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Upset by way govmt is managing disability benefits change

208 replies

Rosie8880 · 21/03/2025 18:05

The narrative government is sharing about disability benefits changes is upsetting. They speak about the ballooning of claims & how this is unsustainable. Isn’t this connected to the collapse of NHS, waiting times and people awaiting for diagnosis, unable to get treatment. The most vulnerable people in society are being impacted and there are other ways to bring in income // reduce spending (Tax wealth, and by wealth mean multi millionaires/ rather than poorest in society). This is not the way. Like to hear about those that are impacted.

OP posts:
Pelican29 · 21/03/2025 20:48

DrummingMousWife · 21/03/2025 20:40

I feel so sorry for disabled people who are caught up in this uncertainty. Sadly, I feel that all the fraudulent claims and pee taking has forced the government into a corner. Some people have absolutely taken advantage and now the consequences of this are hurting some of society’s most vulnerable people.

I feel this too. I know people will flame me for saying this but I help a lot to claim and do a lot of renewal forms am amazed by how some keep getting awarded it. Fortunately the ones with severe disability usually get awarded it correctly though.

Vincenoirsrootboost · 21/03/2025 20:50

The cuts are bad enough but messaging is even worse. They’re effectively endorsing the most horrible ableism.

The documents for the consultation aren’t even available in accessible formats.

Puyyt · 21/03/2025 20:51

Also anxiety and depression are over diagnosed.

People that have SERIOUS issues are being told they have these (I'm one of them) when there are a lot of other complex things going on but GPs dont have time or the inclination to properly diagnose. Its an easy 'get out'.
Then the people who need other tretament and support arent getting it because they arent being diagnosed properly so it seems like everyone is staying home with 'mild anxiety '

You dont get PIP for mild anxiety

LoztWorld · 21/03/2025 20:52

So sorry to everyone faced with this stress and uncertainty. DH tells me that our DC once adult would not qualify for most support under the new rules. I haven’t looked closely at the specifics myself because I’m burying my head in the sand, but we’re talking about a genetic condition where adults are nonverbal, cannot be left home alone, need help with every aspect of personal care, and are functionally like toddlers at best.

If my DH is right about this the mind boggles.

Fraudornot · 21/03/2025 20:56

I do wonder how many people who are on full disability benefits are saving money that would have previously have been spent by the state in looking after people. So many people are now carers for loved ones and are in poverty because of that. If this was really about getting disabled people into work they would have set up the infrastructure first and then made the cuts. It’s all v sad in my view

indigovapour · 21/03/2025 21:01

Costs ARE ballooning and it IS unsustainable. Would you prefer they just pretended that wasn’t the case and did nothing about it?

There are limited options as to what can be done - the pie isn’t growing so we can’t just fiddle around slicing it up differently and expect it to pay for ever more benefits.

Rosie8880 · 21/03/2025 21:01

Theunamedcat · 21/03/2025 20:45

The problem isn't with over diagnosis it's Dr's not diagnosing correctly I'm fifty I'm menopausal but they keep trying to tell me I'm anxious and depressed and offering me cbt and sertraline I don't NEED that bad back get on a waiting list bad hip waiting list bad knee waiting list if they sorted all the people on waiting lists who used to work and can't because they are waiting for surgery they would clear a lot of people off pip and benefits

But let's just go for the easy targets every time

Also they talk about extra claims they deny most claims first time anyway they are overturned on appeal which costs the taxpayers more money why are they overturned? Why do they deny claims from people with severe difficulties going from full rate to none like there legs grew back or they suddenly don't have down syndrome? There is no consistency

I’m sorry this is happening to you and a big hug firstly. That’s my feeling - the rise in claims is linked to many many people awaiting treatment/ backlog in NHS. And also, let’s not forget COVID aftermath. I’m middle aged but the impact on younger people I feel is a huge, hardly acknowledged complex issue. Cutting disability benefits trying to get people to work to save money… the money they are seeking to save could be found by taxing the very wealthy more. The argument of wealthy leaving due to potential of increased tax… the very wealthy aren’t paying hardly any tax anyway! The highest earners pay 50% via income tax. The wealthiest pay under 10% on non income based wealth, some less than 1%. That is what is needed to be reformed asap that could deliver £100millions.

OP posts:
Justhere65 · 21/03/2025 21:06

The top one per cent pay 30 per cent of all income tax revenues: a higher share than at any time in past twenty years. In other words, three in every ten pounds that the government receives in income tax is paid by just over 300,000 individuals.

