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Share your dilemmas and get honest opinions from other Mumsnetters.

Upset by way govmt is managing disability benefits change

208 replies

Rosie8880 · 21/03/2025 18:05

The narrative government is sharing about disability benefits changes is upsetting. They speak about the ballooning of claims & how this is unsustainable. Isn’t this connected to the collapse of NHS, waiting times and people awaiting for diagnosis, unable to get treatment. The most vulnerable people in society are being impacted and there are other ways to bring in income // reduce spending (Tax wealth, and by wealth mean multi millionaires/ rather than poorest in society). This is not the way. Like to hear about those that are impacted.

OP posts:
cheesestringss · 22/03/2025 10:28

JobhuntingDespair · 22/03/2025 10:24

@cheesestringss

Did your DD get PIP the first time, or on appeal?
I'm asking because the assessments are not fit for purpose and assessors play down, ignore things, and even lie. They often don't even look at medical evidence until reconsideration/appeal!
So I'm thinking your DD would have scored higher if an appeal had been made. I appreciate people wouldn't go through the hassle of this if they have managed to qualify enough, but now these people like yourself will have to appeal to get the correct points to qualify.

ok, so I appeal next time. the tribunal waiting lists are about a year. What happens in this 12 months when we cannot access PIP and by extension no carers allowance and UC support? How are people like us supposed to survive? We can't be the only ones. Someone must have thought about it.

TheWorminLabyrinth · 22/03/2025 10:33

cheesestringss · 22/03/2025 10:28

ok, so I appeal next time. the tribunal waiting lists are about a year. What happens in this 12 months when we cannot access PIP and by extension no carers allowance and UC support? How are people like us supposed to survive? We can't be the only ones. Someone must have thought about it.

This! I keep making this point and none of the "about time this happened" posters can respond. If carers are to be put in the position of being forced to find employment, then the burden of care for their family members will fall to the local authorities and will cost thousands and thousands of pounds, far more than the paltry £81.90 per week which carers are paid for their labour. So exactly how will these changes benefit all these disgruntled hardworking taxpayers?

Vincenoirsrootboost · 22/03/2025 10:34

cheesestringss · 22/03/2025 10:12

It's bloody scary. My eldest has severe learning difficulties and only scored 2s but across the board and in the end, with many points. They awarded 2 points for budgeting even though she can make calculations up to 10 by using both hands. She wouldn't be able to add up 10p and 5p and calculate change if she buys something for 80p and hands over a pound. She is chatty (but with the understanding of 5/6 year old of the world but because she talks, she only got 2 points. She can read simple words but nothing else. Again, this got us only 2 points. She will lose her pip when she is reassessed even though ahe needs 24/7 care. I will lose carers too. I have no idea what people think will become of us. My other child is currently inpatient and waiting for a bed on a psychiatric ward. Suicide attempts, hearing voices, almost daily self harm. This is exactly the group that is being targeted by the government. No everybody is just a bit sad. How are families like ours supposed to survive? esp if I cannot work due to 24/7 caring but losing all benefits. How is going to look after them if I am forced to work? I really wonder what people will think?

The charities are already helping people with these questions so give your most appropriate charity a call if you can (charities shouldn’t have to fill these gaps but here we are). CAB will also support the PIP claim to make sure the points given are more appropriate, and be prepared to appeal. Also, as terrifying and demoralising as this time is for disabled people and anyone caring for disabled people, these proposals must go through parliament and will be scrutinised according to the Equality Act. They will have to be watered down before becoming reality.

We’ll all stick together and make our voices heard to protect and take care of our wonderful disabled people - try not to panic right now.

Rosie8880 · 22/03/2025 10:39

Workingmum13 · 22/03/2025 10:26

In those other countries they pay into the benefit system or directly. I can confidently assert being poor in Romania is nothing like being poor in the UK. The country is loosing to much money and is less productive then I think all other western countries. There are less then 100 billionaires in England France Germany ect. Higher tax would fall directly to people earning over 50k and pensioners whose only asset is a big expensive house that is just about running but won't cover their care cost. It really is going to have to be getting more people into work. Focusing on the young who could with help work.

