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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
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usernamealreadytaken · 03/09/2025 08:21

Periperi2025 · 02/09/2025 21:15

It's not just ignorance around disordered eating it's ignorance around metabolic disorders too (which are often poorly understood, and under diagnosed).

I am in the process of being diagnosed with an extremely rare endocrine disorder that has suppressed my pituitary function causing amongst other things an early menopause and metabolic syndrome.

Prior to starting mounjaro i had tried intermittent fasting (a terrible idea in hindsight with messed up cortisol), C25k (a total failure due to having extremely poor recovery from exercise due to unmeasurably low testosterone levels), upf free, zero caffeine, literally anything i could think of the feel better, let alone control my weight.

But i still have to fund my own mounjaro (which i don't really mind too much i just wish the prices hadn't gone up) and i still get subjected to the same ignorance as everyone else trying to take positive action to manage their health. To most people I'm just viewed as someone who needs to eat less, move more, use more willpower.

I'd normally say that i wouldn't wish a pituitary disorder on anyone, but i can make exceptions!!

I’m really sorry for your struggles, and glad you are finally getting some of the help you need, but are you seriously suggesting that over 50% of the population has developed serious endocrine conditions in the last few decades? Part of the problem is that because a few people have an actual serious condition, it gives those who are just fat and lazy to jump on their bandwagon to so much of an extent that medics have defined general obesity as a disease. Smoking is t a disease; drug addiction isn't a disease, so why is fat?

usernamealreadytaken · 03/09/2025 08:27

MsRumpole · 02/09/2025 21:29

We would and do give alcoholics drugs to reduce alcohol cravings and maintain abstinence.

www.nhs.uk/conditions/alcohol-misuse/treatment/

And all of the drugs listed give a timeframe for taking them, none say they are lifelong.

MargoLivebetter · 03/09/2025 08:31

usernamealreadytaken · 02/09/2025 22:52

You’re being disingenuous. T2 is often caused by obesity, which is largely avoidable if individuals don’t overeat the wrong stuff. “Food noise” is a trendy new tern the drug companies have come up with to make it all a bit softer.

Plenty of people criticise people who have disastrous and unnecessary cosmetic surgery then lumber the NHS with the cleanup costs.

Arguably, the DC with “seemingly endless” minor injuries are just front-loading their NHS costs, as they are more likely to remain healthy and active and be less of a burden in later years.

Given that so many children are obese, do you think lifelong drug dependency is a healthy way to steer them, or instilling a better health attitude from a young age?

In response to your last point, I do not think that lifelong drug dependency for obese children is the answer at all. I think the answer is so complex that it is probably impossible to achieve.

It involves addressing poverty first and foremost. The economically disadvantaged are 35% more likely to be obese than others.

Once you drag people out of poverty, you then have to address the sale of hideously unhealthy cheap food that is brain crack and encourage people to make their own food from scratch.

You also have to deal with the collapse of social structures in society that mean that people are more isolated and have less support be that from extended family, the church (whatever religion you may have been), long standing workplaces, community hubs, geographical stability etc. Isolated people are more likely to suffer from mental illnesses such as depression which again increases the likelihood of them becoming obese.

You also have to provide access to medical support and better children services so that child abuse is spotted more quickly. Again abused individuals are far more likely to become obese (as well as become drug addicts, alcoholics, criminals etc).

I'm sure there are many other strands to it all as well, but that is just for starters.

In the meantime, the NHS could make WLI more readily available and cut national obesity rates dramatically within 12 months and everyone could enjoy all the benefits that go with that.

usernamealreadytaken · 03/09/2025 08:37

Catladyof7 · 02/09/2025 21:33

THAT DOES NOT MEAN THAT WORKS FOR EVERY HUMAN BEING ON THE PLANET .
i have to put it in capitals as its like banging your head against a brick wall to get some people to understand, but still they dont .

Looks like every single being is exactly the same , body wise, health wise and we should all do the same thing, eat the same and nobody in the world will ever be overweight or ill

IT ACTUALLY DOES, IN EVERY OTHER PERSON IN THE (GENERALLY NOT WESTERN) WORLD WHO DOES NOT HAVE THE CHOICE TO FILL THEIR BODY WITH UPF SHITE.