Bathnet · 21/03/2025 21:08

Pelican29 · 21/03/2025 20:06

Yes it seems very harsh that if someone loses their PIP they will also lose LCWRA and if part of an older couple with no kids that would mean losing a work allowance and potentially carers element too unless they are going to allow people to keep the work allowance ?. People could literally lose over £1k + a month overnight if they lose their PIP. Who on earth could cope with that particularly when jobs are going to be hard to find for people with health difficulties. An older couple losing PIP whose partner is a carer and owning their own home could face living on £670 UC a month and both having to start job searching. I don't think they have thought things through properly to be honest. As I said above the rules do need to tighten up but for new claims not taking thousands away overnight from people that have been reliant on this money for years on end .

Edited

They’re not going to be taken away overnight. People will be assessed under the new criteria at the point that their award is due to be reviewed

Pelican29 · 21/03/2025 21:09

Bathnet · 21/03/2025 21:08

They’re not going to be taken away overnight. People will be assessed under the new criteria at the point that their award is due to be reviewed

Yes so they could lose £1k+ overnight when that review happens if they lose their PIP ! One day they have PIP, LCWRA, carers allowance etc, then that decision letter drops through the door and all benefits will stop pretty much at the same time .

Fraudornot · 21/03/2025 21:12

I was speaking today with someone who had managed to get their daughter into supported housing. It took 5 years of gradually moving. The parents have only her as a child so they are very aware that she needs to be independent before they die. Now they are terrified that with the cuts she will have to move back home and all their hard work will be for nothing. If they were to die the stark reality would be that their child would be looked after by the state and this would cost far much more than the current benefits.
cuts may be necessary but labour have admitted they have done no impact analysis on this

Bathnet · 21/03/2025 21:12

Puyyt · 21/03/2025 20:29

I will be affected.
I get standard rate for both and LWRCA. 11 points for faily living currently but all 2s and 3s. No 4 points.

Our household will lose :

£290 daily living pip (should be able to keep motability, as 10 points on that and blue badge)
£416 LWRCA
£200 from my DS being a carer
£90 non dependant deduction from housing benefit as DS living with me to care for me

Thats 996.

Thats basically all my money.

I don't know how we will survive :(

When is your award due to be reviewed? Is there anything practical you’re able to do in the meantime to prepare yourself for work?

Bathnet · 21/03/2025 21:15

Pelican29 · 21/03/2025 21:09

Yes so they could lose £1k+ overnight when that review happens if they lose their PIP ! One day they have PIP, LCWRA, carers allowance etc, then that decision letter drops through the door and all benefits will stop pretty much at the same time .

Edited

Yes I see what you mean. I thought it was meant as overnight I.e with no prior warning

Chocchips123 · 21/03/2025 21:28

Fraudornot · 21/03/2025 20:56

I do wonder how many people who are on full disability benefits are saving money that would have previously have been spent by the state in looking after people. So many people are now carers for loved ones and are in poverty because of that. If this was really about getting disabled people into work they would have set up the infrastructure first and then made the cuts. It’s all v sad in my view

Correct. Cruelty is all it is. Why?

Bathnet · 21/03/2025 21:33

Chocchips123 · 21/03/2025 21:28

Correct. Cruelty is all it is. Why?

Do you really not know why changes need to be made?

Rosie8880 · 21/03/2025 21:38

LoztWorld · 21/03/2025 20:31

Instead of cuts, tax to invest, everyone except the poorest. It’s too easy to say just tax the rich but in countries with good health and welfare systems everyone pays more tax.

High-tax countries like Finland, Denmark and Sweden are far from perfect, but if you spend a decent amount of time there and get to know residents it’s impossible to deny they are vastly superior in terms of services.

Hi I’m Finnish. This is true, but I will say - Finland is three times larger, geographically than England & has a 5.5m population compared to 65m in UK. Helsinki, it’s capital, has same population (500k) as 1.5 London boroughs ( London has 32 boroughs). We in Finland have a much better quality of life than UK due to welfare system being structured using socially progressive principles plus 50% tax for most people. BUT. The welfare benefits are huge - free public transport for families with children uo to age 3, 1-2 years paid paternity / maternity leave, if you are homeless you aren’t means tested - you are given a home…everything works public system wise etc. it’s a very different place and has benefit of no monarchy, it’s a republic, (meaning land is in main owned by its citizens/ companies not via heriditery / aristocrats as it is in England). Housing is of a high quality, it’s viewed as homes not investments, again differing from England. Pensions are generous and not reliant on assets/ investments/ housing/ property as in England. Education is from 7-18, is very high quality, with a totally different system than England - there isn’t the strange, sadistic testing testing testing of young children to produce performance reports to provide evidence for funding levels of schools etc. England can learn from Finland but England fundamentally has a different ideological system. Also England has the legacy of empire, incl commonwealth which obviously Finland does not. What’s sad is England has the wealth to not penalize the most vulnerable, and actually reverse the economic emergency/ crisis we are in. We just do not go to that wealth - mainly due to it being sovereign wealth plus the ideological stance we take.

