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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to not understand MNers against neurodiversity

484 replies

UkiUki · 12/12/2024 13:30

Inspired by another thread on here today but it’s an ongoing trend.

I’ve noticed that most, if not all of the time, when a poster suggests that a behaviour may be caused by ND, other posters jump on them and seem enraged that ‘everything is explained away with neurodiversity these days’.

There has been a lot of progress in understanding these conditions which has naturally contributed to an increase in people getting diagnosed. It is especially increasing in females as, per most medical issues, the parameters for diagnoses were created around male behaviour.

As someone currently in the latter part of the long and stressful diagnosis process, my motivation to suggest ND when I recognise certain traits in situations described is that my heart goes out to those who could flourish with a little extra understanding of how their brains work, especially children. I believe I would be a different person now if I’d had the support I needed growing up, instead of just believing I was lazy, clumsy and weird.

I feel a lot of irritation and sometimes outright anger from some posters, and the suggestion that people are using ND as an excuse somehow.

Aibu to not understand where this annoyance comes from?

OP posts:
Thread gallery
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UkiUki · 12/12/2024 14:23

ChickenNuggetFromSpencies · 12/12/2024 14:12

Was it people who know you or random people online basing it on few sentences?

A bit of both.

OP posts:
UkiUki · 12/12/2024 14:24

x2boys · 12/12/2024 14:13

But you can only speak from your perspective and how ND has affected you
And just because someone may have traits that are associated with ND does not mean they are.

I agree but they also might be ND.

OP posts:
Devilsmommy · 12/12/2024 14:24

Bookgrrrl · 12/12/2024 14:07

The problem is that the widening scope of diagnosis means that the differences between NT people and people with autism are getting less and less, as this research shows:

https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2747847

(The authors also looked at schizophrenia and found a very different effect, so it’s not just about increased awareness.)

As one of these researchers said, if it continues there will soon come a point where there is no difference between some NT people and some with an autism diagnosis:

https://www.sciencedaily.com/releases/2019/08/190821111816.htm

This then trivialises the diagnosis. Recent use of ‘mental health’ in relation to just about everything has done the same to depression. As someone who has suffered from severe depression for several decades, I have found it increasingly frustrating seeing the illness trivialised over the past 10 years by people pathologising every unhappiness. Feeling down because you hate your job, broke up with someone or even just had a bad day isn’t a mental health issue, it’s a normal reaction to life not always being a bed of roses. I can have a really crappy time in life and my MH be fine, and vice versa.

Removing stigma and making sure people can access help when they need it is important, but so is ensuring that diagnoses aren’t rendered meaningless by over-inflating their scope or over-using medical terms in everyday life.

Excellent post. I also suffered crippling depression and used to get so angry at people saying they were depressed when really they were just having a shitty time and felt sad about it. If only that's all depression was

UkiUki · 12/12/2024 14:25

Havalona · 12/12/2024 14:15

Every single one of us is somewhere on the spectrum.

I think the needle can move around that dial and no one can say who or what anyone is anymore with certainty.

I do agree with others about excuses being made for mad, bad, destructive behaviour often being attributed to (undiagnosed) ASD. Sometimes it is, more often it's a cop out.

This isn’t a helpful as not everyone is diagnosable as ND. The same could be said about depression and anxiety but it wouldn’t be true.

OP posts:
Bookgrrrl · 12/12/2024 14:26

DrZaraCarmichael · 12/12/2024 14:15

Because it's given as the explanation for everything. Do you think he/she could be autistic is on every thread where someone is being a dick, along with accusations of narcissism and if the person is over 45, the fact that their behaviour is probably due to dementia.

Yes, sometimes weird/unusual/difficult behaviour is caused by neurodiversity or dementia. Sometimes, people are just being dicks.

(mum to a ND teen who is mostly lovely, sometimes a dick)

YES!! I get equally annoyed with threads about people behaving badly invariably containing people saying ‘could they be depressed?’ There are times when I have been very depressed when I have been unreasonable as a result, but (a) it doesn’t mean I can’t recognise it and apologise afterwards and (b) it’s much more common that when I’m being a cow it’s just because I’ve got the hump or am having a bad day! (like anyone else!)

