i understand if you have never experienced ARFID before then your sisters situation is really difficult to understand, because putting yourself in someone elses shoes is hard if you have never seen the situation before. i truly understand that, and i want to say my thoughts compassionately because i truly want to help you understand what she might be going through.
when i was a baby my mum was told by the health visitor "just put food in front of her and she'll have to eat it." this was when i could eat one single food. my mum tried this, and i didnt eat it. i couldnt. last year i was diagnosed with ARFID after having years and years of struggling with eating and self hatred. i couldnt go out with friends because i couldnt eat anything, i felt like i was a burden on everyone around me as they all had to make sure anything i was invited to i could manage because the lack of calories i had make me fatigued all the time. ive had people laugh at my packed lunches all my life. ive missed out on multiple opportunities to go abroad with college, and even to visit oxford univeristy, because i cant eat anything other than my few safe foods. i cant move out for university because i have to be with my parents who support me with my eating. ive missed out on so much because of ARFID.
we've known i was autistic from a very early age but as there is no support for or understanding of ARFID, we didnt know i had it until just last year. my mum was shamed by doctors, other mums, and even my school for not feeding me the right things. but the truth was i couldnt eat anything. even now at 17, i can only eat 10 to 12 different foods. they are all beige foods. after years of both me and my mum being shamed and ridiculed for my diet, i spend every day thinking "any food is fuel." so even if that means all i can manage is half a slice of toast on a morning, ive fueled my body. even if it isnt one of the super healthy and green breakfasts you see on instagram, its fuel. fuel is good.
even if all her son can eat is beige food, it is fuel. i would rather eat a good amount of my safe foods of toast, biscuits and halloumi sticks, than eat tiny amounts of green foods that can make me gag and even make me sick. even if it doesnt look the healthiest, your sisters child is being fed and fuelled, and that should always be the most important take away from situations like these.
i hope my story can help people understand that ARFID is a real, painful thing to deal with, and that not everything is as it seems. a kid eating mostly crisps and bread may look like a badly behaved kid with a "bad" parent, but actually its a kid who is fed and fuelled with a supportive parent who understands their needs. sending lots of hugs op xx