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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be fed of of vile comments re disability and pip- so come on those people suggest a job for me.

294 replies

Laughydodo · 03/10/2024 23:22

Named changes for this

Fed up of the vile comments about disability including on mumsnet.
(I know it’s a minority on here). Especially against those who claim PIP.

Fed up of feeling like a second class citizen because I claim benefits.

Fed up of people saying my mental health will improve if I am at work.

Fed up of disability top trumps with people saying things like- I have this , this and this disability and I manage to work.

Fed up that some people seem be hoping that Pip is abolished and then people like us will have to find another way to support ourselves. Also so fearful of this happening.

I clung onto work for years with having epilepsy and fibromyalgia. Fighting to stay in while employers were trying everything to get rid of me. I would be let go from one job on health grounds only to start the process again and it end the same way.

I now claim pip and esa as i have up to 20 seizures a week. Half of which I lose my memory and speech (I don’t even recognise my husband at times) and are totally wiped out for half a day at least . Would love some of the smug arseholes that’s seem to think everyone can work find someone who is willing to employ me. Oh and I piss myself as well and lose control of my bowels with many of my seizures. This is without the pain of fibro coming into it all.

So come on then these people on here who think all disabled people should work- suggest all the jobs that I can do that will benefit my mental health so I won’t be a burden on the state. Would you honestly be happy to employ me?

Sorry but the self righteous comments from people who dont have a clue is really starting to boil my piss. Oh and one day it might happen to them. I was 22 when I developed epilepsy, 30 when I got fibro after having glandular fever. I would not wish this one anyone obviously but people seem to forget that disability can happen at any time.

So waiting for the jobs suggestions to begin and the list of employers that would employ me-

OP posts:
XChrome · 04/10/2024 17:28

NezumiNezumi · 04/10/2024 06:26

Facts? Why believe facts when she can just believe her own made-up ableist bullshit.

Some people live in fact free world in general, not just about disability. Based on her username, I'm going to assume that is the case here.
Candace Owens is the name of a far right American political commentator.

Genevieva · 04/10/2024 17:31

OP, I doubt anyone begrudges financial support for someone with your condition. Nevertheless we face a structural problem in this country. We have the highest taxes in our history and a massive deficit, which means our national debt is growing all the time. The high taxation means we are losing more high tax payers than any other country in the world except China. At this rate, our tax base looks likely to shrink, yet the demands on our taxes are growing year on year. A part of that is the vast number of disable working age adults and the growing elderly population. 20% of secondary school children now receive DLA. The prognosis for them not receiving PIP in for course is not great, meaning the taxpayer funded benefits bill looks set to grow dramatically. These are all indicators of a very sick country with a problem for which the maths doesn’t stack up. There is only so long that can go on for before a country either cuts spending dramatically or is forced to by bankrupts.

XChrome · 04/10/2024 17:33

User37482 · 04/10/2024 06:28

I think the threads about people claiming disability allowance are thinking more along the lines of the increasing number of people not working for things like anxiety.

My personal experience was that when I stopped working (moved country) my anxiety escalated into a suicide attempt and then had to have extensive therapy (which I should have done but the waiting lists are too long, luckily by the time of my 3rd suicide attempt we could afford to go private).

The reality is that for many people the way to manage anxiety is to be working and engaging. It’s fucking hard but it helps. I am not claiming that it helps everyone but there will be other people here who have had a similar experience to me.

When you have a disability like epilepsy it’s a completely different experience. I had a friend at school with epilepsy, it was awful for her. I don’t think it’s reasonable to expect someone who has multiple seizures a week to be able to safely work or drive.

Having anxiety is not the same thing as an anxiety disorder. Working will worsen an anxiety disorder in many cases.
I have a relative with crippling social anxiety, general anxiety disorder, OCD as well as ADHD. She absolutely cannot work. Treatments have not helped much either.

XChrome · 04/10/2024 17:36

User37482 · 04/10/2024 06:52

Erm I did, diagnosed by a psychologist. It had previously been managed with medication, this no longer worked. It took an immense amount of getting past fear to dig myself out of that. I wish we had better services for people suffering with mental health issues, I really do. At one point I was spending close to 2k a month on therapy. This is not feasible for the majority, we are not extremely wealthy so that was a big chunk of our income. I wouldn’t have done it unless I really needed to.

