
the usual meds for wetting did not work for us. We tried 2 over the years but had to stop the first one in the end due to side effects - never saw the benefit they were supposed to provide anyway!!
we recently went private for psychiatrist assessment which confirmed ND.
Medication for the ND means she is dry in the day at school so far this term.
not 100% in after school club and although Home is better than it was she is not cured (yet). She is now Y5, recently turned 9. It’s been a long road. And a fight.
I have been made to feel like a terrible parent. My husband has not been spoken to the same way. And all this time we have not been able to access the support our child needs because “she is not in crisis”. Judged but not supported - It’s outrageous. Wetting yourself uncontrollably after the age of 4 and especially well into junior school, should be seen as a crisis. It dents self esteem which is hard to rebuild once knocked.
the system blames the family and the child, rather than provide real support that works.
our urology nurse is lovely but she is not doing anything but monitoring!!
the medication prescribed to address DD’s ND profile, has been magic.
She has been dry every day at school this school year. Not 100% in the rest of her life but we still celebrate what feels like a massive win!!!
I’m furious we could not access it via the NHS much earlier in her school career. The suffering she has been through is unacceptable. Let alone us as a family and the poor staff at her school.
So far it has cost us over £2,500 to get to this point.
No private medical insurance will cover behavioural issues (which is how ND is classified). Even the overactive bladder is classified as behavioural rather than an urology issue. And the NHS support has been non existent.
It was MN that led me to getting the night time alarm. The only practical support NHS provided was to advise her to wear 2 pairs of pants and attach the sensor to the outer pair.
given studies show that the majority of kids going into Y1, who are still wetting in school, are eventually diagnosed as ND there should be more CAMHS led interventions in Y1 before self esteem is totally battered.
20% of school pupils may be classified as ND……
no not every wet child is ND and not every ND child has a problem, but it is a significant number which surely is an easy cohort to engage with via CAMHS and the school nurse system with support from SEN departments and local OTs.
perhaps it is postcode dependent
our experience suggests none of these groups are joined up when it is our view that they should be.