A lot of terms are thrown around with little thought these days, and it’s making them meaningless. Along with ND and MH, there’s narcissist, fascist and gaslighting. Language matters.

Devilsmommy · 12/12/2024 14:26

devilspawn · 12/12/2024 14:19

Why does it have to have a label like "time blindness" though? Why is it not just a character or personality quirk or just how you are or something to remember because you're not great at it?

I feel like people are increasingly using labels as a coping mechanism or get out clause in a way that's weirdly unhealthy.

Same goes for peri/menopause. "Oh it's my peri (not me)."

It just seems like people doing anything they can do escape personal responsibility for anything instead of just going "I'm tired because I've had a long day" it has to be "I'm tired because I'm [whatever diagnosis]."

I have friends who go out of their way to get diagnosed with things and then bring it up literally every second they can and use it as a reason to not get a job etc.

"I forgot to turn the light off because I'm ADHD." You just forgot to turn the light off Karen, like every human being has done at least once in their lives.

Edited

People don't want accountability nowadays. Obviously I'm talking about people who aren't formally diagnosed

UkiUki · 12/12/2024 14:29

Ladamesansmerci · 12/12/2024 14:19

It's actually still under diagnosed in women and girls.

There is nothing wrong with seeking diagnosis and understanding yourself. It's fine to hear no.

I grew up in the 90's, and WISH there had been more understanding. I've had OCD since I was 6 (counting the dots on the ceiling endlessly, walking in a particular way to stop family dying in a car crash, having to touch things with both hands at the same pressure, etc), but this was never picked up on. I also had significant sensory difficulties which really impacted me as a child. I licked my hands excessively for years because I couldn't stand most textures. The only thing that helped was wearing a particular pair of glittery purple gloves, and I used to sob when they weren't available. Kids bullied me as I'd wear them in summer. I have weird tics like shrugging my shoulder/clearing my throat. I felt like an alien socially and I've never fit in with most people. Other kids just seemed to be able to get along easily, whereas I could barely speak as I was so shy, and I had no idea what to say. I've adapted over the years but still struggle significantly socially. I was obsessed with my hobbies to the point of making spreadsheets, and if I was into something, it was all consuming for me. I found school easy in terms of academics, but I was also very much a kid who was 'away with the fairies' and known for being chaotic and forgetful. I'm exceptionally disorganised and have been in debt before as I struggle to cope with organising and managing money. I struggled significant with mental illness when I went away for uni. I don't think I could cope living alone. I'm very easily overwhelmed.

The point is, I've spent my entire life feeling like an absolute freak. Even as an adult, I'm known as loveable but very eccentric. Most people find me odd or just a bit offbeat socially, though I'm far better than I used to be. These things have made my life hard at times. I still don't have a diagnosis, but strongly suspect I have some combination of AuDHD or sensory processing disorder. OCD is quite common with neurodivergent. It's taken many years of private therapy to be 'okay' with myself.

It would have helped me massively to grow up with support or some understanding that there were other kids likee me. I wouldn't want any one else to grow up feeling alienated from their peers like I did, as it's left me with life long poor self-esteem.

Thank you for sharing your experience. I can empathise with the feeling of being an alien beamed down here and expected to just get all of the confusing stuff going on that everyone else just seems to understand.

I feel the same as you, not wanting other children to have to feel strange and not good enough when it’s not the case and they could thrive with some understanding.

OP posts:
UkiUki · 12/12/2024 14:33

devilspawn · 12/12/2024 14:19

Why does it have to have a label like "time blindness" though? Why is it not just a character or personality quirk or just how you are or something to remember because you're not great at it?

I feel like people are increasingly using labels as a coping mechanism or get out clause in a way that's weirdly unhealthy.

Same goes for peri/menopause. "Oh it's my peri (not me)."

It just seems like people doing anything they can do escape personal responsibility for anything instead of just going "I'm tired because I've had a long day" it has to be "I'm tired because I'm [whatever diagnosis]."

I have friends who go out of their way to get diagnosed with things and then bring it up literally every second they can and use it as a reason to not get a job etc.

