Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
Thread gallery
11
usernamealreadytaken · 03/09/2025 13:14

MargoLivebetter · 03/09/2025 12:43

I agree, so why did you say this?

"Part of the problem is that because a few people have an actual serious condition, it gives those who are just fat and lazy to jump on their bandwagon to so much of an extent that medics have defined general obesity as a disease."

I still don't understand the conflation of fat and lazy?!

You’re conflating two different users in the same conversation.

I made it clear that lazy is a range, from lack of movement to lack of effort to lack of care; any one or a combination can lead to being fat. Just not going to the gym doesnt make someone lazy, the chances are that those slim women who dont go to the gym are still moving, and are making better food choices.

justteanbiscuits · 03/09/2025 13:15

YouSirAreAnIdiot · 03/09/2025 13:13

I have looked at some charts and they do not even go that high

Just because they don't go that high it's a lie?! Seriously? I looked at some and they don't go above 190cm, so anyone claiming to be taller than that is lying? 🙄🙄🙄🙄

PinkArt · 03/09/2025 13:16

YouSirAreAnIdiot · 03/09/2025 13:12

because it is blatantly not true

You can't possibly know this. It is medically completely possible.
From the little I do know of this poster she has recently started using WLI and found weighing herself as part of that incredibly confronting. Hearing that she is a liar isn't helpful.
The WLI threads do attract some disingenuous posters, for whatever messed up reasons of their own, but I don't sense she is one of them.

PinkArt · 03/09/2025 13:18

YouSirAreAnIdiot · 03/09/2025 13:13

I have looked at some charts and they do not even go that high

Yes and for some people 'getting on the chart' is a weight loss milestone as much as losing a stone or dropping from obese to overweight to healthy.

usernamealreadytaken · 03/09/2025 13:19

justteanbiscuits · 03/09/2025 13:02

Strange how my doctor(s) say that paracetamol is fine for long term use. I take 6 daily and have for a number of years.

For a few users with certain conditions that’s medical guidance, but I’m sure you didn’t demand that your doctor HAD to prescribe it to you for the rest of your life, which is what so many posters on this thread are advocating for wli, despite medical advice being that the user should change their lifestyle to maintain the effects once the drug is stopped.

rocketrabbit · 03/09/2025 13:28

BadDinner · 03/09/2025 11:56

There was a time I could eat absolutely anything in almost any amount and not gain weight. I used to go out local bakery and eat an 8 portion gateau by myself in a day. Not a pound. I hated my straight up and down, curveless figure.

I ended up going to the doctor's in frustration at being a size 6 and not gaining any weight.

Interestingly said it's your metabolism. I needed to slow it down a bit by working out, preferably with weights.

I went up to a size 10, had a baby ballooned to a 14, breast fed went down to an 8. I was a smug bitch. Ohhh I can eat anything I like and not gain weight. I have to work to gain weight.

But then now have become chronically ill in my late 30s now at 50 a size 16 creeping to a 18, feeling crap most of the time, often too exhausted or sick to eat, yet cannot shift a single pound.

And guess what? I am receiving the 'have you tried just thinking positively and getting out there to the gym' comments from a couple supposed friends. Thankfully, I haven't struggled with my weight all my life so remember being fit, or my response would be to get extremely low. I cannot exercise without high inflammation afterwards and being stuck in bed. But no one cares they just look at you and make assumptions.

I used to have the narrative of well 'these fat people are well. They just need to cook from scratch and walk more'

Life has humbled me.

I was also metaphorically slapped into touch about GLP-1 receptor agonists by a nutritionist no less, who explained that Obesity becomes a disease when the body can no longer react appropriately to the normal chemicals that indicate satiety. It's ironically like food deafness whilst simultaneously giving out an amplified signal of hunger. There's also a shortage sometimes of the bodies production of the chemicals themselves that indicate satiety. You can have two diametrically opposed signals one silent, one loud going on in the body at the same time.

So I think these drugs are great as a tool to help and it looks like they could kill too birds with one stone. Help calm the inflammation associated with any underlying autoimmune illness that could be blocking a person from managing to increase their activity, and helping the body readjust and 'turn up' the satiety signal whilst 'dialling down' the food noise.

What perhaps the NHS would not do well is delivering the support to help a person taking these drugs continue to manage on a micro dose, or come off the drug.

But I think it ought to be like anything else. Strict criteria whilst the prescription is ongoing. So you must exercise, lift weights to maintain muscle mass etc, followed by a careful weaning off and a wait period to see if weight remains manageable. If not, a monthly micro-dose. If the person doesn't work out. Dropped from the program.

