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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
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User14March · 03/09/2025 12:36

Spidey66 · 03/09/2025 12:21

Unfortunately there is a shortage, diabetics can’t access it now so they have to ration it. It’s a victim of its own success.

Isn’t that a proven myth?

Periperi2025 · 03/09/2025 12:39

User14March · 03/09/2025 12:36

Isn’t that a proven myth?

We regularly have clinical notices of shortages of drugs, it's normally a quality assurance issue that then results in a supply chain issue and nothing to do with people daring to be prescribed a drug that is clinically indicated for them!!

justteanbiscuits · 03/09/2025 12:40

Periperi2025 · 03/09/2025 10:33

I wish I could get endocrinology to pay for mine, problem is that they can't pin down an exact diagnosis (just a whole lot of weird hormone levels), so can only advise me to try privately for obesity, but maybe one day. It certinaly gives me hope that they are funding yours for now.

It had to be consultant prescribed - I have bilateral (benign) adrenal tumours. I've been prescribed it since November last year

justteanbiscuits · 03/09/2025 12:41

User14March · 03/09/2025 12:36

Isn’t that a proven myth?

I can give you the phone number of my local pharmacies if you would like to query them about why they can't get a drug for me that has improved my quality of life massively, and I struggle to work without it.

MargoLivebetter · 03/09/2025 12:43

User14March · 03/09/2025 12:35

Those with less stressful lives, having money, access to healthcare, absence of mental illness or kids with mental illness & much privilege can be just as ‘lazy’/even more lazy but they’re generally not obese or even overweight. Look at the Mums at the preps in SW London & other affluent pockets for details - not all are gym rats.

I agree, so why did you say this?

"Part of the problem is that because a few people have an actual serious condition, it gives those who are just fat and lazy to jump on their bandwagon to so much of an extent that medics have defined general obesity as a disease."

I still don't understand the conflation of fat and lazy?!

Beachwalksinwinter · 03/09/2025 12:44

Agree with @justeanbiscuits my sons MJ for diabetes was really difficult to source on the last couple of weeks due to people stockpiling. We got a pen but had to wait.

arcticpandas · 03/09/2025 12:44

I think you can look at how drugaddicts go about their day: first they go in to rehab and are prescribed medication for the physical dependancy. Later on it's just willpower every single day. I'm an ex smoker who still wants to smoke every day after 13 years but I just don't. I also had a problem with alchohol and would love to be able to just have one glass of wine but I can't because of my addictive brain that craves more. If I have a large bag of crisps I will probably eat it all. So I don't buy any or small portion sized one.

At the end of the day it's very hard to battle addictions and it's a struggle every day. Great that people take jabs to get lose weight and get used to eating less. Then they will need the willpower every day to eat healthy meals and exercice. Which is easier after having lost weight and being used to eating less.

MargoLivebetter · 03/09/2025 12:46

justteanbiscuits · 03/09/2025 12:41

I can give you the phone number of my local pharmacies if you would like to query them about why they can't get a drug for me that has improved my quality of life massively, and I struggle to work without it.

Diabetes UK posted the following on 28th August:

"What's the latest with the shortage of GLP-1 RAs?
It has now been reported that previous shortages of the GLP-1 agonists Ozempic (injectable semaglutide), liraglutide, dulaglutide and exenetide have now been resolved. There is also a good supply of Rybelsus (oral semaglutide) and Mounjaro (tirzepatide). "

Hopefully, your pharmacy will see stock again soon.

What is Mounjaro? Uses, How it Works and Side Effects

Mounjaro is a type of medication you might need to take if you have type 2 dia

https://www.diabetes.org.uk/about-diabetes/looking-after-diabetes/treatments/tablets-and-medication/glp-1/mounjaro

SecretNameforMN · 03/09/2025 12:48

My Bmi is 78 and even i can't get it on the NHS. I am finding great appetite suppressant in following a ketogenic diet.

usernamealreadytaken · 03/09/2025 12:48

RimTimTagiDim · 03/09/2025 10:45

The leaflet you've posted is the instructions for use, not medical guidance. Doctors, clinicians and NICE recommend periods of use, not drug manufacturers, thankfully, otherwise every single life issue would be medicalised and there would be a lifelong pill for it.

Prescribers who have patient history recommend how and when to use medications, not developers or manufacturers. “How do you maintain weight loss after taking Mounjaro?
To maintain weight loss after taking Mounjaro, you need to cement healthy eating habits and introduce other healthy habits to your lifestyle, like being more physically active, sleeping well, and engaging in leisure activities that you enjoy, such as accessing nature and socialising.
Mounjaro’s main action is to mimic the hormones GIP and GLP-1, which help us feel fuller for longer by communicating with the brain’s appetite control centre, the hypothalamus.
Healthy habits increase GLP-1 and GIP levels naturally and also lower circulating levels of the hunger hormone ghrelin.
After using Mounjaro, you can keep the weight off by managing your hunger naturally through healthy habits.
Recent research has supported the benefit of cementing healthy habits while taking GLP-1 medications.”