"I forgot to turn the light off because I'm ADHD." You just forgot to turn the light off Karen, like every human being has done at least once in their lives.

Edited

Well, because it’s very different from just being someone who happens to be late. If I am focussed on something, time ceases to exist. Even if I’ve done something a thousand times, I can’t judge how long it’ll take me and once I’ve decided how long something will take then no matter how much evidence I receive to the contrary my brain won’t believe it.

What would you see as the difference between using it as an excuse and using it as a reason? This is the bit I’m stuck on.

OP posts:
Notfeelingchristmassyatall · 12/12/2024 14:33

I always see people complaining about people who are ND using it as an excuse or more likely a reason for certain behaviours and how that’s a problem.

We allow people to use physical disabilities as an excuse for things so why is an invisible disability so different in this sense?

Yes people with autism or ADHD can learn strategies to help themselves but actually a lot of the time there are barriers to this and it’s not often just CBA.

I don’t think people realise that these actually mean that people’s brains aren’t as they should be and how massive that actually is.

lionloaf · 12/12/2024 14:34

UkiUki · 12/12/2024 14:02

I don’t agree. There was a thread a few weeks ago where a poster described some physical symptoms and another poster had similar before and it turned out to be something serious. It’s like everyone who gets constant migraines doesn’t have a brain tumor but it could be a symptom. It doesn’t hurt anyone to ask the question if it doesn’t turn out to be the case but it could hurt if the question isn’t asked and it does.

This is scaremongering. Unless you are a very close friend of someone, why would you (a non-professional with zero clue) attempt to diagnose them with a brain tumour on the back of headaches?

It is neither helpful, appropriate nor kind to tell someone their traits may be linked to neurodiversity. You can’t tell people there might be something “wrong” with their brain, and by extension themselves and their personality, unprovoked.

TheNinkyNonkyIsATardis · 12/12/2024 14:35

I have dyspraxia, and I have issues with people who want to view ND as some kind of superpower specialness and not for the disabilities they are.

I don't have bruises from a million door handles because I'm oh so clever and different. It's because my stupid brain can't move my stupid legs to the right position to not smash into things.

Yes, there are some differences in how I process things. But for the main part I would like to NOT be dyspraxic.

Gem359 · 12/12/2024 14:35

These type of threads are pointless tbh OP because you'll always have numerous posters making up threads where someone said they didn't like pasta and someone said maybe they're autistic. This just doesn't happen but it doesn't stop people spouting shit.

Then you'll get all the people saying that everyone is somewhere on the spectrum or that they know someone who blames everything on their diagnosis when really they're just doing perfectly normal things that everyone does (implying their diagnosis is nonsense).

Basically everything that you say upsets or annoys you in your original post -well someone will find a way to shoe horn that very thing into the thread. People who are not ND don't have a clue, and a lot of people who are ND only know what they are like and don't always realise others may be impacted very differently.

Vinvertebrate · 12/12/2024 14:36

Every single one of us is somewhere on the spectrum.

Offensive and untrue.

MN is a bit schizophrenic on this issue. A DC causing trouble in school because of behavioral issues caused by autism = exclude them from everything that involves NT children being inconvenienced, deny there is any disability to be accommodated, and blame the parents. Adult struggling with executive function, being a crap spouse or just generally unpleasant to be around = he sounds just like my autistic DH/DW (who can't help it, bless).

FWIW when childless, I used to think a lot of so-called neurodivergence was actually poor diet, too much TV and lax parenting. Then I had a severely autistic child who is utterly impervious to discipline, rules, social norms, the opinions of others, consequences etc. I know better than that now, but children like my DS are absolutely fair game on here - and ableist views concerning neurodivergence are never moderated.

UkiUki · 12/12/2024 14:36

Legoandloldolls · 12/12/2024 14:22

IDK. I think ND people get upset rightly when someone is being a bit of a shit and someone pipes up its a ND trait.

All my kids are ND. I suspect me and dh are. But unless you was to ask me outright I would never ever suggest anyone might be ND. Never. A mum from my sons SN school asked me if thought she was ND as someone else had suggested it. She has two ND kids snd was OUTRAGED at the suggestion. So minefield to swerve imo.