OP posts:
Rosie8880 · 21/03/2025 21:59

Sometimeswinning · 21/03/2025 20:41

When is this happening? It’s another couple of years isn’t it?

I think in 3 years

OP posts:
Rosie8880 · 21/03/2025 21:59

Vincenoirsrootboost · 21/03/2025 20:50

The cuts are bad enough but messaging is even worse. They’re effectively endorsing the most horrible ableism.

The documents for the consultation aren’t even available in accessible formats.

Exactly this

OP posts:
Chocchips123 · 21/03/2025 22:08

Bathnet · 21/03/2025 21:33

Do you really not know why changes need to be made?

Like a lot of other changes could be made, where else are they spending money / sending it, why cut disability benefits like this ?

Rosie8880 · 21/03/2025 22:12

Justhere65 · 21/03/2025 21:06

The top one per cent pay 30 per cent of all income tax revenues: a higher share than at any time in past twenty years. In other words, three in every ten pounds that the government receives in income tax is paid by just over 300,000 individuals.

That’s the theory but… in reality the very wealthiest do not pay their fair share. I’m a high earner and pay 50% tax on income. On non income based wealth I pay less than 10% - this is not fair. Then the very wealthy pay under 1%. The threat of HNW leaving uk .., considering the minimal actual tax paid … under Thatcher (not endorsing her…) income and wealth tax was much much higher. Unfortunately, we have had such a low rate of tax for the wealthiest we must rebalance it - if we continue to place this pressure in vulnerable, working and middle classes there simply won’t be the money in economy - all monies will as they are now transfer to the wealthiest and our economy, as it is now, will get increasingly smaller/ unproductive. If we continue to cut education, welfare, health, our people will be less able as we are seeing now, to work, costing state more. We have no option morally as well as fiscally to tax wealth not wages. The wealthiest - many want to live in uk/ London for the culture, social, lifestyle benefits that we have here. Some will leave for tax reasons but they just aren’t paying tax now so the loss isn’t as severe as reported…

OP posts:
Rosie8880 · 21/03/2025 22:17

Bathnet · 21/03/2025 21:08

They’re not going to be taken away overnight. People will be assessed under the new criteria at the point that their award is due to be reviewed

The stress this must be causing for those impacted must be huge - I really feel for them

OP posts:
Orangesandlemons77 · 21/03/2025 22:19

Puyyt · 21/03/2025 20:29

I will be affected.
I get standard rate for both and LWRCA. 11 points for faily living currently but all 2s and 3s. No 4 points.

Our household will lose :

£290 daily living pip (should be able to keep motability, as 10 points on that and blue badge)
£416 LWRCA
£200 from my DS being a carer
£90 non dependant deduction from housing benefit as DS living with me to care for me

Thats 996.

Thats basically all my money.

I don't know how we will survive :(

When you get your next review appeal if you think you meet any 4 point areas. I found appeals gave me the higher point scores.

Rosie8880 · 21/03/2025 22:19

Bathnet · 21/03/2025 21:12

When is your award due to be reviewed? Is there anything practical you’re able to do in the meantime to prepare yourself for work?

But why should someone who requires carers be forced to into work if they are unable to do so? If someone wants to that is different.

OP posts:
LoremIpsumCici · 21/03/2025 22:21

Agix · 21/03/2025 18:10

They talk about anxiety and depression being over diagnosed. Of course these conditions are over diagnosed, GPS can't be arsed to actually investigate symptoms, especially if you're a woman. Head could be half off and you'd still get slapped with an anxiety diagnosis.

No such thing as “over diagnosis” by doctors.
Very sad people are falling for this.

Puyyt · 21/03/2025 22:23

Bathnet · 21/03/2025 21:12

When is your award due to be reviewed? Is there anything practical you’re able to do in the meantime to prepare yourself for work?

My award is till summer 2027 I think.

A lobotomy maybe?

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