I admit my thinking about 'weight loss hacks' like supplements for weight loss and liposuction etc were influenced in part by the idea that you should 'work' for weight loss, and that I wouldn't be so special as a thin person if everyone else can be easily thin. Real nasty. I do think some people do have similar views.

I hope they never have a situation happen that changes how you present to world and get judged for it.

The thing is though, and I think this is the stumbling block for a lot of people, is that you don't have to eat when you feel hungry. You can say I've already eaten enough today, or I will wait the hour until dinner, and wait the hunger out.

So it is about satiety, but also not. You don't have to respond to every single twinge of hunger. What is coming across here very strongly is that some people are saying it is impossible for them to cope with the hunger feeling even for a short time, and their only option is to eat.

justteanbiscuits · 03/09/2025 13:35

usernamealreadytaken · 03/09/2025 13:19

For a few users with certain conditions that’s medical guidance, but I’m sure you didn’t demand that your doctor HAD to prescribe it to you for the rest of your life, which is what so many posters on this thread are advocating for wli, despite medical advice being that the user should change their lifestyle to maintain the effects once the drug is stopped.

But I am someone who would be utterly distraught if my GP suddenly refused to prescribe Mounjaro for me. I would demand that they HAD to prescribe it for me.

Low dose maintenance WLI have proven to be very beneficial in those who have lost weight using WLI.

Ihateboris · 03/09/2025 13:35

It's not the fault of the GP, it's the NHS guidelines.

Isn't the point of taking these WLIs that they suppress your appetite, thereby reducing the amount of food you buy? If this is the case, can't you spend that money you're saving on the injections??

Unfortunately the NHS doesn't have an endless pot of money. LBC were discussing this recently and a lady called in who had cancer. Unfortunately the treatment she needs isn't available on the NHS so she's had to set up a GoFundMe account. Absolutely heartbreaking.

justteanbiscuits · 03/09/2025 13:36

usernamealreadytaken · 03/09/2025 13:19

For a few users with certain conditions that’s medical guidance, but I’m sure you didn’t demand that your doctor HAD to prescribe it to you for the rest of your life, which is what so many posters on this thread are advocating for wli, despite medical advice being that the user should change their lifestyle to maintain the effects once the drug is stopped.

How and when to take paracetamol for adults - NHS

"It's safe to take paracetamol regularly for many years, as long as you do not take more than the recommended dose."

nhs.uk

How and when to take paracetamol for adults

NHS medicines information on dosage for paracetamol, how to take it and what to do if you miss a dose or take too much.

https://www.nhs.uk/medicines/paracetamol-for-adults/how-and-when-to-take-paracetamol-for-adults/#:~:text=It%27s%20safe%20to%20take%20paracetamol,more%20than%20the%20recommended%20dose.

justteanbiscuits · 03/09/2025 13:38

Ihateboris · 03/09/2025 13:35

It's not the fault of the GP, it's the NHS guidelines.

Isn't the point of taking these WLIs that they suppress your appetite, thereby reducing the amount of food you buy? If this is the case, can't you spend that money you're saving on the injections??

Unfortunately the NHS doesn't have an endless pot of money. LBC were discussing this recently and a lady called in who had cancer. Unfortunately the treatment she needs isn't available on the NHS so she's had to set up a GoFundMe account. Absolutely heartbreaking.

That will be a treatment costing hundreds of thousands, or millions, a year. Not £100 a month which could prevent much higher cost for long term illness caused by weight.

justteanbiscuits · 03/09/2025 13:41

Ihateboris · 03/09/2025 13:35

It's not the fault of the GP, it's the NHS guidelines.

Isn't the point of taking these WLIs that they suppress your appetite, thereby reducing the amount of food you buy? If this is the case, can't you spend that money you're saving on the injections??

Unfortunately the NHS doesn't have an endless pot of money. LBC were discussing this recently and a lady called in who had cancer. Unfortunately the treatment she needs isn't available on the NHS so she's had to set up a GoFundMe account. Absolutely heartbreaking.

There are somewhere around 40 million adults in the UK.

Obesity related illness costs the UK around £126bn a year.

That is over £3000 per adult.

Can you see how a £1200 per year drug could massively slash this spending?

Ihateboris · 03/09/2025 13:41

justteanbiscuits · 03/09/2025 13:38

That will be a treatment costing hundreds of thousands, or millions, a year. Not £100 a month which could prevent much higher cost for long term illness caused by weight.