It doesn’t say on my paracetamol leaflet that I can’t take it forever, but my doctor or pharmacist will tell me it’s a short term medication used to treat acute symptoms.

Coming off Ozempic slowly could prevent weight gain, study shows

Patients could wean themselves off blockbuster obesity drugs such as Ozempic or Wegovy without piling the pounds back on, according to a scientific study.

https://medicalxpress.com/news/2024-05-ozempic-slowly-weight-gain.html

LovelyLuluu · 03/09/2025 12:51

SecretNameforMN · 03/09/2025 12:48

My Bmi is 78 and even i can't get it on the NHS. I am finding great appetite suppressant in following a ketogenic diet.

A BMI of 78- what's your height and weight?

Zov · 03/09/2025 12:53

SecretNameforMN · 03/09/2025 12:48

My Bmi is 78 and even i can't get it on the NHS. I am finding great appetite suppressant in following a ketogenic diet.

Is that a typo?

usernamealreadytaken · 03/09/2025 12:53

RimTimTagiDim · 03/09/2025 10:50

Read the leaflet (that you claim to have read). Take some responsibility for your own education and stop expecting everything to be given to you.

@ExhaustedPigeon37 has a very valid point. You’ve posted a copy of the manufacturer’s instructions for use, not medical guidance. Of course the manufacturer cannot know the history of the patient and prescribe how long or at what dose the medication should be used for each individual.

Clinical guidance indicates “How do you maintain weight loss after taking Mounjaro?
To maintain weight loss after taking Mounjaro, you need to cement healthy eating habits and introduce other healthy habits to your lifestyle, like being more physically active, sleeping well, and engaging in leisure activities that you enjoy, such as accessing nature and socialising.
Mounjaro’s main action is to mimic the hormones GIP and GLP-1, which help us feel fuller for longer by communicating with the brain’s appetite control centre, the hypothalamus.
Healthy habits increase GLP-1 and GIP levels naturally and also lower circulating levels of the hunger hormone ghrelin.
After using Mounjaro, you can keep the weight off by managing your hunger naturally through healthy habits.
Recent research has supported the benefit of cementing healthy habits while taking GLP-1 medications.”

Coming off Ozempic slowly could prevent weight gain, study shows

Patients could wean themselves off blockbuster obesity drugs such as Ozempic or Wegovy without piling the pounds back on, according to a scientific study.

https://medicalxpress.com/news/2024-05-ozempic-slowly-weight-gain.html

Periperi2025 · 03/09/2025 12:54

justteanbiscuits · 03/09/2025 12:40

It had to be consultant prescribed - I have bilateral (benign) adrenal tumours. I've been prescribed it since November last year

My diagnosis is looking more like cyclical Cushing's disease but to get a confirmed diagnosis they have to catch 3 peaks and 2 troughs (got lots of records of troughs but only one peak recorded so far).
But the big push in fitness tracking r&d at the moment is continuous sweat cortisol monitors so hopefully in the next few years it will all get so much more straight forward to get a diagnosis. Then i can presents my case for nhs funding of my mounjaro, and maybe some treatment for the Cushing's too, although that's a whole other minefield.

Will you have a bilateral adrenalectomy, that option just sounds plain terrifying to me?

justteanbiscuits · 03/09/2025 13:01

MargoLivebetter · 03/09/2025 12:46

Diabetes UK posted the following on 28th August:

"What's the latest with the shortage of GLP-1 RAs?
It has now been reported that previous shortages of the GLP-1 agonists Ozempic (injectable semaglutide), liraglutide, dulaglutide and exenetide have now been resolved. There is also a good supply of Rybelsus (oral semaglutide) and Mounjaro (tirzepatide). "

Hopefully, your pharmacy will see stock again soon.

I tried multiple pharmacies - all said they are having their stock limited.

If I want to pay I can get it. It seems it's just pharmacies having the amount limited. But this is a much cheaper (and much better, health wise, for me) alternative to surgery and a life time on steroids and other drugs. life with no adrenal glands is pretty shitty.

justteanbiscuits · 03/09/2025 13:02

usernamealreadytaken · 03/09/2025 12:48

The leaflet you've posted is the instructions for use, not medical guidance. Doctors, clinicians and NICE recommend periods of use, not drug manufacturers, thankfully, otherwise every single life issue would be medicalised and there would be a lifelong pill for it.

