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Share your dilemmas and get honest opinions from other Mumsnetters.

Upset by way govmt is managing disability benefits change

208 replies

Rosie8880 · 21/03/2025 18:05

The narrative government is sharing about disability benefits changes is upsetting. They speak about the ballooning of claims & how this is unsustainable. Isn’t this connected to the collapse of NHS, waiting times and people awaiting for diagnosis, unable to get treatment. The most vulnerable people in society are being impacted and there are other ways to bring in income // reduce spending (Tax wealth, and by wealth mean multi millionaires/ rather than poorest in society). This is not the way. Like to hear about those that are impacted.

OP posts:
cheesestringss · 22/03/2025 14:38

seems like other organisations assume the same - the burden to care for those who lose PIP and their carer (due to loss of carers allowance) will largey fall on already cast strapped councils and will cost a lot more than £81 per week. It's just absolutely bonkers.

www.theguardian.com/society/2025/mar/22/government-plans-to-cut-pip-benefits-could-pile-more-pressure-on-councils

KitsyWitsy · 22/03/2025 15:58

cheesestringss · 22/03/2025 10:12

It's bloody scary. My eldest has severe learning difficulties and only scored 2s but across the board and in the end, with many points. They awarded 2 points for budgeting even though she can make calculations up to 10 by using both hands. She wouldn't be able to add up 10p and 5p and calculate change if she buys something for 80p and hands over a pound. She is chatty (but with the understanding of 5/6 year old of the world but because she talks, she only got 2 points. She can read simple words but nothing else. Again, this got us only 2 points. She will lose her pip when she is reassessed even though ahe needs 24/7 care. I will lose carers too. I have no idea what people think will become of us. My other child is currently inpatient and waiting for a bed on a psychiatric ward. Suicide attempts, hearing voices, almost daily self harm. This is exactly the group that is being targeted by the government. No everybody is just a bit sad. How are families like ours supposed to survive? esp if I cannot work due to 24/7 caring but losing all benefits. How is going to look after them if I am forced to work? I really wonder what people will think?

You need help filling in the forms. If your child has severe difficulties and the mental age of a 5/6 year old there should be no issue getting PIP or anything else. My oldest is severely autistic but can do lots of things and is very good at maths and English, but he is definitely unable to take care of himself and is at a daycentre everyday. I am not worried about losing his PIP and I think there is a lot of alarmist stuff being posted that will really scare people who are unable to think a bit critically about what they read online.

Annajones101 · 22/03/2025 16:03

Everyone knows that a sizeable chunk of people are milking the system. Theres nothing wrong with them. The government needs to cut benefits deep. Much much deeper than what they have said.

Whatisthislife02 · 22/03/2025 16:06

I am at a lost really about what happens to family like ours and it’s like when ever I see these threads it always turns in to nuero divergent and mental
health but what about the others.

my daughter is currently still a child but older end and it won’t be long before we know it when she is 16 and applying for pip but until 23 won’t be entitled to LWCA.

I don’t think she would even qualify for pip looking at the assessment.

she has complex health needs but we have really tried to not let it effect but ultimately she suffers daily and she wants a career she does but she won’t be employable for very long with the amount of time she will be off sick.

from the pip side of things I think she would score 2 on a few diff areas but even in eating and nutrition her biggest problem she would only score a 2 which is absolutely madness.

Violashifts · 22/03/2025 16:17

Lanifers · 21/03/2025 22:32

I bet most of the people impacted voted labour too! How ironic.

The Tory's wanted a voucher system.

ComfortingSounds · 22/03/2025 16:29

Violashifts · 22/03/2025 16:17

The Tory's wanted a voucher system.

The Tories made sure it was difficult or even impossible to access basic health care.

Quelle surprise that the nation is full of unhealthy people.

TheWorminLabyrinth · 22/03/2025 17:35

cheesestringss · 22/03/2025 14:38

seems like other organisations assume the same - the burden to care for those who lose PIP and their carer (due to loss of carers allowance) will largey fall on already cast strapped councils and will cost a lot more than £81 per week. It's just absolutely bonkers.

www.theguardian.com/society/2025/mar/22/government-plans-to-cut-pip-benefits-could-pile-more-pressure-on-councils

Yep, and still, on the millionth thread about this subject, not one single person can explain how they think this will be better. How they think they are going to benefit.

Kirbert2 · 22/03/2025 17:43

Oioisavaloy27 · 22/03/2025 11:26

They said under 22 so DLA will be affected, there's lots of families on the Contact group that are not happy because dla is under the age of 22.