The total she had to raise was £70k. My point still stands...there isn't an endless pot of money. I have mental health issues and have to pay privately to see a counsellor, it is what it is. Sometimes we all have to take responsibility.

MargoLivebetter · 03/09/2025 13:42

User14March · 03/09/2025 13:13

I didn’t say it.

Apologies, you didn't. It was @usernamealreadytaken who was making the assumption fat people must be lazy.

usernamealreadytaken · 03/09/2025 13:43

justteanbiscuits · 03/09/2025 13:36

How and when to take paracetamol for adults - NHS

"It's safe to take paracetamol regularly for many years, as long as you do not take more than the recommended dose."

Exactly, the recommended dose is what the prescriber prescribes, which meets guidelines. OP was unable to get a prescription as she did not meet the required guidelines for NHS prescriptions at this time. NHS guidelines have also removed paracetamol from prescription except in certain circumstances, in line with guidance.

InfoSecInTheCity · 03/09/2025 13:44

Ihateboris · 03/09/2025 13:35

It's not the fault of the GP, it's the NHS guidelines.

Isn't the point of taking these WLIs that they suppress your appetite, thereby reducing the amount of food you buy? If this is the case, can't you spend that money you're saving on the injections??

Unfortunately the NHS doesn't have an endless pot of money. LBC were discussing this recently and a lady called in who had cancer. Unfortunately the treatment she needs isn't available on the NHS so she's had to set up a GoFundMe account. Absolutely heartbreaking.

No

GLP-1s primary function is to stimulate the hormones that cause the production of insulin in response to high blood sugar, they also increase the bodies sensitivity to the insulin produced so it works more effectively to break down blood sugar.

A secondary effect is that it slows down digestion, this is beneficial to reducing blood sugar because it allows more time for it to be broken down. It’s also beneficial to weightloss because it helps you to feel full for longer.

High blood sugar, besides destroying your nerves, organs, circulatory system also causes feelings of extreme hunger. So keeping sugar levels within the normal range helps to reduce cravings and reduce calorie intake.

usernamealreadytaken · 03/09/2025 13:44

MargoLivebetter · 03/09/2025 13:42

Apologies, you didn't. It was @usernamealreadytaken who was making the assumption fat people must be lazy.

Actually, I was making the observation that some fat people are lazy, and that not all fat people have a metabolic or endocrine condition which accounts for their weight gain.

LAZY - not willing or not wanting to work or use effort to do something” - like OP, not willing to try to reduce eating without medication and blaming others for that.

rocketrabbit · 03/09/2025 13:45

justteanbiscuits · 03/09/2025 13:41

There are somewhere around 40 million adults in the UK.

Obesity related illness costs the UK around £126bn a year.

That is over £3000 per adult.

Can you see how a £1200 per year drug could massively slash this spending?

It's not quite as straightforward though, is it, because that's not how NHS accounting works.

Yes, we should look at what things will cost in future, but in the main, they look at what you are costing right now. So a young fat adult who is going to become a very expensive older adult but is cheap right now, the NHS can't afford to treat right now. I know this is illogical but that's where we are. The NHS can't afford preventative treatment because it can't even afford all the urgent right now treatments that are needed.

Ihateboris · 03/09/2025 13:45

InfoSecInTheCity · 03/09/2025 13:44

No

GLP-1s primary function is to stimulate the hormones that cause the production of insulin in response to high blood sugar, they also increase the bodies sensitivity to the insulin produced so it works more effectively to break down blood sugar.

A secondary effect is that it slows down digestion, this is beneficial to reducing blood sugar because it allows more time for it to be broken down. It’s also beneficial to weightloss because it helps you to feel full for longer.

High blood sugar, besides destroying your nerves, organs, circulatory system also causes feelings of extreme hunger. So keeping sugar levels within the normal range helps to reduce cravings and reduce calorie intake.

So you consume the same amount of food?

MargoLivebetter · 03/09/2025 13:47

But @Ihateboris the OP had taken responsibility and was trying to sort out her T2 diabetes and obesity. Prices surge and she hoped she could get some help or support from the NHS.

All through this thread I have tried to suggest that it is in all our interests for people not to be obese. Obesity is on the increase the effects of it cost the NHS £6.5 billion pounds a year. Clearly, all the good advice dispensed over the last 40+ years about eating less, moving more has failed and continues to fail in an epic way. I cannot understand why people think that WLI will not be exceedingly helpful and potentially incredibly cost effective. Why is there such a blind faith in will power, moving more and eating less, even though it has failed so monumentally?