I don’t think I’d say it in person unless it was someone very close and they asked my opinion on it. And then I would just share my experience of it. But saying that I did suggest to a friend that they might be depressed because they were showing some worrying signs and I wanted them to get help which they did. Not sure if that’s the same or not in terms of the minefield.

OP posts:
ohdelay · 12/12/2024 14:38

UkiUki · 12/12/2024 14:20

I’m sorry if that’s what you’ve experienced because it shouldn’t be that way. I’ve had a terrible time with medical professionals but I’m fortunate to have a DH and a couple of close friends who are happy I’m going through those process as it’s added some context to our relationships.

It's not a problem for me since I'm pushing 50 and am comfortable in my skin. I do mention it to my son as he is at the sweet spot where he thinks it matters with school, EHCP meetings, lots of attention, but no friends. Medical professionals and teachers fall in to the paid for category, outside that there are people who get you and people who don't. You can't force it by whipping out a diagnosis.

Crunchingleaf · 12/12/2024 14:39

UkiUki · 12/12/2024 14:06

I agree with some people just having these behaviours but we can’t know that’s the case or not from a short story on here. My confusion is why it’s seen as a negative to mention it could be a ND trait.

When I see a thread where a poster is describing some terrible parenting and there is a badly behaved child now. It does seem very insulting to all the lovely behaved ND children that posters will jump in and suggest ND when a child misbehaves.

Maybe those posters mean well but many people out there do on a subconscious level equate bad behaviour with ND.

UkiUki · 12/12/2024 14:41

Bookgrrrl · 12/12/2024 14:26

YES!! I get equally annoyed with threads about people behaving badly invariably containing people saying ‘could they be depressed?’ There are times when I have been very depressed when I have been unreasonable as a result, but (a) it doesn’t mean I can’t recognise it and apologise afterwards and (b) it’s much more common that when I’m being a cow it’s just because I’ve got the hump or am having a bad day! (like anyone else!)

A lot of terms are thrown around with little thought these days, and it’s making them meaningless. Along with ND and MH, there’s narcissist, fascist and gaslighting. Language matters.

Maybe my way of seeing it is wrong but if someone might be depressed or might not, surely it’s better to say it and be wrong than not say it and it get worse. Like you’ve described, sometimes depression presents as being nasty rather than the stereotypical crying and not getting out of bed. What if you weren’t able to see it as depression but you knew something was different. If you came on here and posters jumped on those suggesting depression it might dissuade you from seeking help.

OP posts:
CandyMaker · 12/12/2024 14:41

ND seems to be the first explanation some posters jump to without exploring anything else. For example, a mum posts about the challenging behaviour of her child. Straight away some people suggest ND. But further questioning tells us that the behaviour is relatively new, mum left a violent husband six months ago, has met a new man who has moved in, and they are trying to have a baby. Sometimes there are other fairly obvious reasons for a child's challenging behaviour.

UkiUki · 12/12/2024 14:44

lionloaf · 12/12/2024 14:34

This is scaremongering. Unless you are a very close friend of someone, why would you (a non-professional with zero clue) attempt to diagnose them with a brain tumour on the back of headaches?

It is neither helpful, appropriate nor kind to tell someone their traits may be linked to neurodiversity. You can’t tell people there might be something “wrong” with their brain, and by extension themselves and their personality, unprovoked.

But it’s not unprovoked. People come on here to ask advice. The human experience is based on extrapolating information from our lived experience and applying it to future scenarios.

OP posts:
lionloaf · 12/12/2024 14:46

UkiUki · 12/12/2024 14:06

I agree with some people just having these behaviours but we can’t know that’s the case or not from a short story on here. My confusion is why it’s seen as a negative to mention it could be a ND trait.

Just because you feel positive/relieved/whatever in your diagnosis, doesn’t mean that will be the same for everyone.

You are, in effect, telling someone you think there is something “wrong” with them. That their brain, personality, and self isn’t “normal”. That could be deeply upsetting to hear.

You can’t dish out random diagnoses just because you are neurodiverse. It’s not an appropriate way to speak to people! I don’t understand why you’re failing to grasp this?