I thought they said under 22 in the context of those who are currently claiming PIP and UC.

I didn't think DLA was even mentioned other than the age is going up from 16 to 18 when you switch to PIP if needed.

Growsomeballswoman · 22/03/2025 17:49

I don’t believe everyone knows a sizeable chunk of people milking the system. I honestly don’t think you can

Vincenoirsrootboost · 22/03/2025 17:49

Annajones101 · 22/03/2025 16:03

Everyone knows that a sizeable chunk of people are milking the system. Theres nothing wrong with them. The government needs to cut benefits deep. Much much deeper than what they have said.

Ignorant comment with a sweeping statement and no sources to back it up.

What is this ‘sizeable chunk’, how are you qualified to determine whether there is ‘nothing wrong with them’?

Why do you think that disabled people are acceptable collateral in tackling benefit fraud?

TheRealMcKenna · 22/03/2025 17:52

MrsBennetsPoorNerves · 22/03/2025 12:32

I think the solution needs to be a better assessment process and/or a better appeals process.

Very few people claiming these benefits right now are going to say, fine, I don't need them after all, I will just go back to work. They will inevitably say that they are too ill to do so, and many of them may believe this wholeheartedly. That doesn't necessarily mean that they couldn't go back to work if they were appropriately supported to do so. (Which is a big "if", I acknowledge.)

So there needs to be some sort of effective professional assessment, carried out by an appropriately qualified individual who isn't under pressure to meet performance targets etc, to determine whether these people would be capable of work and what support they might need.

Pushing the most vulnerable people into poverty cannot be the solution.

Whilst this is the ‘ideal’ it ends up being completely unworkable in practice.

This was supposed to be the intention when PIP replaced DLA in the first place. The ‘holistic’ assessment was supposed to not just assess functional disability but also the way it affected a person at a given time.

I’ll give an example of the way the original consultation for PIP was supposed to assess my disability - visual impairment.

The example gave two scenarios in the consultation. One was a woman blind from birth withe diabetes. She was assessed as needing help with taking medication and mobility but no other care needs as she had adjusted to her disability. She would have been awarded no care component but enhanced mobility. The second was a man who had suddenly lost all eyesight. He was considered to need substantial care until he ‘got used’ to his condition and so would be awarded enhanced care and mobility for a limited time.

This was in the actual consultation document and yet we can all see how utterly unworkable this would have been as an assessment.

PIP was a bad replacement for DLA which was suffering exactly the same upwards creep in award rates. Likewise, ESA was a bad replacement for Incapacity Benefit which GPs didn’t want to be responsible for turning people down for.

Access to Work is a joke. It made life way harder than it needed to be for me. Jobcentre+ made me feel awful about the support I needed to carry on with my job. Every year it was a battle trying to get my support package renewed. I had far less difficulty getting approved for ill health retirement (in a scheme where it is often said that if you have a pulse you are deemed fit to work) than I did annually getting my support worker approved.

It’s all a mess.

Vincenoirsrootboost · 22/03/2025 18:00

cheesestringss · 22/03/2025 14:38

seems like other organisations assume the same - the burden to care for those who lose PIP and their carer (due to loss of carers allowance) will largey fall on already cast strapped councils and will cost a lot more than £81 per week. It's just absolutely bonkers.

www.theguardian.com/society/2025/mar/22/government-plans-to-cut-pip-benefits-could-pile-more-pressure-on-councils

A PP said something along the lines of everyone having to make sacrifices to ‘get the country back on its feet’. I wonder if much higher council tax will be an acceptable sacrifice that they’re willing to make.

cheesestringss · 22/03/2025 18:21

Vincenoirsrootboost · 22/03/2025 18:00

A PP said something along the lines of everyone having to make sacrifices to ‘get the country back on its feet’. I wonder if much higher council tax will be an acceptable sacrifice that they’re willing to make.

yes, 'everyone' as long as it doesn't affect them because they don't have a disability/long term health condition. I bet they would like to do their bit if it comes to higher taxation in any shape or form. Just 'everyone with a disability'. They tend to forget to mention that little detail when they talk about everyone.

TheRealMcKenna · 22/03/2025 18:26

Vincenoirsrootboost · 22/03/2025 18:00

A PP said something along the lines of everyone having to make sacrifices to ‘get the country back on its feet’. I wonder if much higher council tax will be an acceptable sacrifice that they’re willing to make.

Of course not.

Whilst ‘everyone’ accepts that taxes need to rise, they tend to think someone else should be the one to pay it.