Countries where people eat a diet comprised of actual food, where they move a bit more, have little obesity - usually only in the wealthy who have access to more, or those with genuine metabolic disorders. Obesity issues arise where countries suddenly have access to UPF and are able to choose this over actual food - multiple studies have been done in remote places, and within cultures such as Japan where obesity correlates with processed food.

It is very rare for people to be able to consume adequate calories and still put on weight, without overconsumption and lack of movement.

In these cases, the exception does not (well, should not) make the rule.

BIossomtoes · 03/09/2025 08:39

In the meantime, the NHS could make WLI more readily available and cut national obesity rates dramatically within 12 months and everyone could enjoy all the benefits that go with that.

What part of the NHS would you cut to pay for that? It would be an ongoing cost because it appears from this thread that the treatment is required for life because apparently people lack the self discipline to eat an appropriate diet.

usernamealreadytaken · 03/09/2025 08:40

MargoLivebetter · 02/09/2025 21:40

So if it is so easy how do you explain the global obesity epidemic?

Availability, price, and people choosing ease/convenience over effort (otherwise known as laziness).

usernamealreadytaken · 03/09/2025 08:46

Miriabelle · 02/09/2025 22:10

It costs a hell of a lot more for the NHS to treat the long term systemic costs of all the different illnesses that are caused or worsened by obesity, including diabetes, kidney failure, liver failure, cancer, sleep apnoea, heart failure, dementia etc. etc., many of them conditions that are comorbid and require huge amounts of NHS time and money.

If the NHS mass funded WLI then the saving in the reduction in long term costs would be astonishing. Your future taxes would go further and your future health care and access to healthcare would be far far better if that happened. Money would be freed up to treat and cure many other illnesses, as well as providing better healthcare to everyone. Still think the NHS shouldn’t fund these drugs?

Try reading Coffeeandcrochet · Yesterday 21:46 post to add a little more context to your assertion.

LovelyLuluu · 03/09/2025 08:50

DarkForces · 03/09/2025 07:37

Evem if that is true, do you think I deserve to die early if it can be prevented? The NHS will pay for medication to treat any disease I develop but not the underlying cause. It makes no sense. There's presumably fatties in your life you'd prefer lived longer and healthier lives? If not can't you see the benefits at a population level?

The NHS will pay for medication to treat any disease I develop but not the underlying cause.

Of course it makes sense because being overweight is self-inflicted unlike many other diseases that are a matter of chance or genes, in some cases. The underlying cause is your own inability to control your food intake.

The NHS also pauses certain types of surgery until the person has lost weight otherwise their recovery will be limited (and waste NHS money.)

You're coming at this the wrong way. You have personal responsibility to keep yourself healthy. Being a healthy weight is one way to start.

Beachwalksinwinter · 03/09/2025 08:53

When posters suggest 'eat less move more' they get shot down by other posters who say they don't understand the science. I understand that all the weight reduction diets reduce calorie intake - intermittent fasting etc and once people lose weight they are likely to move more. The 800kcal diet looking to reverse diabetes being an example. I understand the scientifically proven addictive nature of calorie dense ultra processed foods. I understand the relevance of metabolism..but we have known that for a long time. I also understand the soothing nature of food and how we use this as an emotional crutch. What am I missing? Surely in the end we are eating too much of the wrong things.

AnnaQuayInTheUk · 03/09/2025 08:56

värskekapsas · 03/09/2025 07:37

it is so upsetting how some people attack you with its your fault and stop putting food in your mouth. I am sorry you have to read that. Would you try wegovy? I know its not as good but still better than nothing? I am hoping in the next few years they should release tablets and apparently they should be cheaper. My mother is in another country and she has been prescribed semiglutide tablets for weight loss so it already exist in some countries and cost her about €100 a month so much cheaper than Munjaro

My GP talked through options with me and talked about tablets, but felt that MJ would give me better outcomes.