The trigger was entirely down to leaving work, I utterly spiralled. I am not saying any of this to have a pop at people on welfare. My point is that working can and does improve mental health for people with anxiety disorders. Even if it’s not work but caring for your kids, getting up and doing something to the best of your ability, being busy pushing yourself out of your comfort zone. All these things help.

Edited

You really only know that it helped you. You don't know that it helps others.

XChrome · 04/10/2024 17:41

ArseInTheCoOpWindow · 04/10/2024 08:15

I’m mainly bed bound.

Someone on one of those horrible threads asked me why l needed pip if l spent all day laying in bed. It’s not like l did anything they said

l told them l spent it on staff aka Downton Abbey. That really pissed them off.

Good comeback to that moron.

Sampler · 04/10/2024 17:49

@Genevieva thats grand but I can’t wish my daughter’s disability away for tax purposes unfortunately.

JanglingJack · 04/10/2024 17:50

LoremIpsumCici · 04/10/2024 00:11

I know you meant to be supportive @SabreIsMyFave
but this:

”Being at home, doing what you want when you want to do it, waking when you want, chilling, and doing your favourite hobbies, and seeing your friends and your family when you want to”

is not the reality what life at home is like for far too many who are too disabled to work.

The reality is more
Grieving for what you’d want to do, but cannot due to disability (work, hobbies, basic day to day activities, seeing friends/family), anxiety over your poor health and meagre living allowance, struggling to keep pushing for healthcare and getting to/from appointments, frustration at being so dependent on others when you crave or miss independence, isolation from society & social events, the stigma of being unemployed and not seeking work, the pain and fatigue of the disabling conditions, realising your life expectancy is much shorter than average.

This.

I grieve my able body. Getting a bus pass and Blue Badge at 48 feels like I have no reason to live any more.
Initially given PIP for 30 years MH issues, now neuropathy - I can't feel my feet or hands.
Also diagnosed early 40s with Autism which explained why I was throwing myself from pillar to post in spite of top qualifications.

@Laughydodo ignore the ignorant ones. Concentrate on what you can do. What makes you content. This is far better than feeling trapped and doing nothing. If you can use your hands - make jewellery (my Mum does). She does fayres, online, markets etc and still wouldn't earn enough to bat an eyelash.
PIP is about support, so I'm assuming someone would take you, bring you home.
It's easy to say, I know, but don't be afraid to do something for yourself that brings joy.

XChrome · 04/10/2024 17:50

Gloriia · 04/10/2024 17:16

As everyone else has said you are obviously a genuine case with genuine disabilities that significantly affect your activities of daily living and the ability to maintain your own safety.

Sadly that is not the case with many others. Some think a medical diagnosis is reason enough to claim. The criteria does need to be clearer imo.

What is your evidence that many others are not genuine cases? With the fraud rate being 0% that can't be true.

fixingmylife · 04/10/2024 17:58

These are instruments of repression used by the Government in the UK.

Startingagainandagain · 04/10/2024 18:00

I am glad you posted this OP.

Yesterday I ended up reporting some of the comments on another PIP thread and what I read made me so angry.

The ignorance and spite are unbelievable on threads about mental health, disabilities and PIP.

I claim PIP and I work part-time.

In the past 10 years, I have faced the same problems at work over and over.
As soon as need some time off to deal with a flare up of my health conditions or require reasonable adjustments then the subtle bullying, ostracising and undermining begins to try to push me out. This is happening again in my current workplace.

If you declare a disability/health condition at the job application stage and if you have to disclose your sickness record in pre-employment checks then many employers will just reject you.

If the government want the disabled people who can work to get into/stay in employment they need to do more to make sure that employees do not discriminate, that there is an incentive to hire people with long term health conditions/disabilities and that there is a push to promote part time, flexible and WFH working.

Instead we are stuck with a long hour, office based work culture where employers expect staff to never be sick or have any kind of disability...

User37482 · 04/10/2024 18:01

XChrome · 04/10/2024 17:33

Having anxiety is not the same thing as an anxiety disorder. Working will worsen an anxiety disorder in many cases.
I have a relative with crippling social anxiety, general anxiety disorder, OCD as well as ADHD. She absolutely cannot work. Treatments have not helped much either.