Just to underscore the point one of largestest groups leaving the UK due to tax are medical professionals. If you have a medical qualification on top of lower pay then most other western countries you pay higher tax and get bad services. Unfortunately we cannot afford to loose those people.

Edited

I am a high earner and pay 50% income tax. On unearned wealth I pay less than 10%. This is not fair. The very wealthiest can afford to pay more, we need to tax wealth not neccassirily wages more. I’m not suggesting we tax more on wages ( incl those 150k + p.a at this point.) I disagree with you on other points too, but it’s okay to disagree.

OP posts:
Pelican29 · 22/03/2025 10:41

cheesestringss · 22/03/2025 10:28

ok, so I appeal next time. the tribunal waiting lists are about a year. What happens in this 12 months when we cannot access PIP and by extension no carers allowance and UC support? How are people like us supposed to survive? We can't be the only ones. Someone must have thought about it.

You and your daughter would still get basic UC standard elements and help with rent if you have rent to pay. The standard UC element is also going to be rising. Obviously wouldn't be a lot to live off compared with what you will be claiming between you now. I can see the demand for foodbanks soaring whilst people wait for appeals.

Workingmum13 · 22/03/2025 10:44

Rosie8880 · 22/03/2025 10:39

I am a high earner and pay 50% income tax. On unearned wealth I pay less than 10%. This is not fair. The very wealthiest can afford to pay more, we need to tax wealth not neccassirily wages more. I’m not suggesting we tax more on wages ( incl those 150k + p.a at this point.) I disagree with you on other points too, but it’s okay to disagree.

Same here also receive pip. One of the 20%. Unearned wealth is usually your grandparents house so that's a very wide net your suggesting that doesn't take into account circumstance. You cannot keep increasing taxes to pay for a growing benefit system. That's a logical fallacy whether now or in 10 years this was going to happen.

Workingmum13 · 22/03/2025 10:47

The problem is how quickly the benefit system is growing. So on one hand you've got less tax payers and on the other more benefit claims, that is the bottom line. I also disagree with all of your points but have a massive crush on Finland and love your threads so we are good :)

Workingmum13 · 22/03/2025 10:49

Finnish men are so hot but they seem so shy I don't get it. I'm not even straight but boy I see the appeal big on tech the Finns.

Rosie8880 · 22/03/2025 10:50

Workingmum13 · 22/03/2025 10:44

Same here also receive pip. One of the 20%. Unearned wealth is usually your grandparents house so that's a very wide net your suggesting that doesn't take into account circumstance. You cannot keep increasing taxes to pay for a growing benefit system. That's a logical fallacy whether now or in 10 years this was going to happen.

Wealth @ a much higher level as a start. Multi millions / billlions. Suggesting a focus on that target social group which will be also a smaller cohort, albeit with more means to resist. However studies show even if 10% of the total number of this group pay more - that closes out the sum current proposals are seeking to source vis welfare cuts. Less harm to society, more money in via smaller number of sources - potentially less strain on govt resources.

OP posts:
Pelican29 · 22/03/2025 10:51

Workingmum13 · 22/03/2025 10:47

The problem is how quickly the benefit system is growing. So on one hand you've got less tax payers and on the other more benefit claims, that is the bottom line. I also disagree with all of your points but have a massive crush on Finland and love your threads so we are good :)

Edited

By the time these changes/ reforms even come in and start to make savings ( if they even do? ), there will already be another million claiming PIP if the current forcasts are correct. And this is just working age disability benefits, you also have massive increased in children's DLA claims and massive numbers of pensioners claiming AA for years on end and all the extra pension credit etc that comes with that for some. I work in benefits see f the amounts that people are claiming. . A very frequent scenario I see is someone just turned pension age getting their state pension £222 a week, then often high rates of PIP both components £175 a week, pension credit with severe disability premium £82 a week, all rent and council tax covered in full because they claim pension credit, and even for the ones owning their own homes some are getting almost £500 a week in benefits . I understand of course that not everyone going into retirement will be on highest rates of PIP so will be less for some How are these amounts sustainable? I am mid fifties and one thing I can guarantee is that by the time I'm a pensioner there will certainly be nothing left in the pot for my generation !