You aren’t a professional, you aren’t in a position to diagnose, you can’t diagnose anything based on a few traits/quirks/preferences anyway, so why not just keep your notions to yourself instead of projecting them onto other people?

UkiUki · 12/12/2024 14:47

Gem359 · 12/12/2024 14:35

These type of threads are pointless tbh OP because you'll always have numerous posters making up threads where someone said they didn't like pasta and someone said maybe they're autistic. This just doesn't happen but it doesn't stop people spouting shit.

Then you'll get all the people saying that everyone is somewhere on the spectrum or that they know someone who blames everything on their diagnosis when really they're just doing perfectly normal things that everyone does (implying their diagnosis is nonsense).

Basically everything that you say upsets or annoys you in your original post -well someone will find a way to shoe horn that very thing into the thread. People who are not ND don't have a clue, and a lot of people who are ND only know what they are like and don't always realise others may be impacted very differently.

Edited

I just wanted to understand it a bit better because I see it so often and thought I must be missing something.

OP posts:
UkiUki · 12/12/2024 14:49

Crunchingleaf · 12/12/2024 14:39

When I see a thread where a poster is describing some terrible parenting and there is a badly behaved child now. It does seem very insulting to all the lovely behaved ND children that posters will jump in and suggest ND when a child misbehaves.

Maybe those posters mean well but many people out there do on a subconscious level equate bad behaviour with ND.

This is a very interesting point that I hadn’t considered in such a concise way. Maybe some people do just associate bad behaviour with ND. I can imagine that must be very difficult for people with ND children.

OP posts:
lionloaf · 12/12/2024 14:51

UkiUki · 12/12/2024 14:44

But it’s not unprovoked. People come on here to ask advice. The human experience is based on extrapolating information from our lived experience and applying it to future scenarios.

As repeated throughout this thread, the advice sought is about dealing with behaviour or situations, and yet people want to diagnose the people in the story with whatever neuro condition they deem fit.

Maybe you could give a different perspective on handling a situation in light of your neurodiversity, but you can’t extrapolate a condition onto someone else just because of your experience.

Vinvertebrate · 12/12/2024 14:51

It does seem very insulting to all the lovely behaved ND children that posters will jump in and suggest ND when a child misbehaves.

Why? Autistic traits include lack of impulse control, sensory overwhelm/meltdown, not understanding social rules like 'when to stop' before things get out of hand. Of course autism presents differently in everyone, but "bad" behaviour can be a key marker of autistic children, who are no less disabled or deserving than their beautifully behaved ND peers. What they are is less socially acceptable, because society wants to blame someone (mothers, usually) for what the child is unable to control.

Most of the children at my DC's specialist school for autistic/ADHD kids would be considered "naughty" by MN standards. The school works hard to manage those behaviours whilst recognising that often the child just cannot control their reactions in an age-appropriate way, and is not making a "choice" to misbehave.

I'd rather suggest ND to a struggling parent and be wrong, than increase that child's trauma by letting the parent continue with typical parenting methods (time out, consequences, etc) that will just never work on some ND kids.

Iwishiwasagiraffe · 12/12/2024 14:51

lionloaf · 12/12/2024 14:46

Just because you feel positive/relieved/whatever in your diagnosis, doesn’t mean that will be the same for everyone.

You are, in effect, telling someone you think there is something “wrong” with them. That their brain, personality, and self isn’t “normal”. That could be deeply upsetting to hear.

You can’t dish out random diagnoses just because you are neurodiverse. It’s not an appropriate way to speak to people! I don’t understand why you’re failing to grasp this?

You aren’t a professional, you aren’t in a position to diagnose, you can’t diagnose anything based on a few traits/quirks/preferences anyway, so why not just keep your notions to yourself instead of projecting them onto other people?

I agree. And in another recent post, a parent is saying over and over again that she has no concerns re ND, her daughter doesn’t have any other traits bar one which is totally normal for the stage of life she is in. And yet posters are ignoring this and saying over and over again ‘it sounds like adhd!’ The post wasn’t even about whether the child was ND or not

it’s baffling why anyone would think this was appropriate

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