I had GAD social anxiety disorder and CPTSD. I have to keep repeating this, diagnosed by a highly regarded Psychologist. I spent a fortune getting treated.

I’m not saying it works for everyone but once you step further and further from a normal life with some social contact it can get worse and worse and then it feels like an impossible task to ever live like a normal person.

Furthermore my point is not about benefits about feeling better, being better. It was fucking shit being crippled with anxiety, horrible.

Gloriia · 04/10/2024 18:02

XChrome · 04/10/2024 17:50

What is your evidence that many others are not genuine cases? With the fraud rate being 0% that can't be true.

I don't think it is fraud per se. I doubt someone fit and well lies about illnesses, it is just open to interpretation and possible embellishment.
The assessment needs changing.

Someone may well have an illness that affects their quality of life but so many illnesses fit into that bracket. Chronic ear infections for example cause balance and mobility issues but do sufferers need pip/DLA? No.

ESA is there for sick pay until people are well enough to get back to work. PiP, imo, should be for those with permanent physical disabilities not illnesses, or serious mh issues that necessitates care under a mental health team.

Enigma52 · 04/10/2024 18:02

Ignore the ignorant fuckers OP; they know jack all what they are talking about! If they had to suffer, they would soon change their tune I guarantee.

I've got metastatic breast cancer. I get PIP and I'm bloody glad. It meant I could drop a day at work.

Oh and to any ignorant MN poster that OP may be referring to; eventually ( if I get sicker) I WILL be chucking in my job and claiming benefits. Reason? I don't want to spend my remaining days, weeks and months being knackered and stressed!

Solidarity OP 🌸

SunflowersAndSquash · 04/10/2024 18:04

Surely many disabled people won't be able to continue work if their PIP is taken away because it's awarded to pay for things that help someone be independent. If they can't afford their medication, treatments, equipment, therapy, etc. how will they be able to go to work? Their health/mental health will spiral downwards and they'll be reliant on free care and need all living costs paid for.

FrAway · 04/10/2024 18:06

Really sorry to hear things are so bad for you @Laughydodo
That's so disabling when you have such uncontrolled epilepsy. I've looked after people with epilepsy over the years and I know you've probably been through umpteen medication regimes and hospital admissions and it's awful when the Drs just haven't been able to get this under control.

Many employers run a mile from uncontrolled epilepsy as they claim their insurance won't cover having you on the premises in case you injure yourself or someone else having a seizure.
It can be impossible to find employment in these circumstances

TigerRag · 04/10/2024 18:07

Gloriia · 04/10/2024 18:02

I don't think it is fraud per se. I doubt someone fit and well lies about illnesses, it is just open to interpretation and possible embellishment.
The assessment needs changing.

Someone may well have an illness that affects their quality of life but so many illnesses fit into that bracket. Chronic ear infections for example cause balance and mobility issues but do sufferers need pip/DLA? No.

ESA is there for sick pay until people are well enough to get back to work. PiP, imo, should be for those with permanent physical disabilities not illnesses, or serious mh issues that necessitates care under a mental health team.

Edited

And how many people do you know claim for chronic ear infections?

BruFord · 04/10/2024 18:11

User37482 · 04/10/2024 18:01

I had GAD social anxiety disorder and CPTSD. I have to keep repeating this, diagnosed by a highly regarded Psychologist. I spent a fortune getting treated.

I’m not saying it works for everyone but once you step further and further from a normal life with some social contact it can get worse and worse and then it feels like an impossible task to ever live like a normal person.

Furthermore my point is not about benefits about feeling better, being better. It was fucking shit being crippled with anxiety, horrible.

Edited

@User37482 Everyone has a different level of illness though. I'm also diagnosed with GAD but like you, I can manage it well enough with medication and counseling to be able to work.

I agree that for some people, the structure and social interaction gained through working is beneficial, but some people are simply too ill to do this.

Sampler · 04/10/2024 18:13

Good luck trying to get PIP for repeated ear infections @Gloriia

Theseventhmagpie · 04/10/2024 18:16

Of course you can’t work. A plague on anyone who says you should! X

XChrome · 04/10/2024 18:18

User37482 · 04/10/2024 18:01

I had GAD social anxiety disorder and CPTSD. I have to keep repeating this, diagnosed by a highly regarded Psychologist. I spent a fortune getting treated.

