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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Changes to PIP

345 replies

Orangesandlemons77 · 16/03/2025 12:45

It looks like to qualify for PIP people will need 4 points in one area, see here from the Times
"In future, ministers will require applicants to score at least four points on at least one activity to qualify"
Not sure if this means in each section (care, mobility)

This would exclude quite a few people I think

OP posts:
Thread gallery
5
LadyKenya · 16/03/2025 16:07

PaperSheet · 16/03/2025 13:45

I’m similar. I have diagnosed autism but was only diagnosed as an adult. I’ve always struggled with getting washed and eating etc without someone prompting me.
When I was single I would sometimes not wash or clean my teeth for a few days or even up to a week. I was so skinny because unless I ate out I rarely had an actual meal. I would just eat a bag of crisps if I was hungry and that was it for the whole day sometimes.
I also struggle with certain social situations. I also once couldn’t work out a bus route or where to get on and I was so anxious about it I ended up walking home which took 3 hours.
My husband is great at reminding me and making me do these things and also helping planning things with me.
But. I work in a professional job. I earn good money. A lot of people don’t know I’m autistic because I am great at masking. I’m married. No children due to infertility though. Own my house (which I did before I met my husband). Have plenty of savings.

I think I could possibly qualify for PIP going by what others have said to me in the past. But should I? I have money. I don’t need the extra money. I can work (I do only work part time though due to repeated past burnouts but it’s still plenty to live on and save as its so well paid). I don’t have this mindset of well I CAN have it so I should apply even though I don’t need it. Plenty of others need it more.

(I’ll be honest though the older I get and see so many people taking things they don’t need, I do get more and more tempted to myself).

Yabu. No one is forcing you to apply for it.

LadyKenya · 16/03/2025 16:13

AutumnTheCrow · 16/03/2025 14:58

I think the government might also need to consider that the number of PIP awards has increased because people are getting better at answering the questions, owing to more online resources being available.

There are many excellent free websites that explain the actual PIP statute, the purpose of the descriptors, case law and tribunal judgements around the definitions of 'safely, repeatedly and to an acceptable standard' (the importance of pain, for example), and how to manage assessments, assessors, reviews, mandatory reconsiderations and tribunals.

There is truth in this. Many people either were denied PIP, or given a lower award, then they should have been, because they had no idea how to fill in the form, which was designed exactly for that purpose. The Conservatives knew exactly what they were doing when they changed people over to PIP. I believe they were also responsible for widening the criteria to include MH conditions too.

Seaitoverthere · 16/03/2025 16:16

I’m resigned my lower rate PIP going and haven’t bothered to claim for DS who is severely depressed, unable to function in anything near a normal way and we have spent a many thousands on trying to help him but sadly the psychiatrist we have been paying now feels he can’t help him as just doesn’t respond to meds.

I’m too unwell to work with a chronic autoimmune illness so DH is keeping us a float but he has T1 diabetes and after having it for over 45 years it is taking a toll on his health and I can’t see him managing to work until retirement in 12 years.

I imagine we are fucked in a couple of years but such is life I guess.

Jellycatspyjamas · 16/03/2025 16:36

It was on news this morning that people would be allowed to try a job without losing their benefits. Don't know how that would work?

I don’t know how it would work but it’s a good idea, at the moment people trying to get back into work are disadvantaged because if they try to work they loose their benefit entitle and have to go through the whole lengthy process again if the job doesn’t work out, which is real possibility if you have a disability. Often a job that looks manageable on paper turns out not to be so manageable because of work practices that in reality create barriers. If someone could try a job knowing they had some financial stability it might give them a chance to see if there was room for negotiation rather than writing off an opportunity that just wasn’t worth the risk.

TigerRag · 16/03/2025 16:42

PassingStranger · 16/03/2025 15:25

It was on news this morning that people would be allowed to try a job without losing their benefits. Don't know how that would work?