Prescribers who have patient history recommend how and when to use medications, not developers or manufacturers. “How do you maintain weight loss after taking Mounjaro?
To maintain weight loss after taking Mounjaro, you need to cement healthy eating habits and introduce other healthy habits to your lifestyle, like being more physically active, sleeping well, and engaging in leisure activities that you enjoy, such as accessing nature and socialising.
Mounjaro’s main action is to mimic the hormones GIP and GLP-1, which help us feel fuller for longer by communicating with the brain’s appetite control centre, the hypothalamus.
Healthy habits increase GLP-1 and GIP levels naturally and also lower circulating levels of the hunger hormone ghrelin.
After using Mounjaro, you can keep the weight off by managing your hunger naturally through healthy habits.
Recent research has supported the benefit of cementing healthy habits while taking GLP-1 medications.”

It doesn’t say on my paracetamol leaflet that I can’t take it forever, but my doctor or pharmacist will tell me it’s a short term medication used to treat acute symptoms.

Strange how my doctor(s) say that paracetamol is fine for long term use. I take 6 daily and have for a number of years.

PinkArt · 03/09/2025 13:03

LovelyLuluu · 03/09/2025 12:51

A BMI of 78- what's your height and weight?

Please don't ask this of people. @SecretNameforMN is on another thread I'm on, which is a safe space for those of us with a significant amount to lose, and lots of people don't even feel comfortable sharing their stats there. AIBU is anything but a safe space!

justteanbiscuits · 03/09/2025 13:07

Periperi2025 · 03/09/2025 12:54

My diagnosis is looking more like cyclical Cushing's disease but to get a confirmed diagnosis they have to catch 3 peaks and 2 troughs (got lots of records of troughs but only one peak recorded so far).
But the big push in fitness tracking r&d at the moment is continuous sweat cortisol monitors so hopefully in the next few years it will all get so much more straight forward to get a diagnosis. Then i can presents my case for nhs funding of my mounjaro, and maybe some treatment for the Cushing's too, although that's a whole other minefield.

Will you have a bilateral adrenalectomy, that option just sounds plain terrifying to me?

Mounjaro is preventing me needing a bilateral adrenalectomy. It took 2 years of testing, urine collection, steroid testing with 8am blood tests. Mounjaro has improved the adrenalin and cortisol highs / lows by around 75%, and associated migraines etc etc enormously too. I've gone from crashing multiple times a week, to less than monthly. I am lucky that my consultant suggested it having simply read about how it can benefit people with similar disorders.

Unfortunately, taking breaks recently seems to have a longer term negative reaction.

usernamealreadytaken · 03/09/2025 13:07

Periperi2025 · 03/09/2025 12:35

Pituitary tumors are rarely malignant for starters.

"Higher BMI and waist circumference, from early adulthood to the time of diagnosis, were associated with higher risk of pituitary adenoma." Cote et al 2021 This doesn't mean the tumour is caused by weight gain, it just means they've suffered in silence for a long time before diagnosis.

Cause or effect hasn't been established for obesity/ adrenal incidentalomas (also benign tumours), although there is a correlation.

Cushing's can cause metabolic syndrome with or without weight gain, so you can get skinny or normal weight patients with terrible metabolic markers.

Also not all pituitary tumours are the same, just because your friends didn't cause weight gain doesn't mean that others don't.

“Also not all pituitary tumours are the same, just because your friends didn't cause weight gain doesn't mean that others don't.”

Just because some people have a genuine metabolic or endocrine condition which causes or exacerbates weight gain, doesn’t mean some people aren't just fat because of their own actions. The exception does not make a rule. My son has a genuine diagnosed congenital condition which, among other issues, makes him more likely to have ADHD (also diagnosed) and autism (strongly indicated but not diagnosed); I have absolutely no doubt that some people self-diagnosing ADHD do not have the condition, and lifestyle changes would vastly improve symptoms but are often too difficult (ie involve effort they can’t be bothered with).

YouSirAreAnIdiot · 03/09/2025 13:08

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

justteanbiscuits · 03/09/2025 13:10

SecretNameforMN · 03/09/2025 12:48

My Bmi is 78 and even i can't get it on the NHS. I am finding great appetite suppressant in following a ketogenic diet.

Your GP really needs to refer you to secondary care weight lost clinic at that level of BMI. Don't let them fob you off, insist on it.

PinkArt · 03/09/2025 13:11

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Is this helpful?

YouSirAreAnIdiot · 03/09/2025 13:12

PinkArt · 03/09/2025 13:11

Is this helpful?

because it is blatantly not true

YouSirAreAnIdiot · 03/09/2025 13:13

I have looked at some charts and they do not even go that high

User14March · 03/09/2025 13:13

MargoLivebetter · 03/09/2025 12:43

I agree, so why did you say this?

"Part of the problem is that because a few people have an actual serious condition, it gives those who are just fat and lazy to jump on their bandwagon to so much of an extent that medics have defined general obesity as a disease."

I still don't understand the conflation of fat and lazy?!

I didn’t say it.

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