I’m not saying it works for everyone but once you step further and further from a normal life with some social contact it can get worse and worse and then it feels like an impossible task to ever live like a normal person.

Furthermore my point is not about benefits about feeling better, being better. It was fucking shit being crippled with anxiety, horrible.

Edited

Understood, but why put these comments about what helped you in a thread where the OP says she cannot work? Obviously, you can. So how is your experience supposed to be helpful to somebody who can't?

XChrome · 04/10/2024 18:23

Gloriia · 04/10/2024 18:02

I don't think it is fraud per se. I doubt someone fit and well lies about illnesses, it is just open to interpretation and possible embellishment.
The assessment needs changing.

Someone may well have an illness that affects their quality of life but so many illnesses fit into that bracket. Chronic ear infections for example cause balance and mobility issues but do sufferers need pip/DLA? No.

ESA is there for sick pay until people are well enough to get back to work. PiP, imo, should be for those with permanent physical disabilities not illnesses, or serious mh issues that necessitates care under a mental health team.

Edited

Are people with chronic ear infections eligible?
Probably not. So what was the point of that example?
"Embellishment" would, in fact, be fraud. That would mean the claimant pretends to be sicker than she/he actually is.

Are you really not aware that a lot of illnesses cause permanent physical disabilities?

Cynic17 · 04/10/2024 18:23

To be fair, OP, lots of people who claim PIP are also in paid work - the two things aren't mutually exclusive.

AgnesX · 04/10/2024 18:41

Zanatdy · 04/10/2024 05:55

It sounds very difficult to manage your condition and there’s not a single person here who would say you should work. But, we all know people who claim disability benefits who could work. Posters will say how do you know, and I know because i’m in a health group as i have a disability myself so have befriended many. One guys tells me he has to be careful paying for his ski-ing (scottish mountain) because he could be investigated. So he pays cash instead. He stopped going to the gym and goes swimming instead, because he’s wary of being caught. I’m not saying he doesn’t have a disability, he does, but I wouldnt say he 100% cant work. He doesn’t qualify for PIP, as he doesn’t need help with the qualifying activities. He’s very comfortable financially as he had low outgoings. I know a few people like him, again, not saying any have no health conditions, they do, like myself, but rightly or wrongly, they lie on PIP forms as they want extra money coming in. Again, no judgement whether that’s right or wrong, it’s clearly not easy to live off ESA.

Many here will say no-one knows if someone is lying etc, but i know a fair few. No i wouldn’t report them as its not for me to judge. I do think for many, working part time might help their mental health. I know for myself, when i need to take time off due to my own health condition, I miss the routine and social aspect of work. But quite clearly, not every disabled person can work, but many people do know people who are lying to get PIP and that’s why the genuine people who qualify suffer as people are annoyed at those lying.

Mmm, so you deserve PIP but he doesn't. And he should work because he can climb a mountain......

Sampler · 04/10/2024 18:48

I’ve noticed all these people on MN who talk to virtual strangers who proceed to give them the precise ins and outs of their financial situation, benefits claimed, hobbies etc. Even my best friends don’t know half this stuff about me. Seems a bit odd. Perhaps some people are making this up.
Its rather similar to Tracy at the school gate in her Range Rover with her 60” telly type thing.

Also whilst some people do lie, so do people in every walk of life, I’ve even hear politicians lie (imagine).

Differentstarts · 04/10/2024 18:48

Gloriia · 04/10/2024 18:02

I don't think it is fraud per se. I doubt someone fit and well lies about illnesses, it is just open to interpretation and possible embellishment.
The assessment needs changing.

Someone may well have an illness that affects their quality of life but so many illnesses fit into that bracket. Chronic ear infections for example cause balance and mobility issues but do sufferers need pip/DLA? No.

ESA is there for sick pay until people are well enough to get back to work. PiP, imo, should be for those with permanent physical disabilities not illnesses, or serious mh issues that necessitates care under a mental health team.

Edited

What you said is what pip is for, you wouldn't be entitled to it for ear infections it is for people who have permanent disabilities. You do realise cancer is an illness so your saying you wouldn't give a person fighting cancer financial help. I can't speak for others but I am under the cmht and I assume anyone on pip for mental health are under secondary care. You wouldn't get pip with just a gp letter saying you have anxiety or depression