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To be fed of of vile comments re disability and pip- so come on those people suggest a job for me.

294 replies

Laughydodo · 03/10/2024 23:22

Named changes for this

Fed up of the vile comments about disability including on mumsnet.
(I know it’s a minority on here). Especially against those who claim PIP.

Fed up of feeling like a second class citizen because I claim benefits.

Fed up of people saying my mental health will improve if I am at work.

Fed up of disability top trumps with people saying things like- I have this , this and this disability and I manage to work.

Fed up that some people seem be hoping that Pip is abolished and then people like us will have to find another way to support ourselves. Also so fearful of this happening.

I clung onto work for years with having epilepsy and fibromyalgia. Fighting to stay in while employers were trying everything to get rid of me. I would be let go from one job on health grounds only to start the process again and it end the same way.

I now claim pip and esa as i have up to 20 seizures a week. Half of which I lose my memory and speech (I don’t even recognise my husband at times) and are totally wiped out for half a day at least . Would love some of the smug arseholes that’s seem to think everyone can work find someone who is willing to employ me. Oh and I piss myself as well and lose control of my bowels with many of my seizures. This is without the pain of fibro coming into it all.

So come on then these people on here who think all disabled people should work- suggest all the jobs that I can do that will benefit my mental health so I won’t be a burden on the state. Would you honestly be happy to employ me?

Sorry but the self righteous comments from people who dont have a clue is really starting to boil my piss. Oh and one day it might happen to them. I was 22 when I developed epilepsy, 30 when I got fibro after having glandular fever. I would not wish this one anyone obviously but people seem to forget that disability can happen at any time.

So waiting for the jobs suggestions to begin and the list of employers that would employ me-

OP posts:
Chipsintheair · 06/10/2024 10:29

Errors · 06/10/2024 09:52

I’m sure MNHQ will remove any posts they think break the talk guidelines.
Let’s stop shutting down conversations just because some people don’t like to hear opposing views shall we?

These aren't "opposing views," but a form of ableism where people who do not understand either the system or the lived experience of disabled people are repeating the very prejudices and stereotypes which have been spread as propaganda in coordinated campaigns (hence the UN investigation into UK human rights breaches on the subject). I.e. hate speech.

Shyfrog · 06/10/2024 10:31

Rachie1973 · 06/10/2024 10:10

Oh I don’t get the benefits system at all. It’s bizarre.

we’ve had to apply for universal credit for the first time recently.

my DH has multiple myeloma cancer. He suffered 6 broken vertebrae from it, and is heavily medicated with morphine for pain.

the cancer is terminal in that you can’t cure it. Not a 3-6 month type prognosis. Could be a month, a year, 5 years. It will relapse though and stop responding to chemo at some point.

as a result he was awarded higher rates of PIP.

I had to give up my job to become his full time carer. Gutted. I lived my job.

We also have responsibility for 2 small children.

off we went to the job centre where we are told. I don’t have to come in anymore as I’m a carer and therefore exempt from a job search.

my DH though, with his terminal cancer has to have an appointment with his work coach! Even the advisor had the good grace to chuckle. She called over his job coach who shook his head in disbelief.

the appointment was supposed to be at 9am in person. I’m lucky if I can even wake him from his morphine haze by 9!

in fairness to them they sent us to the GP to get a ‘fit note’ to say he couldn’t work, the GP was horrified and quite bluntly added an email saying she couldn’t put an end date on a fit note due to the nature of the disease.

the appointment has been moved to the phone and they openly admit that this is a paper pushing exercise. It seems like such a waste of everyone’s time though!

in what society is someone with a terminal diagnosis ever supposed to look for work??

That can’t be right. He needs to be getting LCWRA to be exempt from work search. Ask for the forms at the job centre

Rachie1973 · 06/10/2024 10:39

Shyfrog · 06/10/2024 10:31

That can’t be right. He needs to be getting LCWRA to be exempt from work search. Ask for the forms at the job centre

Edited

Thank you for the advice @Shyfrog

It’s all new to us! All advice gratefully received xxx

Gloriia · 06/10/2024 11:04

'None of you know what it is like to have to go through the process of claiming PIP, unless you have had to do it yourself. To make judgments about other people and their personal circumstances, without even meeting them is cruel '

But many people will know either through their own disabilities or supporting relatives. I said earlier I attended an assessment with a relative and the assessor did not understand basic medical terminology. Their report was full or errors. This is the standard of the people assessing others, so if they are incompetent and judge those with genuine conditions incorrectly then it really isn’t a stretch to accept that they judge those who may be exaggerating incorrectly too. The assessors don't seem competent or knowledgeable.

