I'm sure you must think I'm U from the title alone but let me explain..
DS is 14, he's had a colostomy about 14 months ago, he had bowel issues since birth really and has a chronic bowel condition missed a lot of school but since the colostomy it has given him a better quality of life, though he still has flare ups a lot which cause a lot of pain and output and just exhausation, all he does when at home is lay down. They're worse when he's anxious but also happen randomly. He tries his best to get himself into school but it doesn't always happen.
He's confident at changing the bag at home because he can take all the time he needs but when out in public or at school he is less so. I usually help him when we're in public because once he's stressed, he rushes and gets worked up. He doesn't have an EHCP but school have given him a toilet pass, but he still panics at school about changing it and obviously staff can't help and I wouldn't expect them to and he wouldn't want that, I think he'd find it embarrassing.
He had a lot of time off last year due to the flare ups, and times where he was sent home because of the pain. He's just started year 10 so he's really trying this year.
Anyway, on Thursday he was in the middle of a flare up but he forced himself to go in, he came home and told me in one of the lessons he had a supply. He admitted he had been talking and the supply had written his name on the board as a warning, but about halfway through the lesson he asked the teacher if he could go to the toilet. The teacher said no and DS explained he had a pass and showed him, he still said no and told him to wait until the end of the lesson. In the end he did let DS go, he had to change his bag and he took longer than usual because as I said he tries to rush but it has the opposite effect where he gets worked up and takes longer. He also said his stomach was really hurting so he had to sit down for a while. He missed half the lesson and when he went back it was almost time for the next one, the teacher “had a go” at him and accused him of messing around and gave him a detention for Friday.
Friday, he didn't go in because dragging him through Thursday took it out of him, he even missed football training so he wasn't lying. I tried to call the school and get the detention removed, and we had evidence he wasn't just messing around as he'd been to the medical office as his supplies are kept there. School didn't get back to me.
He didn't have his phone as they put them in pouches but I was thinking of asking so if he needed to change it, he could message me and I could go in and help him. He's usually fine with not needing to change it during the school day but when he's in a flare up, its unavoidable. He's still in the flare up but was well enough to actually play football today (we were told to try and encourage this, even if he isn't well enough for school) so he's going to try and go but he's already anxious.
This is the first year of the phones in pouches, last year he would message me if he felt unwell (but felt too embarrassed to tell his teacher) and i’d phone the school and medical would check him over (or send him home which happened often).
Would this be unreasonable? Or should we just let this go and he can change it himself and take the detention?