My diabetes nurse talked through potential side effects before I took my first injection and said she had 80 patients on MJ and had only had one whose side effects were so extreme that he had to stop. He then took tablets instead. So they are definitely available on the NHS if you meet the criteria, and I presume can also be bought privately

40YearOldDad · 03/09/2025 09:03

Comedycook · 02/09/2025 10:37

Too many people view obesity as a moral failing and that comes across in this thread..try harder, more willpower, don't eat shit blah blah blah. If it was that easy for people we wouldn't have the obesity levels within our population that we do. We don't just tell depressed people to try harder and cheer up.

You could counter that by saying, Why are Japan's obesity rates 5% and the UK's 65%?

MargoLivebetter · 03/09/2025 09:10

usernamealreadytaken · 03/09/2025 08:40

Availability, price, and people choosing ease/convenience over effort (otherwise known as laziness).

The laziness thing does make me laugh. It is so absurd. What makes you think overweight or obese people are lazy? Like so many other people with weight struggles I was a single parent working full time - hardly lazy person territory. Whilst being fat, I completed two five day SAS run expeditions in wild territory and did numerous sports. I am definitely not exceptional!!!!!!

Whilst on WLI, I was no less or more lazy than I ever had been previously. I simply do not understand the point you are making.

Please explain to me how you believe fat people are somehow more lazy than other people?

JTBB33 · 03/09/2025 09:10

Hakunatomato · 02/09/2025 10:18

I have reversed my hypertension, and my cholesterol levels as a result of taking this medication. I am staggered that a medical professional is condoning me becoming unhealthy again just so I can be prescribed the medication. I’m not asking for an expensive drug. I have tried every diet under the sun including the fasting. This worked for me. I am so pissed off that despite working my whole life, 40 years paying NI , that I am refused something that will now shorten my life and cause me complications. I hate this country. There is no reward for working and doing the right thing. Take the piss, and everything is handed to you on a plate.

You are literally everything that is wrong with this world. Just stay healthy and stop being so entitled!

cowbags73 · 03/09/2025 09:12

As someone that has self-funded, lost 6 stone, stopped jabbing then regained four stone (in 20 months) you have to do everything you can to continue the healthy eating and exercise.
I wish I had, but have just had the worst 20 months from hell with work place bullying, anxiety and depression, then a herniated disc which laid me flat for 12 weeks. All I could do was comfort eat.
I don’t think I’ll return to jabbing because I now know what to eat and how important exercise is.
Please don’t give up because you can still do it without the needle. Good luck!

ExhaustedPigeon37 · 03/09/2025 09:13

The whole point of MJ is that whilst you are on it you create a healthier lifestyle. Eat healthy, do exercise, get fitter. You don’t use it just to lose weight and not change any habits. And yes before any of you come for me I was on it. I lost 2 stone, I also went to the gym in this time and ate healthy, stopped drinking as much alcohol and increased my water intake. I am now off of it, am I perfect? NO! However I have now learnt how to eat healthy and the days I work out I eat more to fuel my body. Personally I didn’t really like MJ, I was on it for 6 months and I felt like I was starving myself because I never felt hungry and I would forget to eat, it wasn’t a healthy way to lose weight! Which is why I started looking into fuelling myself rather than eating because I’m hungry and it’s changed my life.

If you haven’t changed any habits whilst on it you will put on everything and more than what you have lost. It’s a tool to help not a miracle cure.

A bit like the gastric band, when you have it and it causes you to eat less, but if you are having sugary drinks or high in fat meals every day you won’t reap the benefits of it and you will fail because it’s a tool not a miracle cure for bad habits.

RimTimTagiDim · 03/09/2025 09:24

The whole point of MJ is that whilst you are on it you create a healthier lifestyle. Eat healthy, do exercise, get fitter. You don’t use it just to lose weight and not change any habits.

No, that isn't the point of it.

Where are people getting this shite from?

MsRumpole · 03/09/2025 09:28

usernamealreadytaken · 03/09/2025 08:27

And all of the drugs listed give a timeframe for taking them, none say they are lifelong.

The poster said that we don't give drugs to reduce alcohol cravings, which was incorrect. I didn't understand her to be talking about whether they're prescribed for life or not and I haven't advocated that the NHS should blanket fund people to stay on it for life.