There are record numbers of claimants and this impacts on those with genuine disabilities massively. The government is again reviewing the process, not because they won't care about those with disabilities rather those with manageable medical illnesses seem to think they are entitled to claim.

We have esa for temporary conditions, pip should be allocated to those seriously affected by chronic disabilities.

TigerRag · 06/10/2024 11:11

Gloriia · 06/10/2024 11:04

'None of you know what it is like to have to go through the process of claiming PIP, unless you have had to do it yourself. To make judgments about other people and their personal circumstances, without even meeting them is cruel '

But many people will know either through their own disabilities or supporting relatives. I said earlier I attended an assessment with a relative and the assessor did not understand basic medical terminology. Their report was full or errors. This is the standard of the people assessing others, so if they are incompetent and judge those with genuine conditions incorrectly then it really isn’t a stretch to accept that they judge those who may be exaggerating incorrectly too. The assessors don't seem competent or knowledgeable.

There are record numbers of claimants and this impacts on those with genuine disabilities massively. The government is again reviewing the process, not because they won't care about those with disabilities rather those with manageable medical illnesses seem to think they are entitled to claim.

We have esa for temporary conditions, pip should be allocated to those seriously affected by chronic disabilities.

In order to claim PIP, you needs have to have lasted for at least 3 months and expected to last another 9. I doubt many are claiming on the basis of temporary health conditions.

LakieLady · 06/10/2024 11:19

Shyfrog · 06/10/2024 10:31

That can’t be right. He needs to be getting LCWRA to be exempt from work search. Ask for the forms at the job centre

Edited

They don't issue the forms at the JCP.

If someone has a terminal diagnosis, a certificate or other documentary evidence should suffice. Someone in the PPs position needs to get that to the job centre together with a covering letter from her husband, stating that his condition is now terminal and requesting reassessment as a result. When it's a cancer diagosis, I'd recommend approaching Macmillan, as they have very good advisers who are specialists in exactly this.

It should be fast tracked and they should not actually require a reassessment to take place, but practice varies massively between JCPs and half the work coaches don't seem to have a clue. (This issue has been cropping up for our clients since UC started and we think we now have it nailed, to the point that we've created our own standard letters.)

It seems to me that sometimes the DWP want to have it both ways. They want people to tell them the minute there's a change in circumstances, but when that change is reported the same DWP don't have a clue what to do about it and work coaches make it up as they go along. My manager is on good terms with the DWP regional manager (they used to work with them!), and she's raising it with them directly.

Rachie1973 · 06/10/2024 11:43

LakieLady · 06/10/2024 11:19

They don't issue the forms at the JCP.

If someone has a terminal diagnosis, a certificate or other documentary evidence should suffice. Someone in the PPs position needs to get that to the job centre together with a covering letter from her husband, stating that his condition is now terminal and requesting reassessment as a result. When it's a cancer diagosis, I'd recommend approaching Macmillan, as they have very good advisers who are specialists in exactly this.

It should be fast tracked and they should not actually require a reassessment to take place, but practice varies massively between JCPs and half the work coaches don't seem to have a clue. (This issue has been cropping up for our clients since UC started and we think we now have it nailed, to the point that we've created our own standard letters.)

It seems to me that sometimes the DWP want to have it both ways. They want people to tell them the minute there's a change in circumstances, but when that change is reported the same DWP don't have a clue what to do about it and work coaches make it up as they go along. My manager is on good terms with the DWP regional manager (they used to work with them!), and she's raising it with them directly.

Thanks @LakieLady

we find the issue is the definition of a ‘terminal’ illness. Because it’s Myeloma and incurable and will cause I’m to die at some point, it is terminal.

Because there is no set time frame, one person managed 12 years! It’s hard for people to recognise it as such.