Zov · 03/09/2025 13:50

usernamealreadytaken · 03/09/2025 13:44

Actually, I was making the observation that some fat people are lazy, and that not all fat people have a metabolic or endocrine condition which accounts for their weight gain.

LAZY - not willing or not wanting to work or use effort to do something” - like OP, not willing to try to reduce eating without medication and blaming others for that.

Edited

100% agree with this. ^

Ihateboris · 03/09/2025 13:53

MargoLivebetter · 03/09/2025 13:47

But @Ihateboris the OP had taken responsibility and was trying to sort out her T2 diabetes and obesity. Prices surge and she hoped she could get some help or support from the NHS.

All through this thread I have tried to suggest that it is in all our interests for people not to be obese. Obesity is on the increase the effects of it cost the NHS £6.5 billion pounds a year. Clearly, all the good advice dispensed over the last 40+ years about eating less, moving more has failed and continues to fail in an epic way. I cannot understand why people think that WLI will not be exceedingly helpful and potentially incredibly cost effective. Why is there such a blind faith in will power, moving more and eating less, even though it has failed so monumentally?

But she's done so well thus far and automatically assumes she needs to continue with the jabs, rather than actually trying to keep her weight down without them. She won't know unless she tries.

MargoLivebetter · 03/09/2025 13:54

usernamealreadytaken · 03/09/2025 13:44

Actually, I was making the observation that some fat people are lazy, and that not all fat people have a metabolic or endocrine condition which accounts for their weight gain.

LAZY - not willing or not wanting to work or use effort to do something” - like OP, not willing to try to reduce eating without medication and blaming others for that.

Edited

You are making massive assumptions that the OP has not spent years dieting and / or trying to do more exercise. And you also have no idea of whether or not there are other physical or mental health issues that she has that might have led to all those efforts failing. We don't know any of this.

You are therefore assuming that she is lazy because it fits your narrative that fat people must be lazy.

justteanbiscuits · 03/09/2025 13:55

rocketrabbit · 03/09/2025 13:45

It's not quite as straightforward though, is it, because that's not how NHS accounting works.

Yes, we should look at what things will cost in future, but in the main, they look at what you are costing right now. So a young fat adult who is going to become a very expensive older adult but is cheap right now, the NHS can't afford to treat right now. I know this is illogical but that's where we are. The NHS can't afford preventative treatment because it can't even afford all the urgent right now treatments that are needed.

No.

The look at the long term cost / benefit.

Unfortunately, a lot of the cancer drugs that NICE haven't authorised for NHS prescribing don't offer a long term benefit. They may only add 3 months to someone's life, so the high cost isn't balanced by long term benefit. Drugs that have been shown to halt, or massively slow, progression of a cancer, after generally authorised at very very high cost.

The cost of routine screening is looked at by looking at the long term financial benefit.

So looking at the long term cost benefit of something like Mounjaro is a huge part of it's prescribing. When I was prescribed it, there was no option outside surgery (which I wasn't even considering having) so I wasn't costing the NHS anything at the time. It was prescribed to enormously improve my quality of life.

MargoLivebetter · 03/09/2025 13:59

@Ihateboris do you genuinely believe that most fat people haven't given every diet out there a go, haven't tried by themselves to lose weight and keep it off long-term. Have you ever wondered why Weight Watchers and Slimmer's World and all other diet business have so many repeat customers? Surely, you can see how unsuccessful the strategies of will power, eat less, move more are? The ridiculous number of obese people in this country is clearly evidence that those strategies do not work!

rocketrabbit · 03/09/2025 14:00

justteanbiscuits · 03/09/2025 13:55

No.

The look at the long term cost / benefit.

Unfortunately, a lot of the cancer drugs that NICE haven't authorised for NHS prescribing don't offer a long term benefit. They may only add 3 months to someone's life, so the high cost isn't balanced by long term benefit. Drugs that have been shown to halt, or massively slow, progression of a cancer, after generally authorised at very very high cost.

The cost of routine screening is looked at by looking at the long term financial benefit.

So looking at the long term cost benefit of something like Mounjaro is a huge part of it's prescribing. When I was prescribed it, there was no option outside surgery (which I wasn't even considering having) so I wasn't costing the NHS anything at the time. It was prescribed to enormously improve my quality of life.

Cancer drugs that extend life by three months aren't dealing with a problem that might happen 20 years from now in a person who could fix the problem without treatment. That's a daft comparison.

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.
Swipe left for the next trending thread