Justhere65 · 22/03/2025 10:52

Ihad2Strokes · 22/03/2025 09:45

Oh well, just throw the most vulnerable in society under under the bus then,

Jesus wept some people

We will all have to make sacrifices to get our country back in its feet. Oh I forgot! Some people don’t want to.

ComfortingSounds · 22/03/2025 10:56

Pelican29 · 22/03/2025 10:41

You and your daughter would still get basic UC standard elements and help with rent if you have rent to pay. The standard UC element is also going to be rising. Obviously wouldn't be a lot to live off compared with what you will be claiming between you now. I can see the demand for foodbanks soaring whilst people wait for appeals.

Edited

It would not be enough to live off. That could potentially leave them with only a couple of hundred pounds a month after they've paid to top up their rent (because you only get market rate) for food, gas, electric, water, some council tax, internet, and every other possible bill and expense.

If I was healthy, lost my job and couldn't find another, it would be in my interests to persuade people I was unwell with something, just so I could actually survive. I'm not saying that people are doing that, but it makes logical sense and I would find it hard to blame someone for doing that, given the pittance job seekers are expected to live on.

The only good thing Labour has proposed with all this is raising the basic rate slightly so people can survive a period of joblessness.

Rosie8880 · 22/03/2025 10:59

Workingmum13 · 22/03/2025 10:49

Finnish men are so hot but they seem so shy I don't get it. I'm not even straight but boy I see the appeal big on tech the Finns.

This is funny! Finn’s are generally shy/ reserved. Until they drink…..!!!

OP posts:
TheWorminLabyrinth · 22/03/2025 10:59

Justhere65 · 22/03/2025 10:52

We will all have to make sacrifices to get our country back in its feet. Oh I forgot! Some people don’t want to.

How does transferring the cost from carers to local authorities help "get our country back in its feet"?

Pelican29 · 22/03/2025 11:00

Pelican29 · 22/03/2025 10:51

By the time these changes/ reforms even come in and start to make savings ( if they even do? ), there will already be another million claiming PIP if the current forcasts are correct. And this is just working age disability benefits, you also have massive increased in children's DLA claims and massive numbers of pensioners claiming AA for years on end and all the extra pension credit etc that comes with that for some. I work in benefits see f the amounts that people are claiming. . A very frequent scenario I see is someone just turned pension age getting their state pension £222 a week, then often high rates of PIP both components £175 a week, pension credit with severe disability premium £82 a week, all rent and council tax covered in full because they claim pension credit, and even for the ones owning their own homes some are getting almost £500 a week in benefits . I understand of course that not everyone going into retirement will be on highest rates of PIP so will be less for some How are these amounts sustainable? I am mid fifties and one thing I can guarantee is that by the time I'm a pensioner there will certainly be nothing left in the pot for my generation !

Edited

Sorry I should point out that many won't see state pension as a benefit, I was just trying to point out that the amounts that are being paid out to a lot of individuals.

Pelican29 · 22/03/2025 11:01

TheWorminLabyrinth · 22/03/2025 10:59

How does transferring the cost from carers to local authorities help "get our country back in its feet"?

Both city and county councils in my area are almost bankrupt already without this happening ! We will just see even more massive Council tax hikes !

Ihad2Strokes · 22/03/2025 11:02

verysmellyjelly · 22/03/2025 09:31

Yes, outrageous of her to correct a factually wrong assumption about how this will be administered. /s

Not my fault if you can't follow a conversation.