Errors · 06/10/2024 14:03

Chipsintheair · 06/10/2024 10:29

These aren't "opposing views," but a form of ableism where people who do not understand either the system or the lived experience of disabled people are repeating the very prejudices and stereotypes which have been spread as propaganda in coordinated campaigns (hence the UN investigation into UK human rights breaches on the subject). I.e. hate speech.

Even if that is the case, do you not believe that those conversations should still be available to read? If someone posts something you deem to be ignorant, and you set them straight, do you not think that reading that dialogue is helpful for people so they can make their own minds up based on a range of different views? Rather than simply deleting it all?

Differentstarts · 06/10/2024 15:58

Errors · 06/10/2024 14:03

Even if that is the case, do you not believe that those conversations should still be available to read? If someone posts something you deem to be ignorant, and you set them straight, do you not think that reading that dialogue is helpful for people so they can make their own minds up based on a range of different views? Rather than simply deleting it all?

Not when it's blatant lies no.

XChrome · 06/10/2024 16:29

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

wombat15 · 06/10/2024 18:50

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I have read the first few posts and they are unbelievably nasty.

XChrome · 06/10/2024 21:22

wombat15 · 06/10/2024 18:50

I have read the first few posts and they are unbelievably nasty.

Lol. Looks like one of the people on that thread reported my post, which was not about any specific person, so that's a false report. Not that MNHQ cares. They delete almost anything that is reported.
I'll repost the link to the thread with many ableist attacks on the OP;

https://www.mumsnet.com/talk/amibeingunreasonable/5179600-to-expect-some-kindness-and-empathy-from-dh

They'll probably report this as well. 🙄

To expect some kindness and empathy from DH | Mumsnet

I have been feeling unwell for a while now and am on medication for thyroid issues & a couple of other things. I usually feel horrible, depressed...

https://www.mumsnet.com/talk/am_i_being_unreasonable/5179600-to-expect-some-kindness-and-empathy-from-dh

wombat15 · 06/10/2024 21:27

XChrome · 06/10/2024 21:22

Lol. Looks like one of the people on that thread reported my post, which was not about any specific person, so that's a false report. Not that MNHQ cares. They delete almost anything that is reported.
I'll repost the link to the thread with many ableist attacks on the OP;

https://www.mumsnet.com/talk/amibeingunreasonable/5179600-to-expect-some-kindness-and-empathy-from-dh

They'll probably report this as well. 🙄

Edited

Unbelievable that they deleted what you said. You were talking about a thread in general rather than a specific poster.

XChrome · 06/10/2024 21:37

wombat15 · 06/10/2024 21:27

Unbelievable that they deleted what you said. You were talking about a thread in general rather than a specific poster.

I guess some people on that thread took it very personally, because they know it's true that they were gang bullying the OP. I should thank them for illustrating my point so well.

Errors · 07/10/2024 16:16

Differentstarts · 06/10/2024 15:58

Not when it's blatant lies no.

Why? Someone posts ‘blatant lies’ and you correct them. Someone else reading it gets educated.
Still shouldn’t be deleted IMO

Errors · 07/10/2024 16:19

There is a trend on MN, seemingly following the rest of society, where someone can make a general statement of opinion about something and then someone else reads it, gets personally offended by it, reports it and it gets deleted.

itsgettingweird · 07/10/2024 16:24

People don't understand medical refractory epilepsy.

They think a few AEDs cure it.

Sadly it's not just the having seizures and the post ictal recovery. They affect on MH about when the next one will appear is horrendous.

It's a shame you can't work if you want too. But absolutely no judgement here for the fact you can't. Just lots of well wishes that they find something that helps control yours Flowers

Differentstarts · 07/10/2024 16:41

Errors · 07/10/2024 16:16

Why? Someone posts ‘blatant lies’ and you correct them. Someone else reading it gets educated.
Still shouldn’t be deleted IMO

Because people on here are guliable so spreading false information doesn't help

Workingmum13 · 19/03/2025 20:10

DERAIL

This company is excellent they work with biggest companies globally and my cousin told me her experience it's things like this that help. I'm aiming to recruit from them soon.

auticon.com/

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