Whilst ‘everyone’ thinks that more disabled people need to return to work, they are less willing to accept that they might have to pick up the slack if one of their colleagues is not quite as productive as they are.

I’ve heard it all a million times.

ComfortingSounds · 22/03/2025 18:34

I presume since they're happy for disabled people to go cold and hungry, they themselves are also prepared to do the same.

Go hungry for your country!

hostileenvironment · 22/03/2025 19:34

Sorry to upset your sensibilities let’s talk about it in the way that you think is best shall we? What makes you the arbiter of how people should feel about this? You’re not the only “vulnerable person” here you know. This is a forum for people to express their opinions - stop policing & patronising them.

Ihad2Strokes · 22/03/2025 19:41

Vincenoirsrootboost · 22/03/2025 18:00

A PP said something along the lines of everyone having to make sacrifices to ‘get the country back on its feet’. I wonder if much higher council tax will be an acceptable sacrifice that they’re willing to make.

But she didn't mean 'everyone' she meant disabled people unable to work need to make the sacrifices.

Ihad2Strokes · 22/03/2025 19:43

cheesestringss · 22/03/2025 18:21

yes, 'everyone' as long as it doesn't affect them because they don't have a disability/long term health condition. I bet they would like to do their bit if it comes to higher taxation in any shape or form. Just 'everyone with a disability'. They tend to forget to mention that little detail when they talk about everyone.

Exactly.

Apparently, disabled people just don't want to

🙇🏻‍♀️🙇🏻‍♀️🙇🏻‍♀️

Bathnet · 22/03/2025 19:52

Vincenoirsrootboost · 22/03/2025 17:49

Ignorant comment with a sweeping statement and no sources to back it up.

What is this ‘sizeable chunk’, how are you qualified to determine whether there is ‘nothing wrong with them’?

Why do you think that disabled people are acceptable collateral in tackling benefit fraud?

It isn’t really about tackling fraud. You’re missing the point and purpose of the changes. It’s about not subsiding the lives of people with low level health restrictions who are capable of work

LoztWorld · 22/03/2025 19:57

cheesestringss · 22/03/2025 14:38

seems like other organisations assume the same - the burden to care for those who lose PIP and their carer (due to loss of carers allowance) will largey fall on already cast strapped councils and will cost a lot more than £81 per week. It's just absolutely bonkers.

www.theguardian.com/society/2025/mar/22/government-plans-to-cut-pip-benefits-could-pile-more-pressure-on-councils

It’s because it’s not really about saving money.

Vincenoirsrootboost · 22/03/2025 20:04

Bathnet · 22/03/2025 19:52

It isn’t really about tackling fraud. You’re missing the point and purpose of the changes. It’s about not subsiding the lives of people with low level health restrictions who are capable of work

I haven’t missed any point. I was responding to a specific post that lazily suggested large scale PIP fraud.

Do you really think that ‘low level health restrictions’ are awarded PIP? Personal Independence Payments are for exactly that - to enable people to have a greater degree of independence than they would otherwise be able to due to their disability or serious, chronic health conditions.

Bathnet · 22/03/2025 20:15

Vincenoirsrootboost · 22/03/2025 20:04

I haven’t missed any point. I was responding to a specific post that lazily suggested large scale PIP fraud.

Do you really think that ‘low level health restrictions’ are awarded PIP? Personal Independence Payments are for exactly that - to enable people to have a greater degree of independence than they would otherwise be able to due to their disability or serious, chronic health conditions.

Yes I do. As do the government

hostileenvironment · 22/03/2025 20:21

Whammyyammy · 22/03/2025 09:18

Ok, so PIP payment's amount to £34 billion per year. 0.2% of that is £68 million.
So pip fraud costs tax payers £68m and you think that's OK?

Edited

No of course I don’t! I object to the rhetoric overstating how much benefit fraud the DWP actually report & it being used to imply anyone who is disabled & in need of welfare support is a scrounging, lying cheat committing benefit fraud. But it’s not everyone it’s 0.2%. This narrative is incredibly damaging & discriminatory to disabled people. Obviously.

Vincenoirsrootboost · 22/03/2025 20:24

Bathnet · 22/03/2025 20:15

Yes I do. As do the government

How horribly smug and ignorant you are. Please do more research, that’s not actually what the government think at all.

TheWorminLabyrinth · 23/03/2025 00:51

I'll ask again. Ninety millionth time.

How do you "taxpayers" (that are online every day) think you will benefit from these changes?