Ihad2Strokes · 22/03/2025 11:06

cheesestringss · 22/03/2025 10:25

What could I possible do to help my employability when I care around the clock? Maybe dump DC at the social services office and hand over all responsibility to them? My issue is not my lack of employability in terms of skills. It's the fact that someone needs looking after around the clock and apart from me, nobody is providing this.

You have completely misread my post, maybe take a deep breath and try again.

I was supporting you saying that the comments other posters are making about making yourself more employable by your next review were utterly ridiculous in many cases.

And I wished you all the best going forward for you and the girls

Ihad2Strokes · 22/03/2025 11:08

Justhere65 · 22/03/2025 10:52

We will all have to make sacrifices to get our country back in its feet. Oh I forgot! Some people don’t want to.

Yes those terrible disabled people who need people to help them even get out of bed in the morning let alone get washed and dressed they should all be ashamed of not doing a 70 hour week. Shame on them..

FluidDruid · 22/03/2025 11:09

These changes rely on employers taking on people who may need remote working, flexible hours, recognition of increased time off - if this doesn't happen, how will they be employed?

My role is going well at work and I'm getting an apprentice this year. I could take an apprentice with additional support needs as elements of the role can be done over a longer time period and remotely. But I also have experience in this area and work somewhere with the mentality to try and make these kinds of things work. That is really not the case everywhere. Loads of employers don't even want to have to bother taking on young people and training them so how open minded will they be for higher needs?

People make assumptions about deaf people, blind people, wheelchair users etc and the vast majority of these people can work full time with reasonable adjustments or equipment.

Justhere65 · 22/03/2025 11:10

Ihad2Strokes · 22/03/2025 11:08

Yes those terrible disabled people who need people to help them even get out of bed in the morning let alone get washed and dressed they should all be ashamed of not doing a 70 hour week. Shame on them..

Don’t be ridiculous! Who has said we have to work 70 hour weeks?

Ecotype · 22/03/2025 11:10

Agix · 21/03/2025 18:10

They talk about anxiety and depression being over diagnosed. Of course these conditions are over diagnosed, GPS can't be arsed to actually investigate symptoms, especially if you're a woman. Head could be half off and you'd still get slapped with an anxiety diagnosis.

Couldn’t agree more. Went to the dentist recently about getting a retainer for bruxism. He asked if I was anxious and had I considered antidepressants! I’m sure he wouldn’t have said that to a man.

flapjackfairy · 22/03/2025 11:10

Puyyt · 21/03/2025 20:31

Well I can't do it so fuck knows what will happen to me.

Maybe I wont be around to find out.

why do you think they àre pushing assisted dying so hard at the moment.
Call me a conspiracy theorist but I think the rules will v quickly be relaxed to cover those who don't have any quality of life left etc
Just think.of all the money they could potentially save!
It is chilling imo.

Bathnet · 22/03/2025 11:14

flapjackfairy · 22/03/2025 11:10

why do you think they àre pushing assisted dying so hard at the moment.
Call me a conspiracy theorist but I think the rules will v quickly be relaxed to cover those who don't have any quality of life left etc
Just think.of all the money they could potentially save!
It is chilling imo.

Edited

Ok, you’re a conspiracy theorist

verysmellyjelly · 22/03/2025 11:25

flapjackfairy · 22/03/2025 11:10

why do you think they àre pushing assisted dying so hard at the moment.
Call me a conspiracy theorist but I think the rules will v quickly be relaxed to cover those who don't have any quality of life left etc
Just think.of all the money they could potentially save!
It is chilling imo.

Edited

I think this is a conspiracy level take (about relaxing the rules deliberately in response to these cuts), but I do also agree with you that assisted dying has scary potential for slippery slope issues. Look at MAID in Canada and how that has been abused. I’m not 100% against assisted dying but it needs to be restricted to only definitively terminal conditions.

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