You did used to be able to do permitted work on ESA and previously incapacity benefit. You could earn a certain amount without your benefits being affected

OP posts:
Locutus2000 · 16/03/2025 17:06

TigerRag · 16/03/2025 16:42

You did used to be able to do permitted work on ESA and previously incapacity benefit. You could earn a certain amount without your benefits being affected

You can on UC LCWRA, in fact it is less restrictive.

Orangesandlemons77 · 16/03/2025 17:08

TigerRag · 16/03/2025 16:42

You did used to be able to do permitted work on ESA and previously incapacity benefit. You could earn a certain amount without your benefits being affected

I think this is still the case.

OP posts:
Willyoujustbequiet · 16/03/2025 17:14

Orangesandlemons77 · 16/03/2025 13:02

I think it would be much harder to get 4 points than two, in particular there is often 2 points for 'prompting' which would be easier to get for milder mental health problems, which they seem to be targeting.

It is also possible to get a total of 8 or 12 just with these in combination to qualify for both rates.

It wouldn't just be mental health problems, this would severely affect any claimants with autism or ADHD etc.

Rinoachicken · 16/03/2025 17:14

Unijourney · 16/03/2025 15:17

@Rinoachicken, can you help me understand how it benefits you? Is it just financial, or are their other benefits? Genuinely seeking to understand because if its financial then if your employer paid you more would still be able to work?

Is the core issue low salaries for most people, especially those with health challenges?

Edited

It largely goes towards therapy, which costs me £180 per week, which the NHS cannot/will not provide. It doesn’t fully cover it but it helps. 12 hours of therapy does not touch the sides of years of CSA, suicide attempts and chronic self harm. I have a lifelong mental disorder which needs long term therapeutic input - as outlined in the NICE guidelines for my disorder, but is simply not available on the NHS due to cost and staffing resources. So I have to pay privately. If I could get the treatment on the NHS I would give up PIP tomorrow. I expect to finish therapy within the next 12 months, at which point I will stop claiming PIP, as that’s largely what I depend on it for.

It also covers smaller stuff such as having groceries delivered (because supermarkets rarely go well for me for a number of different reasons), replacing or increased washing of clothing when I have toilet accidents due to trauma, keeping my car on the road because I am not safe using public transport (risks around trains etc) and am safer being able to travel door to door with limited time walking outside. Also it pays for my prescriptions (they are not free just because I have PIP).

JenniferBooth · 16/03/2025 17:17

Campaign Against Painful Hysteroscopy
teropdsonS0l87592mm1u1f7428mul5iagm5m65mu8ham4372c1mi48hm90u ·

@BBC Breakfast this morning at 8.01 was extolling the virtues of Warrington NHS's One Stop Shop hysteroscopy 'See & Treat' clinic. BBC Breakfast is tweeting how this 'Super Unit' will help get disabled people off 'benefits' and back to work.
Please do let the BBC have your comments. They don't seem to have heard BBC Wales & BBC Scotland's breakfast features on no-choice, painful Trial by Outpatient Hysteroscopy. Thanks!

Willyoujustbequiet · 16/03/2025 17:19

Annajones101 · 16/03/2025 15:09

Why is there so much commotion over this. The current system is unsustainable. It cannot be allowed to go on where more and more people are being given this handout.

You seriously can't imagine why the risk of most vulnerable people in society being forced into absolute poverty would cause a commotion?

Copernicus321 · 16/03/2025 17:25

PandoraSox · 16/03/2025 13:04

PIP is an in work benefit. I wish people would understand that. Lots of people on PIP work.

I think it might be clearer if your were to say that PIP is a benefit that takes no account of your employment status, you can be in and out of employment and receive PIP.

Annajones101 · 16/03/2025 17:33

Willyoujustbequiet · 16/03/2025 17:19

You seriously can't imagine why the risk of most vulnerable people in society being forced into absolute poverty would cause a commotion?