ExhaustedPigeon37 · 03/09/2025 09:28

RimTimTagiDim · 03/09/2025 09:24

The whole point of MJ is that whilst you are on it you create a healthier lifestyle. Eat healthy, do exercise, get fitter. You don’t use it just to lose weight and not change any habits.

No, that isn't the point of it.

Where are people getting this shite from?

So people expect to just lose weight and not create better lifestyle habits? Absolutely ridiculous! Everyone wants something for nothing and no one wants to actually help themselves! Maybe the OP should ask why and how they became so overweight at nearly 21 stone in the first place and look to address the issues rather than expecting the NHS to pick up the pieces!

jbm16 · 03/09/2025 09:30

They aren't condoning you becoming unhealthy, perhaps just take some ownership for your own health!

IDontHateRainbows · 03/09/2025 09:31

i'm on mj 10mg prescribed for diabetes but the main reason I'm staying on it long term isn't to lose weight as I'm now at my goal weight but because it has cured my binge eating disorder, overnight, and I no longer have to fight the incessant voice in my head telling me to eat everything in sight all the time. That's honestly worth more to me than the weight loss although the two are of course related.

I think people who haven't struggled with this have no idea.

If I stop taking the MJ that voice will come back and i'll inevitably put on weight but it's the mental anguish as well as the physical.

Luckily i get it on the NHS and will continue to take it as long as they prescribe it.

Periperi2025 · 03/09/2025 09:37

usernamealreadytaken · 03/09/2025 08:21

I’m really sorry for your struggles, and glad you are finally getting some of the help you need, but are you seriously suggesting that over 50% of the population has developed serious endocrine conditions in the last few decades? Part of the problem is that because a few people have an actual serious condition, it gives those who are just fat and lazy to jump on their bandwagon to so much of an extent that medics have defined general obesity as a disease. Smoking is t a disease; drug addiction isn't a disease, so why is fat?

Between 1.4% to 27% (depending on criteria) of people are found to have pituitary incidentalomas (tiny tumours) on post mortem, and 2-4% of people have Adrenal incidentalomas. These tumours have previously been discounted as incidental findings (hence the name) but it's starting to become apparent that they may not always be as inoccous as previously thought and could account for a significant proportion of the people that mumsnet and the rest of social media love to judge, belittle and preach "eat less, move more, use more willpower".

It's worth considering that even the medical establishment don't fully understand metobolic medicine, and that YOU certainly don't.

Beachwalksinwinter · 03/09/2025 09:39

@IDontHateRainbows My son takes MJ for diabetes. He also has PWS which results in obsessive compulsion around food (very different but I want to demonstrate that I do understand about the drug).
I would like to know (not necessarily from yourself as I don't want to put you on the spot) when this constant food chatter started and why?

MargoLivebetter · 03/09/2025 09:48

@Beachwalksinwinter for me the food chatter started in childhood. I was abused and the only form of relief and comfort I had was food. I have battled with my weight and self-hatred all my life and finally in my mid 50s, thanks to 3 years of therapy and 7 months of WLI, I have found a degree of normalcy in my relationship with food.

I had no idea what it was like not to constantly think about food until I took WLI. It has been a revelation for me and gave me the space to optimise what I had learnt in therapy.

I believe I will always be a work in progress, in the same way an alcoholic is always an alcoholic, but for the first time ever I am genuinely hopeful that I have found a way forwards.

I am deeply saddened and disappointed to read of the intolerance, willful misunderstanding, lack of compassion and contempt that posters on this thread (and I therefore imagine many people IRL) have for fat people.

rainingsnoring · 03/09/2025 09:52

RimTimTagiDim · 03/09/2025 09:24

The whole point of MJ is that whilst you are on it you create a healthier lifestyle. Eat healthy, do exercise, get fitter. You don’t use it just to lose weight and not change any habits.

No, that isn't the point of it.

Where are people getting this shite from?

What 'is the point of it', in your opinion? What do you think people using it should be doing or working towards?

Zov · 03/09/2025 09:59

jbm16 · 03/09/2025 09:30

They aren't condoning you becoming unhealthy, perhaps just take some ownership for your own health!

Yep, exactly!

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