My late husband was left with permanent hemiparesis because a junior doctor was left to cope with A&E and nurses brushed me off when I asked when DH was getting his scan. (By the time a senior doctor came on, 4 hrs had passed and it was too late for a clot busting injection.)
A Charge Nurse in the Acute Stroke ward complained to me that my husband was "refusing to eat" and would have a hypo - her concern seemed to be that they'd be blamed.
At that point, I was perfectly polite, though distressed. I asked why they hadn't contacted a member of the diabetes team to see him.
I'd already had to tell the staff that something was wrong with DH. I thought he'd had another stroke. It was a UTI. His fault, the Charge Nurse told me, for not drinking enough water.
She wanted me to agree to bring in "home cooked food" to persuade him to eat. After she left, his food was brought in: flan and peas on a flat plate, with an ordinary knife and fork. [ETA We weren't allowed to visit during meal times - I was on my way out when the food was brought in.]
My husband couldn't sit up in bed properly at that point. (He'd already had a bad fall after being left alone the evening of the stroke - he'd forgotten he couldn't walk and tried to get up to the loo. He'd also fallen out of an ordinary armchair - they'd not had him seen by an OT to sort out a suitable chair and I'd queried that. He was black down one side.)
His left hand didn't work at all. His right hand shook - the stroke had mainly hit his left side, but was more or less centred.
I went to see the Charge Nurse and asked why DH hadn't been assessed by an OT - clearly, no one had seen him, though he'd been in the ward for a few days: even an idiot could have seen that he couldn't feed himself with the utensils he'd been given.
[At the time, I was also caring for my mum who had dementia, working full time and we'd been coming to the end of an extension build - to move in Mum - the day that the stroke hit.]
The CN told me she'd fetch a doctor. A young doctor came in. I explained the situation and asked why an OT hadn't been brought in to advise on eating utensils. (At home, I'd purchased special dishes and so on for my mother, to make it easier to eat one handed.)
"Oh, well...Now that you've drawn this to our attention..."
That was when I finally lost it. "Hello?! This is the Acute Stroke Ward?!"
Thereafter, the Charge Nurse hated me, but I don't think they took it out on DH. DH's son flew up to see him and I'd primed him to ask about the diabetes.
They got a Diabetic Nurse in to see DH. Guess what? His sugar wasn't low - it was far too high. He wasn't getting enough insulin. Turns out that sugar levels spiralling is a well-known phenomenon with strokes.
This is the one time when being a pain in the butt worked in our favour - after a fortnight, DH was moved into the rehab ward of the hospital of my choosing. They'd wanted to move him into the cottage hospital where rehab would have been minimal. A retired nursing pal had told me which hospital to ask for.
I think that they were so worried about repercussions from the failure to give the scan on time and fed up with me that they wanted DH moved on. (Other patients - I later discovered - had been stuck in that ward for more than 2 months.)
So...I'm sure that certain posters on here would be appalled at my behaviour. My only regret is not having created merry hell in A&E.