You seriously can’t believe that everyone claiming PIP is vulnerable. All 4 million of them. Thats naive.

Miley1967 · 16/03/2025 17:36

Annajones101 · 16/03/2025 17:33

You seriously can’t believe that everyone claiming PIP is vulnerable. All 4 million of them. Thats naive.

Many are claiming it whilst holding down high flying jobs.

Willyoujustbequiet · 16/03/2025 17:38

Annajones101 · 16/03/2025 17:33

You seriously can’t believe that everyone claiming PIP is vulnerable. All 4 million of them. Thats naive.

I didn't say that though did I.

But given that PIP is a notoriously difficult benefit to get then yes those in receipt of it are clearly more vulnerable than people who are unencumbered by such disabilities/health issues.

Rosesinajug · 16/03/2025 17:38

Miley1967 · 16/03/2025 17:36

Many are claiming it whilst holding down high flying jobs.

They may be using the access to work scheme, paying a lot for private therapies and treatments they can’t access as the nhs lists are too long, for all you know they could be working then getting home exhausted and in pain.

Willyoujustbequiet · 16/03/2025 17:40

Miley1967 · 16/03/2025 17:36

Many are claiming it whilst holding down high flying jobs.

It's not an out of work benefit.

Annajones101 · 16/03/2025 17:40

Willyoujustbequiet · 16/03/2025 17:38

I didn't say that though did I.

But given that PIP is a notoriously difficult benefit to get then yes those in receipt of it are clearly more vulnerable than people who are unencumbered by such disabilities/health issues.

Yeah, so difficult to get that 4 million people are on it.

Willyoujustbequiet · 16/03/2025 17:47

Annajones101 · 16/03/2025 17:40

Yeah, so difficult to get that 4 million people are on it.

If you don't think it's difficult to get then you clearly know very little about it.

It's 3.6 million so it's best not to overestimate for effect.

Also given Government figures say that approximately 16 million have a disability then the claims would appear to be relatively low.

Annajones101 · 16/03/2025 17:50

Willyoujustbequiet · 16/03/2025 17:47

If you don't think it's difficult to get then you clearly know very little about it.

It's 3.6 million so it's best not to overestimate for effect.

Also given Government figures say that approximately 16 million have a disability then the claims would appear to be relatively low.

The numbers speak for themselves. Nearly 4 million are on a benefit at you claim is hard to get. The myth that it’s difficult to get just doesn’t stack up.

Toastandbutterand · 16/03/2025 17:56

Annajones101 · 16/03/2025 17:50

The numbers speak for themselves. Nearly 4 million are on a benefit at you claim is hard to get. The myth that it’s difficult to get just doesn’t stack up.

Nothing is easy to get these days but pip is one of the hardest benefits to claim.

You are not nice.

Willyoujustbequiet · 16/03/2025 17:57

Annajones101 · 16/03/2025 17:50

The numbers speak for themselves. Nearly 4 million are on a benefit at you claim is hard to get. The myth that it’s difficult to get just doesn’t stack up.

Well it is as clearly more of 16 million would receive it otherwise. Hundreds of thousands are rejected each year.

MidnightMeltdown · 16/03/2025 18:04

Willyoujustbequiet · 16/03/2025 17:57

Well it is as clearly more of 16 million would receive it otherwise. Hundreds of thousands are rejected each year.

Less than half of PIP claims are turned down though. Figures show that the majority are successful. I do think that there’s a problem when you’ve got around 10% of the working age population on PIP. It should be means tested and/or tightened up so that only the most severely physically disabled have access to it

Cara707 · 16/03/2025 18:05

MidnightMeltdown · 16/03/2025 18:04

Less than half of PIP claims are turned down though. Figures show that the majority are successful. I do think that there’s a problem when you’ve got around 10% of the working age population on PIP. It should be means tested and/or tightened up so that only the most severely physically disabled have access to it

What about the severely mentally ill and those with learning disabilities?

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